Biomedical subjects

C Lysack

Publications and source records attributed to C Lysack.

4 recordsLinked to original sources

PubMed1997

Modernity, postmodernity and disability in developing countries.

This paper examines the implications of two theoretical perspectives, modernity and postmodernity, for provision of community-based disability services in developing countries. The author argues that modernity's embrace of the 'wonders' of science and technology have significantly affected our understanding of what community is. Modernity, in fact, leads us to view communities in one of two major ways: as inferior, or as ideal. Both views are deeply flawed. Postmodernity's profound scepticism of truth claims and authority provides a useful critique of community conceived in modern terms. The critique is helpful to the extent that it reveals the power of language in constructing our ideas of community. It also highlights a new way of thinking about participation, individualism and choice in community disability initiatives.

Developing Countries↗

PubMed1994

Comparing the origins and ideologies of the independent living movement and community based rehabilitation.

Community-based rehabilitation (CBR) and independent living (IL) differentiate their orientations from traditional rehabilitation models and both place significant emphasis on consumer and community participation. Although the formative structural forces and historical roots of the two rehabilitation approaches are very different, comparison of them is necessary for the following reasons. First, the disabled consumers movement is increasingly involved in international work and has fostered the development of organizations in Southern countries which apply an independent living and consumer-based perspective. It is therefore useful to develop a clear understanding of the cultural and historical background of this movement and its rootedness in the North American experience. Secondly, there has been some discussion of introducing the CBR model into North America. While an attractive concept, it is critical to understand that CBR was developed for a very different context. Most importantly, it grew up in the absence of a fully articulated consumer movement or a fully professionalized and elaborated system of rehabilitation. Expansion of both CBR and IL reflects the emerging dialogue and exchange which is transforming both movements.

Community Health Services↗

PubMed1993

Community-based rehabilitation cadres: their motivation for volunteerism.

Volunteer workers, or cadres, are critical to the successful implementation of community-based rehabilitation (CBR) programmes. To date, relatively little research has examined the importance of motivation in health volunteers in general, and especially CBR workers. This paper reports the major findings of a field study in rural Indonesia. A multimethod design within a broad qualitative research framework which focused on the personal experiences of CBR volunteers was utilized. Descriptive data were obtained from written questionnaires, focus groups and key informant interviews. Research findings indicated that volunteer cadres perform considerable duties and face numerous difficulties in the course of their CBR activities. Incentives also play an important role in determining the motivation and ultimate performance of volunteer cadres. Developing an understanding of what it is like to be a volunteer CBR cadre has important implications for rehabilitationists interested in developing and sustaining CBR programmes and is clearly critical to any evaluation of CBR.

Adult↗

PubMedDate not supplied

The Joint Protection Behavior Assessment: a reliability study.

OBJECTIVE: Of the various measures developed for studying persons with rheumatoid arthritis, only one that focuses on joint protection has undergone extensive testing, the Joint Protection Behavior Assessment (JPBA). The purpose of the present study was to examine the interrater and intrarater reliability of the JPBA. METHOD: Six healthy participants performed the JPBA under three test conditions (uninformed, informed, completely guided joint protection behavior). The 18 test performances were videotaped and scored by nine independent raters. RESULTS: Analysis of these data showed that interrater reliability (intraclass correlation coefficient [ICC]) was .90 or higher, and intrarater reliability was .95 or higher (ICC). The correlation between the JPBA and its two shortened versions was .95 or higher (ICC). Internal consistency was also high, with a coefficient alpha of 0.95 for the complete JPBA. Kappa values showed that for most subtasks, there was fair to excellent agreement between raters and consistency of raters over time. CONCLUSION: Our data suggest that the complete JPBA has excellent clinimetric properties and that the shortened versions are adequate for clinical situations. Some improvements in the test manual suggested by the present study may further improve the measure. A repeat of this study under real-world circumstances would provide an estimate of JPBA reliability in clinical practice.

Activities of Daily Living↗