[Specific mesenchymomas of the female gonads in childhood].
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Biomedical subjects
Publications and source records attributed to C Buscemi.
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Cultural values and beliefs affect family attitudes toward participation in research. Significant resistance to allowing their elders with dementia to participate in clinical research was encountered in Cuban-American families. These families expressed concern about disturbing the elder's comfort (tranquilidad) and solitude (soledad). Furthermore, most believed that intervention would be futile. Feelings of guilt associated with nursing home placement may have been exacerbated by the suggestion that active intervention could be effective. Strategies to overcome these barriers included reduced emphasis on the potential superiority of the intervention to be tested, reassurance that contact with research staff was usually appreciated by participants, arrangements to talk with the family as a group about the study, and increased use of Spanish-language consent forms.
Changes in reimbursement, new regulatory guidelines, and other issues impacting the healthcare industry have forced providers to examine new models of healthcare delivery. One of those models is disease management or disease-state management. This article presents issues involved in developing such a program using the experiences of a Florida-based health system as an example.
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