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Biomedical subjects

Bernie Carter

Publications and source records attributed to Bernie Carter.

31 records · Page 2Linked to original sources
PubMed2002

Dealing with uncertainty: parental assessment of pain in their children with profound special needs.

BACKGROUND: Despite advances in the assessment and management of children's pain, children with profound special needs are especially vulnerable to poor pain management. Their underpinning condition often severely compromises their ability to express pain through the usual verbal and behavioural routes. The lack of any appropriate framework for assessment results in a suboptimum and inaccurate approach to an important aspect of their care. PURPOSE: The purpose of the study was to explore the ways in which parents of children with profound special needs assess and manage their children's pain. METHODS: Qualitative case study design underpinned the study using guided interviews with the 15 parents/carers (of 12 children aged 5-16 years with profound special needs). ETHICAL APPROVAL: Ethics Committee approval was gained. FINDINGS: A number of themes emerged from the data including learning to live with pain, dealing with uncertainty, expression of pain and making decisions. CONCLUSIONS: Parents felt that their child had learned to live with significant levels of chronic and acute pain. Assessment of pain was an uncertain and complex process requiring parents to draw on skills and knowledge developed over a number of years. Parents used different strategies for both the assessment and management of pain based on an intimate knowledge of their child's usual nonpain state. Even with a limited repertoire of behaviours available to them, children were able to express pain. Parents often felt isolated in relation to pain management and under-used as a resource by health professionals.

Adolescent↗
PubMed2002

Adaptation and negotiation as an approach to care in paediatric diabetes specialist nursing practice: a critical review.

Considerable attention has been given to diabetes care in children. However, nursing practice may be guided by biomedical models. Diabetes care in children should focus on family-centred approaches arguably based in the community. Psychosocial constructs have an important role in the development of self-management of chronic illness in children. Paediatric diabetes nurse specialists are pivotal in facilitating family-centred care based on personal models of child and family interventions.

Adaptation, Psychological↗
PubMed2002

The transition of adolescents with diabetes from the children's health care service into the adult health care service: a review of the literature.

Adolescents with diabetes have unique health needs, which impact upon their transition from children's health care services into adult health care services. These health needs result from the precarious period in their lives, when they have to cope with the stresses of being a maturing person. This coincides with their move from the children's into the adult health care service. Whilst coping with these pressures they must also keep their diabetes under control. The impact of emotional and physical demands upon the adolescent means that they are more susceptible to non-adherence, which may result in reduced diabetic control. This literature review identifies some of the many barriers erected to the transition into the adult health care system; these barriers may be constructed by any one of the parties involved: the children's health care team, adult health care team, the adolescent or their family. Principles of a successful transition are explored, along with the prerequisite qualities required of health care providers and the health care service.

Adaptation, Psychological↗
PubMed2002

A pain workshop: an approach to eliciting the views of young people with chronic pain.

Chronic pain is complex and there is still much to discover about the burden that it places on children and their families. The aim of this study was to explore the way in which the experience of chronic pain impacts on the lives of young people. Through the use of a pain workshop that involved a series of guided activities and a focus group, young people were able to share their experiences with each other and the facilitators/researchers. Data were analysed using a theoretical coding technique supported by Atlas.ti. Five key interlinked themes emerged from the data and each theme is expressed in the words of the young people themselves: 'no one's pain's the same', 'getting on with it', 'it's hard 'cos...', 'keeping with the dream', and 'it depends ... some are OK'. The young people did experience significant disruption in their lives as a result of their pain. Pain was experienced as if it was both a separate entity as well as an intrinsic part of them and, to a degree, blighted their future. Based on the experiences shared by the young people, professionals need to develop insight and strategies into the challenges young people with chronic pain face on a daily basis.

Activities of Daily Living↗
PubMed2002

Clients' experiences of frozen shoulder and its treatment with Bowen technique.

Bowen technique (BT) is a therapy that uses a light, non-invasive pressure applied to specific and prescribed locations throughout the body to trigger the body's own self-healing powers. Frozen shoulder is a painful condition associated with a reduced range of motion in the affected shoulder that is often resistant to conventional treatment. Within this paper, the qualitative findings from a larger study are presented and 20 participants' experiences of BT, their comparisons with other interventions, and their satisfaction with the therapy are explored. Overwhelmingly, BT was experienced as being gentle, relaxing and noninvasive and of help with significantly eliminating and improving the symptoms associated with frozen shoulder.

Activities of Daily Living↗
PubMed2002

Chronic pain in childhood and the medical encounter: professional ventriloquism and hidden voices.

This article is a report on the experiences of three children with chronic pain and their families. The children and families experienced numerous encounters with health professionals during their "quest for a diagnosis"for chronic pain. In a high proportion of these encounters, the children/families felt they were judged, disbelieved, and labeled as difficult or dysfunctional, and this compounded the stresses they were already dealing with. The families described situations in which their accounts of pain were reinterpreted through a variety of professional lenses, and the children felt that their voices were muted or ignored. Professional ventriloquism is presented as a means of exploring the way in which the child's words are reinterpreted and mistranslated through professionals' own paradigms of understanding. Professionals need to stand back from what they believe to determine what the children themselves know about their pain.

Adolescent↗
PubMed2002

Children's participation in healthcare in the UK--gesture, rhetoric, or real involvement?

In the United Kingdom (England, Wales, Scotland, and Northern Ireland) children and their best interests are protected through a range of best practice initiatives, and legislation and guidance at country, national, European, and global levels. Some of the recent commitment by the government may be the result of enlightened thinking, but some of it has resulted from the aftermath of at least two major healthcare incidents. This article reviews the UK's recent national and international efforts to protect its thirteen million children and ensure that their voices are heard.

Benchmarking↗