Biomedical subjects

C S Wachters-Kaufmann

Publications and source records attributed to C S Wachters-Kaufmann.

2 recordsLinked to original sources

PubMed1999

A Dutch 'Poststroke Guide': distribution and use.

Stroke patients and caregivers have a substantial need for information. The Dutch 'Poststroke Guide' was written in an attempt to meet this need. The study investigates the distribution of this guide among stroke patients, caregivers, and stroke providers. Stroke patients and caregivers who ordered a copy of the first edition received a questionnaire to evaluate the guide and to provide information about personal characteristics. Nearly one-third of the guides finds its way directly to stroke patients and/or caregivers and more than two-thirds goes to providers. Since providers are calling stroke patients' attention to the guide to an increasing extent, the information for caregivers ought to be improved. Mainly young, slightly disabled male stroke patients with healthy caregivers returned the questionnaire. Both stroke patients and caregivers read the guide thoroughly; it clearly meets their need for information. In the future, distribution will have to be less selective.

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PubMedDate not supplied

Personal accounts of stroke experiences.

As there appeared to be a need for personal accounts of stroke experiences, a book called "Speaking about Stroke" was written for stroke patients and their caregivers. For the past two years, a questionnaire was sent to the people who had ordered the book, to gain an insight into the characteristics of those who bought it, the distribution, use, and relevance of the book, and its effects on the readers' attitude and behaviour. It appears that healthy caregivers of relatively young but severely handicapped stroke patients order the book. The book is read carefully. Both stroke patients and caregivers value the book because the accounts give them a feeling of recognition, appreciation and understanding. Many readers state that they have put suggestions given in the book into practice. "Speaking about Stroke" fills a clear need for personal accounts, and cerebrovascular accident professionals should draw the attention of the target group to it.

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