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Biomedical subjects

B R Hasselkus

Publications and source records attributed to B R Hasselkus.

At least 19 recordsLinked to original sources

Occupation and well-being in dementia: the experience of day-care staff.

OBJECTIVE: The purpose of this study was to gain understanding of the staff experience of occupation in the context of day care for persons with dementia. METHOD: Narratives of especially satisfying and dissatisfying experiences of care were elicited from a random state-wide sample of day-care staff members. Qualitative methods were used to analyze the phenomenological data. RESULTS: The core meaning of occupation derived from these data was Occupation as the Gateway to Relative Well-Being. A model of the experience of occupation for staff members is proposed that is composed of three phases: the meeting of minds, engagement in occupation, and relative well-being. The skills of the staff informants that bring about the meeting of minds, the many levels of client engagement in occupation, and the indicators of well-being for clients and for staff members are described. The three phases together constitute an occupational space--created by the staff person--and the engagement in occupation itself constitutes an occupational place within that space. CONCLUSIONS: Bringing about indicators of well-being through occupation was a primary source of satisfaction for the day-care staff informants in this study. The model of the staff experience of occupation proposed in this study has application to all areas of occupational therapy practice.

Adult↗

Occupational therapists' expectations in rehabilitation following stroke: sources of satisfaction and dissatisfaction.

OBJECTIVE: The purpose of this study was to gain understanding of the satisfactions and dissatisfactions in the work of occupational therapists with clients after stroke. METHOD: Data consisted of narrative descriptions by 32 therapists of especially satisfying and dissatisfying experiences in practice. Phenomenology and grounded theory strategies were used for the study design and data analysis. RESULTS: "Expectation" emerged as the core meaning of occupational therapy in stroke rehabilitation. Strong satisfaction was expressed when therapist-informants believed that they had fulfilled their expectations for clients to achieve the following: (a) maximum neuromuscular and functional recovery in affected upper extremities; (b) independence in daily activities; and (c) return to living in the community. Major sources of informants' dissatisfactions were reaching the "plateau" stage of neurological recovery, disagreement between therapist expectations and client and family member expectations, and working with clients perceived as poorly motivated. CONCLUSION: American ideologies about the value of hard work, independence, and self-sufficiency appear to strongly shape therapists' expectations, satisfaction, and dissatisfaction in stroke rehabilitation. For occupational therapists, a tension may exist between the idealism of their therapeutic expectations and the realities of stroke recovery as it is experienced within the context of clients' ongoing lives.

Adult↗

Everyday ethics in dementia day care: narratives of crossing the line.

The purpose of this study was to gain understanding of the ethical aspects of the experience of providing day care to people with dementia. Telephone interviews were conducted to elicit phenomenological narratives of satisfying and dissatisfying experiences from staff members of a state-wide random sample of dementia day care facilities. The analysis was guided by the concept of situated ethics. Findings reveal that ethical challenges of dementia day care are embodied in the everyday incidents when participants, staff, or family members "cross the line" of acceptable behavior. An ethical hierarchy of staff responses ranges from benign manipulation to termination of day care. These findings help us understand the situated ethics of dementia day care and heighten our sensitivity to the lived experience of dementia day care staff.

Adult↗

Geriatric occupational therapy: the uncertain ideology of long-term care.

The search for the good life is used as a framework for understanding the meaning of geriatric practice to occupational therapists. Data consisted of a subset of phenomenological interviews drawn from a nationwide study of 148 occupational therapists in all areas of practice. Narratives of satisfying and dissatisfying experiences with older clients were analyzed to understand the uniqueness of therapists' lived experiences in geriatrics. The realities of practice with older clients--the settings, the meanings and symbols of continuity in old age, and the older client's uncertain future--merge to create an uncertain ideology in geriatric occupational therapy. We suggest that a fundamental task of occupational therapists in geriatrics, as they seek the good life for themselves and their older clients, is to reconcile the realities of practice with traditional rehabilitation ideologies by redefining themselves and their roles in practice.

Adult↗

Doing occupational therapy: dimensions of satisfaction and dissatisfaction.

OBJECTIVES: A phenomenological study was conducted to gain understanding of the nature of the lived experience of doing occupational therapy. METHOD: One hundred and forty-eight occupational therapists nationwide were asked to describe especially satisfying and dissatisfying experiences of practice. The resulting narrative data were analyzed with dimensional analysis techniques. RESULTS: With the metaphor of therapy as story, three overarching dimensions of practice were derived from the narrative data: Change, Community, and Craft. The dimension of Change is strongly related to the ending or outcome of the story, Community encompasses the harmony or disharmony of the interrelationships in the shared story, and Craft includes both the skills of therapy and the broader core experience of doing therapy. CONCLUSION: These findings are complementary to the three-track mind discussed in the clinical reasoning study and contribute further to our understanding of the experience of doing occupational therapy.

Adult↗

Death in very old age: a personal journey of caregiving.

This paper describes a personal journey of caregiving for a very old family member during dying and death. The phenomenology of caregiving reveals the inner struggle experienced by all caregivers, lay and professional, between the needs to support both the living and the dying of the terminally ill person. The lived experience unfolds in phases of caregiving that support a stage theory of development in professionals' work with dying persons. The concept of presencing or connecting is a vital component of terminal care and has implications for occupational therapy practice. Occupational therapists can use their knowledge and understanding of occupation to bring about connecting in the dying experience. The contributions of all participants in the dying experience--family caregivers, the dying person, and health professionals--are important as sources of mutual support in the work of dying.

Aged↗

Independent living and the physical environment: aspects that matter to residents.

Field interviews were conducted with seven clients with disabilities for the purpose of developing design guidelines for apartments suitable for independent living. Analysis of these data generated six factors that were highly valued and felt to contribute to the success of these individuals' venture into community living. Control appears to be the central construct and to subsume the other concepts: safety/security, accessibility/mobility, function, flexibility and privacy. These findings are presented and discussed here as a working model of environmental control. These ideas are suggested as hypotheses which would need to be tested and refined further before being used as a model to guide clinical interventions.

Activities of Daily Living↗

The meaning of activity: day care for persons with Alzheimer disease.

The purpose of this study was to gain understanding of the meaning of the daily routines and activities at a day-care center for persons with Alzheimer disease, as experienced by the staff. With the use of the qualitative research techniques of participant observation and ethnographic interviewing, data were collected for 4 weeks at a small adult day-care center for persons with mid- to late-stage Alzheimer disease or related disorders. Analysis of the data revealed that the foremost guiding principle for all activities during the day was prevention, that is, to prevent participant behavior that would be harmful to self or to others. Secondary to this overarching guideline, other characteristics of a "good day" versus a "rough day" were also identified. The findings are discussed as they relate to activity program planning and to sources of staff satisfaction in the care of persons with Alzheimer disease.

Activities of Daily Living↗

Post-occupancy evaluation: an environment-behaviour technique for assessing the built environment.

This paper reviews the development, structure and process of post-occupancy evaluation (POE) as an environment-behaviour approach to assessing built environments of all sizes and types. It illustrates the use of POEs with three examples from the Health Care sector: The Canadian Hospital Evaluation Program, the Weiss Institute, and 18 independent-living apartment units. A comparison is made between POEs and the approach currently used by occupational therapy (OT) for environmental assessments. Recommendations suggest that OT's approach could be extended and strengthened through 1) incorporating POE methods and existing data from environment-behaviour studies; 2) the use of standard assessment procedures and well-validated measures; and 3) the development of a data bank on OT environmental assessments.

Activities of Daily Living↗

Ethical dilemmas in family caregiving for the elderly: implications for occupational therapy.

An analysis of 60 ethnographic interviews with family caregivers for frail community-based elderly persons has suggested that ethical dilemmas are an important organizing framework for family caregiving. The present paper explores this conjecture as it relates to the practice of occupational therapy with older clients and their families. Major themes of ethical dilemmas in family caregiving, as derived from the ethnographic data, are described. Verbatim interview data are presented to illustrate the close ties between caregiving activity and the caregiver's ethical convictions. Occupational therapists are encouraged to seek understanding of their clients' ethical beliefs in order to maximize the potential for a therapeutic relationship built on mutual understanding and partnership.

Aged↗

Barrier-free design: a review and critique of the occupational therapy perspective.

This review of the occupational therapy literature on barrier-free design identifies both a paucity of related occupational therapy research on the topic and a lack of a common conceptual base with which to guide the development and use of environmental assessments. Nonetheless, two fledgling themes can be extrapolated: the consistent reference to the concepts of accessibility, mobility, function, and safety and an increased awareness among occupational therapists regarding the accessibility standards developed by the American National Standards Institute (ANSI) (ANSI, 1971, 1980). A problem-solving model suggested by designers for the 1979 revision of ANSI standards that incorporates these conceptual themes is described and discussed.

Activities of Daily Living↗

The meaning of daily activity in family caregiving for the elderly.

Sixty ethnographic interviews with 15 family caregivers for frail older people living in the community were analyzed to understand the meaning of activity in caregiving. Schön's (1983) reflection-in-action framework was used to organize the data. Three goals of caregiving activity were derived: (a) getting things done, (b) achieving a sense of health and well-being for the care receiver, and (c) achieving a sense of health and well-being for the caregiver. The family caregiver was conceptualized as a lay practitioner involved in the clinical reasoning and ethical dilemmas integral to the provision of health care for the care receiver. The caregivers' judgments regarding the prioritization and attainment of goals determined the forms of caregiving activities. Implications for occupational therapy practice and the relationship between the caregiver and the professional are discussed.

Activities of Daily Living↗

Handedness and hand joint changes in rheumatoid arthritis.

This study investigates the relationship of hand use to the deforming hand joint changes of rheumatoid arthritis. Measurements of metacarpophalangeal lateral mobility, loss of metacarpophalangeal hyperextension, thumb metacarpophalangeal range of motion, and lateral pinch strength were statistically compared across dominant and nondominant hands of 51 adult subjects who had definite or classical rheumatoid arthritis. Incidence of boutonniere and swan neck deformities and distal radioulna laxity was also recorded. Results of a multivariate analysis of variance of the difference scores between dominant and nondominant measures were not significant. The authors concluded that the relationship of hand use to joint destruction is not yet clearly defined and further study is needed. Implications for treatment principles of joint protection are presented.

Adult↗

Rheumatoid arthritis: a two-axis goniometer to measure metacarpophalangeal laxity.

A 2-axis goniometer has been developed which accommodates the metacarpophalangeal (MCP) changes of rheumatoid arthritis and permits accurate measurement of laxity of the MCP joints. Measurements made with the instrument on 51 subjects with definite or classical rheumatoid arthritis showed high percentages of intrarater and interrater agreement for repeated trials. These results suggest that, following the methods outlined, the 2-axis goniometer can be used to obtain reliable objective measurements of MCP lateral mobility by 1 or more raters with a minimum of training.

Arthritis, Rheumatoid↗