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Biomedical subjects

A Chapple

Publications and source records attributed to A Chapple.

18 recordsLinked to original sources
PubMed2006

What people close to death say about euthanasia and assisted suicide: a qualitative study.

OBJECTIVE: To explore the experiences of people with a "terminal illness", focusing on the patients' perspective of euthanasia and assisted suicide. METHOD: A qualitative study using narrative interviews was conducted throughout the UK. The views of the 18 people who discussed euthanasia and assisted suicide were explored. These were drawn from a maximum variation sample, who said that they had a "terminal" illness, malignant or non-malignant. RESULTS: That UK law should be changed to allow assisted suicide or voluntary euthanasia was felt strongly by most people. Those who had seen others die were particularly convinced that this should be a right. Some had multiple reasons, including pain and anticipated pain, fear of indignity, loss of control and cognitive impairment. Those who did not want to be a burden also had other reasons for wanting euthanasia. Suicide was contemplated by a few, who would have preferred a change in the law to allow them to end their lives with medical help and in the company of family or friends. The few who opposed a change in UK law, or who felt ambivalent, focused on involuntary euthanasia, cited religious reasons or worried that new legislation might be open to abuse. CONCLUSION: Qualitative research conducted on people who know they are nearing death is an important addition to the international debate on euthanasia and assisted suicide. Those who had seen others die were particularly convinced that the law should be changed to allow assisted death.

Adult↗
PubMed2004

Stigma, shame, and blame experienced by patients with lung cancer: qualitative study.

OBJECTIVES: To draw on narrative interviews with patients with lung cancer and to explore their perceptions and experience of stigma. DESIGN: Qualitative study. SETTING: United Kingdom. PARTICIPANTS: 45 patients with lung cancer recruited through several sources. RESULTS: Participants experienced stigma commonly felt by patients with other types of cancer, but, whether they smoked or not, they felt particularly stigmatised because the disease is so strongly associated with smoking. Interaction with family, friends, and doctors was often affected as a result, and many patients, particularly those who had stopped smoking years ago or had never smoked, felt unjustly blamed for their illness. Those who resisted victim blaming maintained that the real culprits were tobacco companies with unscrupulous policies. Some patients concealed their illness, which sometimes had adverse financial consequences or made it hard for them to gain support from other people. Some indicated that newspaper and television reports may have added to the stigma: television advertisements aim to put young people off tobacco, but they usually portray a dreadful death, which may exacerbate fear and anxiety. A few patients were worried that diagnosis, access to care, and research into lung cancer might be adversely affected by the stigma attached to the disease and those who smoke. CONCLUSION: Patients with lung cancer report stigmatisation with far reaching consequences. Efforts to help people to quit smoking are important, but clinical and educational interventions should be presented with care so as not to add to the stigma experienced by patients with lung cancer and other smoking related diseases.

Adult↗
PubMed2004

The decision to have a prosthesis: A qualitative study of men with testicular cancer.

The aim of this paper is to understand why some men decide to have a testicular prosthesis while others reject the idea and to explore the extent to which the option of a testicular prosthesis is adequately presented. Forty-five men with testicular cancer were interviewed about all aspects of their illness. Some men decided against a prosthesis for a number of reasons; they thought that the loss of a testicle was not visibly obvious, did not affect self-image, was not a long-term threat to masculinity, and that living with one testicle was comfortable. Some did not want additional surgery and others were concerned about safety issues. The men who decided to have a prosthesis were concerned about self-image and a threat to masculinity. They had a desire to look 'normal' and a wish to keep the orchidectomy secret. Some men felt that the decision had been rushed. Others wished that they had had information about the possibility of implants before the orchidectomy or they considered the information presented inadequate. We conclude that it is important to counsel men with testicular cancer about the advantages and disadvantages of having a testicular prosthesis and to give them time to consider issues such as cosmetic appearance, self-image, comfort, possible short term complications and long-term safety.

Adult↗
PubMed2002

Is 'watchful waiting' a real choice for men with prostate cancer? A qualitative study.

OBJECTIVE: To understand what leads men to choose 'watchful waiting' rather than active treatment for cancer of the prostate. PATIENTS AND METHODS: Fifty men with confirmed prostate cancer in England, Wales and Scotland were interviewed about all aspects of their illness, for a Database of Individual Patients' Experience of illness. The sample included men at different stages of diagnosis and with experience of a wide range of treatments. We report here only what men said about their choice of treatment and the decision-making process. RESULTS: Watchful waiting would have been clinically inappropriate for almost half of the men (those with serious urinary symptoms and those with metastatic disease). However, few of the men who might have chosen watchful-waiting remembered this being presented as a serious option. Most in this group chose radical prostatectomy, radiotherapy, brachytherapy or cryosurgery. The few who chose watchful waiting had found doctors who supported their decision, had assessed the evidence from Internet sites, and were concerned about the side-effects and uncertain outcome of treatment. Men who chose watchful waiting, as well as those who opted for treatment, described considerable pressure from family members, doctors or support groups, to seek active treatment. CONCLUSION: This study helps to explain why some men will not contemplate watchful waiting, and why others may find it difficult to pursue that option. Understanding men's concerns may help clinicians to support men's treatment decisions. Treatment for prostate cancer is highly controversial because no randomized, controlled trials have shown whether or not active intervention increases survival. If trials are not completed it cannot be determined whether active treatments are the best course of action for men with prostate cancer.

Aged↗
PubMed2001

Citizens' expectations and likely use of a NHS Walk-in Centre: results of a survey and qualitative methods of research.

OBJECTIVES: To find out which groups of people would use a National Health Service walk-in centre that would offer mainly health care advice, staffed by nurses. To understand the circumstances in which people would use a walk-in centre and to ascertain to what extent it would meet patients' expressed health-care needs. DESIGN: A postal survey of 2400 people plus 27 semi-structured interviews and one focus group. SETTING AND PARTICIPANTS: The study was conducted in Wakefield, Yorkshire UK, and included both white and ethnic minority groups. RESULTS: Most people reported that they would use a walk-in centre. It would be more attractive to young as compared with older people, ethnic minority as compared with white people, people who are dissatisfied with access to NHS services and people with urgent health-care problems. People want a wide range of services, including diagnosis, treatment, prevention, and general information. People also want access to both doctors and nurses, to male as well as female practitioners, to counsellors and interpreters. The type of service planned for this walk-in centre will meet some of the expressed needs. However, patients' expectations of the walk-in centre exceed planned provision in a number of key respects. CONCLUSION: Walk-in centres without GPs and with limited services will disappoint the public. It is important that walk-in centres are evaluated and attention paid to 'local voices' before additional money is allocated for such centres elsewhere.

Adolescent↗
PubMed2001

Vaginal thrush: perceptions and experiences of women of south Asian descent.

It is estimated that 75% of all women will, at some time in their lives, experience at least one episode of vaginal thrush. This paper reports the perceptions and experiences of women of South Asian descent living in England, who were suffering or had suffered from thrush. The paper draws upon data collected during 20 semi-structured interviews. The women reported that thrush sometimes had a considerable impact on their lives, making some of them feel 'dirty', embarrassed, depressed and stigmatized. Some women delayed seeking professional help even if they had access to a female General Practitioner. Access to professional care was sometimes hampered by language barriers, but more often by structural factors of gender and social class. Although almost all the women came originally from Gujarat (or had parents who were born in Gujarat), they reported a wide range of experiences. Since vaginal thrush causes much distress and since it is often preventable, the findings presented here have implications for clinical practice. The paper concludes with suggestions for future developments.

Adult↗
PubMed2001

What makes British general practitioners take part in a quality improvement scheme?

OBJECTIVES: To understand the reasons for the apparent success of a quality improvement scheme designed to produce widespread changes in chronic disease management in primary care. METHODS: Purposeful sample of 36 primary care staff, managers and specialists. Qualitative analysis of 27 interviews in East Kent Health Authority area, where, over a three-year period, more than three-quarters of general practitioners (GPs) and enrolled in a quality improvement programme which required them to meet challenging chronic disease management targets (PRImary Care Clinical Effectiveness--PRICCE). RESULTS: Major changes in clinical practice appeared to have taken place as a result of participation in PRICCE. The scheme was significantly dependent on leadership from the health authority and on local professional support. Factors that motivated GPs to take part in the project included: a desire to improve patient care; financial incentives; maintenance of professional autonomy in how to reach the targets; maintenance of professional pride; and peer pressure. Good teamworking was essential to successful completion of the project and often improved as a result of taking part. The scheme included a combination of interventions known to be effective in producing professional behavioural change. CONCLUSIONS: When managerial vision is aligned to professional values, and combined with a range of interventions known to influence professional behaviour including financial incentives, substantial changes in clinical practice can result. Lessons are drawn for future quality improvement programmes in the National Health Service.

Chronic Disease↗
PubMed1999

Barriers to referral in patients with angina: qualitative study.

OBJECTIVES: To explore barriers to patients being referred for possible revascularisation. DESIGN: Qualitative study using semi-structured interviews. PARTICIPANTS: 16 patients aged under 75 years with stable angina and their doctors. SETTING: General practice in Toxteth, Liverpool. RESULTS: Fear of both hospitals and medical tests was common and largely hidden from the doctors. Patients felt they were old, had low expectations of treatment, viewed angina as a chronic illness, and knew little about new developments in angina treatment. Patients and doctors had difficulty in recognising angina symptoms that were not textbook definitions amid multiple comorbidity. Patients saw doctors as busy and did not want to bother them with their condition. Cultural gaps and communication difficulties existed despite all but one patient having English as their first language. CONCLUSIONS: Listening to patients is vital to address inequitable access to health services: how patients are treated by doctors today affects acceptability of referral tomorrow. Primary care groups in deprived areas should work with communities to address local fears. This will involve collaboration between primary, secondary, and tertiary care. Cultural gaps exist between patients and doctors in deprived areas, and diagnostic confusion can occur particularly in the presence of other psychological and physical morbidity. Adequate time and resources-for example, education for doctors and patients and provision of interpreters-need to be provided if inequitable access to revascularisation procedures is to be addressed.

Adult↗
PubMed1999

"If a patient is too costly they tend to get rid of you:" the impact of people's perceptions of rationing on the use of primary care.

Despite the increasing focus on rationing, and rationing decisions in the NHS, little attention has been given to patient's perceptions of rationing and the potential impact this might have on people's use of services. Drawing on the qualitative findings of a study conducted in the North West of England which was concerned with the pattern and processes of primary care help seeking, this paper sets out to examine perceptions and experiences of rationing in primary care and the potential impact this has on people's use of services. In relation to primary care services people had experienced rationing by deterrence, dilution and delay. There was some evidence that perceptions of rationing impacted on help seeking and the use of primary care services. The implications for understanding the way in which perceptions of rationing might influence the formulation of demand and help seeking by people using primary care services are discussed.

Appointments and Schedules↗
PubMed1999

Menorrhagia: women's perceptions of this condition and its treatment.

This paper reports a qualitative study of women's perceptions and experience of menorrhagia. Having obtained ethics committee approval, and informed written consent, interviews were conducted with 30 women who reported that they were suffering from menorrhagia. The sample included 13 women of South Asian descent. Some of those interviewed did not want medical treatment for menorrhagia. Other women were quite satisfied with the treatment they received when they consulted their doctors. However, it appears that some general practitioners failed to recognize women's need for treatment and were slow to comply with requests for referral to a gynaecologist. Although in the past there has been justifiable concern about women who undergo unnecessary treatment for perceived menorrhagia, this study suggests that health care professionals should be aware that some women may experience menorrhagia for long periods of time without receiving effective health care. It is possible that those who volunteered for the study were those most likely to have experienced problems with their treatment. However, the results of this study have implications for nurses, who may be in a position to give help and advice to women who want information about possible alternative treatments and sources of help for menorrhagia.

Adult↗
PubMed1998

Iron deficiency anaemia in women of South Asian descent: a qualitative study.

OBJECTIVE: Menorrhagia is thought to be the commonest cause of iron deficiency anaemia in women of reproductive age living in Britain. However, it has been suggested that the high prevalence of iron deficiency anaemia in women of South Asian descent living in Britain is due to religious and cultural restrictions on certain foods. While lack of iron in the diet, or poor iron absorption may well be reasons for this prevalence of iron deficiency anaemia, there may be other complex reasons why South Asian women suffer particularly from this complaint. This study aimed to explore reasons for the relatively high level of iron deficiency anaemia found in South Asian women living in Britain. METHOD: A qualitative study using semi-structured interviews with women of Indian and Pakistani descent living in a town in North West England. FINDINGS: It appears that some South Asian women value a relatively heavy menstrual blood flow because such blood is thought to be 'dirty' and 'impure' and because a scanty period is thought to result in abdominal weight gain and pain. When menstrual blood loss is thought to be 'excessive', women tend to avoid 'hot' foods such as meat, fish and eggs, thus denying themselves a valuable source of iron. When South Asian women believe that they have a serious problem of menorrhagia they may not seek medical help because of the shortage of female general practitioners. Poor communication with doctors and other health care professionals may also affect illness behaviour. CONCLUSION: This study suggests that attitudes to menstruation and menstrual blood may help to account for the relatively high levels of iron deficiency anaemia found in women of South Asian descent living in Britain. Since most of the women interviewed during this research had families who came from Gujarat in Western India, more research is needed to explore the values and beliefs of women coming from other parts of Southern Asia.

Anemia, Iron-Deficiency↗
PubMed1998

Explicit guidelines for qualitative research: a step in the right direction, a defence of the 'soft' option, or a form of sociological imperialism?

Within the context of health service research, qualitative research has sometimes been seen as a 'soft' approach, lacking scientific rigour. In order to promote the legitimacy of using qualitative methodology in this field, numerous social scientists have produced checklists, guidelines or manuals for researchers to follow when conducting and writing up qualitative work. However, those working in the health service should be aware that social scientists are not all in agreement about the way in which qualitative work should be conducted, and they should not be discouraged from conducting qualitative research simply because they do not possess certain technical skills or extensive training in sociology, anthropology or psychology. The proliferation of guidelines and checklists may be off-putting to people who want to undertake this sort of research, and they may also make it even more difficult for researchers to publish work in medical journals. Consequently, the very people who may be in a position to change medical practice may never read the results of important qualitative research.

Anthropology, Cultural↗
PubMed1998

Variations in use of cardiac services in England: perceptions of general practitioners, general physicians and cardiologists.

OBJECTIVE: To explain why those who live some distance from tertiary cardiac centres make less use of coronary angiography and revascularisation than those who live close by, and why people living in particular wards within certain districts make less use of services than might be expected from their level of need. METHOD: Semi-structured interviews with 24 general practitioners (GPs) in two English health districts (Morecambe Bay and East Lancashire), five general physicians working in district general hospitals, and four interventional cardiologists working in tertiary centres. Transcripts of audiotape recordings were analysed using the constant comparative method. RESULTS: Those living far from tertiary centres are usually referred to general physicians before they are referred for angiography. The general physicians tend to be more conservative in their approach to treatment than interventional cardiologists. GPs working near tertiary centres are able to refer directly to interventional cardiologists. There are also logistical and economic reasons for inequitable use of services. Some GPs perceived that patients of South Asian descent undergo fewer investigations than might be expected because of communication or other difficulties. CONCLUSION: Use of cardiac services would be more equitable if there were interventional cardiologists based in district general hospitals who could perform angiograms for their own patients in the tertiary centres. Patients might also benefit in angiograms could be conducted in selected district general hospitals. Further qualitative research, involving both doctors and patients, is needed to explore other reasons for relatively low rates of investigation and revascularisation in certain groups of patients.

Attitude of Health Personnel↗
PubMed1995

Hysterectomy: British National Health Service and private patients have very different experiences.

One in five women in the United Kingdom will have a hysterectomy by the time they reach the age of 65. This paper explores the experiences of women as they seek advice in outpatient clinics, as they go into hospital for surgery, and as they return home to convalesce. Differences in doctor-patient communication between private sector and National Health Service patients are discussed. The results of this study point to the inadequacy of current practice in providing information to patients about this potentially serious operation.

Attitude to Health↗
PubMedDate not supplied

Clinical terminology: anxiety and confusion amongst families undergoing genetic counseling.

Genetic counseling is a rapidly expanding, but highly demanding, domain of doctor-patient communication. This paper reports results from an ethnographic study of families (n = 30) attending a genetic counseling clinic in Northern England. We suggest that the language used in this particular specialty is often confusing and misunderstood by the families involved. We found that unfamiliar terms may also conjure up also conjure up alarming images. It is important therefore, that physicians, and in particular geneticists, try to use simple, understandable language, and give clear explanations for unfamiliar terms that cannot be avoided. The careful choice of words, and detailed explanation, not only reduces the risks of "labelling" and stigmatization, but may also prevent the unnecessary anxiety experienced by patients when they hear unfamiliar medical terms, such as the eponyms frequently employed by geneticists when giving a diagnosis.

Anxiety↗
PubMedDate not supplied

General practitioners' perceptions of the illness behaviour and health needs of South Asian women with menorrhagia.

OBJECTIVES: A study of general practitioners' (GPs) perceptions of the health needs of women of South Asian descent who suffer from menorrhagia. METHOD: A qualitative study using semi-structured interviews with 50 GPs in two British towns. FINDINGS: This study suggest that some women of South Asian descent may not consult their GPs even though suffering severe menorrhagia. Moreover, some GPs perceive that women may suffer from anaemia as the result of such illness behaviour. One reason for this reluctance to consult for menorrhagia may be the fact that some women of South Asian descent prefer to be examined by female doctors, yet may attend practices that lack a female partner. The study also shows that South Asian women, who consult male GPs for menorrhagia, are sometimes referred to hospital outpatients without internal examinations, and that women may be reluctant to keep their hospital appointments because of the lack of female gynaecologists. The study also indicates that a shortage of female interpreters may make communication difficult between some health care professionals and their patients, particularly when a complex and sensitive subject such as menorrhagia needs to be discussed. CONCLUSION: Women of South Asian descent may suffer serious problems such as iron deficiency anaemia, partly due to untreated menorrhagia. Since this was a study of GPs' perceptions of the health needs of South Asian women, it is now important to interview women themselves, to learn more about their perceptions of menorrhagia, and their perceptions of any subsequent contact with health care professionals.

Anemia, Iron-Deficiency↗