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C Tishelman

Publications and source records attributed to C Tishelman.

At least 19 recordsLinked to original sources

A conceptual framework for patient-professional communication: an application to the cancer context.

We present a conceptual framework of one-to-one, in-person communication that occurs between a health-care professional and a patient. The framework is intended as a tool for organizing and summarizing relevant research but it can also help guide assessing the communication process and can help guide development of interventions to improve the process. The framework includes four key components, with a focus on elements that can be modified. The first component is the focus of the interaction: each participant's communication goals. The second component consists of the participants themselves, each with five key attributes that determine, in part, how they address their goals. The third component is the communication process: each person both conveys messages and receives messages, and the messages themselves can be verbal, non-verbal, or silent. The communication process is iterative and extended in time with one act having an impact on following acts. Finally, the fourth component is the environment in which the communication occurs, both the immediate physical setting and the context beyond. Important aspects of the environment, identified as external factors, affect the communication process through their impact on the participants' attributes. The framework builds on classic communication frameworks to which it adds unique elements. Some of its unique aspects include the prominent role of the participants' goals and its distinct recognition that messages are conveyed through silence. The framework serves as a common conceptualization of factors important to successful communication for the remaining review papers in this series and for future studies of practitioner-patient communication.

Communication↗

Factors related to participation in a cervical cancer screening programme in urban Sweden.

Fifty-six per cent of invited women aged 25-60 attended the Population-based Cervical Cancer Screening Programme (PCCSP) in Stockholm, Sweden in 1994-1996. The objective of this study was to explore factors related to participation in this PCCSP. Registry data on all women aged 25-60 invited to the PCCSP from 1994 to 1996 (n=307,552) was matched with a national longitudinal population database. Women in the youngest age group (25-29 years old) were found to be less likely to participate in the PCCSP than women in older age groups. Married women or widows attended the programme more often (OR 1.32, 95% confidence interval (95% CI) 1.29-1.34 and OR 1.36, 95% CI 1.27-1.45, respectively) than did single women. Women in the labour force were more likely to participate than those who were not in the labour force (OR 1.82, 95% CI 1.78-1.87). The participation rate was not lower for immigrant women from developing countries than for those born in Sweden. We found that age, marital status and being in the labour force or not are factors associated with participation in the cervical cancer screening programme.

Adult↗

Risk in numbers--difficulties in the transformation of genetic knowledge from research to people--the case of hereditary cancer.

Difficulties in communicating diagnostic information are exacerbated when the 'diagnosis' is a 'genetic risk' for cancer. The risk estimation demanded in this situation differs from other types of probability estimations. Observations of participants in 45 consultation sessions between physicians and potential patients were conducted at a clinic for hereditary cancer to explore the communication of genetic information. Thirty-three sessions were audiotaped, transcribed verbatim and analyzed, along with notes from the other sessions. A dominant theme was found to be numerical discussion of risk. Further analysis resulted in the description of problems for practitioners in the process of translating scientific knowledge into clinical management. Problems in providing information include unclear aims of the consultation sessions, mixing various types of background information and probabilities, recognizing how low the predictive values are, and difficulties in communicating the relationship between probability and conclusions. Problems in communicating information about the genetic risk for cancer are of at least two types: dilemmas arising from uncertainties implicit in the nature of the information itself and difficulties in communicating information in a manner that those concerned can interpret. These issues need clarification, so that information with far-reaching consequences can be made as clear and comprehensible as possible for those involved.

Adult↗

Rationales for attending or not attending mammography screening--a focus group study among women in Sweden.

Quantitative findings regarding factors that affect attendance in population-based outreach mammography programmes need to be complemented by descriptive data. The aim of this study was to obtain descriptive insights into the meanings that Swedish women attach to mammograms and their rationales for attending or not attending mammography screening. For this purpose a total of 31 women were recruited to eight focus group discussions. Through inductive analysis, six main themes were identified as important issues in reasoning about attendance or non-attendance in mammography screening: negative experiences, perceived risk factors, knowledge of one's own body, perceived problems with mammography, political, ideological and moral reasoning, and involuntary non-attendance, due to the inability of the screening programme to cover some women (e.g. those with breast implants). In conclusion, there is a need to reinforce the information that mammography is an examination aiming at detecting lumps at an asymptomatic stage. However, the nature and amount of information the women themselves desire is inconsistent. Furthermore, the personal encounter between the individual woman and the staff seems to be of particular importance. An improved dialogue appears an attractive way of adapting the screening situation to meet the varied needs and expectations of the women who are invited.

Adult↗

Influence of sociocultural and structural factors on functional ability: the case of elderly people in Bangladesh.

OBJECTIVE: To describe and contextualize functional status of elderly people (greater or lesser than 60 years) in Bangladesh by relating it to gender, region, and socioeconomic status. METHODS: In this community-based study (N = 696), functional status was described through assessment of activities of daily living (ADL) and instrumental activities of daily living (IADL). Information was obtained on type of help used for ADLs and IADLs and reason for nonperformance of IADLs. RESULTS: Findings indicate differential performance in ADLs and IADLs by gender and region. Socioeconomic status is found to influence IADLs only. Empirical evidence regarding type of help used and reason for not performing a task enables understanding of sociocultural and structural influence on functional ability. DISCUSSION: The underlying assumption of ADL and IADL instruments that an individual will perform an activity given physical or cognitive ability is questioned. It is suggested that sociocultural and structural factors are strong determinants of task performance.

Activities of Daily Living↗

Measuring symptom distress in patients with lung cancer. A pilot study of experienced intensity and importance of symptoms.

Patients with cancer experience high levels of symptom distress. Current measures of symptoms generally weight the importance of each symptom equally, and do not generally address the relative importance of different symptoms to patients. The purpose of this pilot study was to explore whether the assumption of equal weighting is warranted in measurements of symptom distress. Consecutive patients presenting with primary lung cancer at the Lung Medicine Unit of one Swedish hospital completed the Symptom Distress Scale and a Thurstone scale eliciting patients' weightings of the symptoms' relative importance three times: after first contact with the unit, then 1 and 2 months later. The results show that subjects weighted some symptoms as significantly more important than others, and the ordering of symptoms was found to differ by intensity and perceived importance in this group. Outlook was the symptom rated most important at T1. Fatigue received the highest intensity score, but ranked second lowest in importance. Kendall's coefficient showed minimal agreement among these patients as to the specific order for the weighting of the importance of symptoms. In addition to theoretical relevance, this issue is clinically relevant in selecting symptoms that should be the focus of intervention and in determining how the success of interventions should be judged.

Aged↗

Midwives' descriptions of their familiarity with cancer: a qualitative study of midwives working with population-based cervical cancer screening in urban Sweden.

Nurse-midwives are responsible for taking Papanicolaou (Pap) smears in Swedish population-based cervical cancer screening programs. A research project examining the screening program from the perspective of different stakeholders includes an interview study of 21 midwives working in Stockholm. This article explores the way the midwives describe cancer-related knowledge and aspects of screening, contrasting this with relevant findings from a substudy of 66 healthy women participating in screening. A semistructured interview guide with open-ended questions was used to investigate ideas about benefits and risks in the screening program, risk factors for cervical cancer, the reliability of the test itself, sources of information/knowledge relevant for cervical cancer screening, and the manner in which the midwife described her role in the screening program. The transcripts of the audiotaped interviews were analyzed thematically using a team approach. The interviewed midwives showed a great deal of consensus in their descriptions of lacking familiarity with cervical cancer and its prevention and treatment. The midwives said they lack recent education and knowledge, often avoiding use of the word "cancer" with women attending screening. It seems that the midwives experienced little professional guidance in discussing cancer-related issues with women attending the screening program. In this study, they appeared to rely on personal knowledge, values, and experience instead.

Adult↗

"Shopping" for sexually transmitted disease treatment: focus group discussions among lay persons in rural and urban Zambia.

BACKGROUND: In Zambia, persons use different types of services when seeking treatment for sexually transmitted diseases (STDs). GOAL: To gain insight into the rationale behind the selection of treatment sources by investigating perceptions of STDs and by identifying STD treatment sources used. STUDY DESIGN: Focus group discussions were held with 57 men and 44 women in one urban and one rural area in Zambia between May 1997 and June 1997. The focus group discussions were audiotaped and analyzed qualitatively. RESULTS: Participants combined traditional and modern treatment. The main reason given was that even when biomedical medicine was effective, STDs could only be totally cured if the patient was cleansed by traditional herbs. Factors influencing health-seeking behavior were the person's perception, how the diagnosis was determined, type and cost of treatment, demand for sexual partners, and attitudes of health workers, parents, and the church. CONCLUSION: Barriers and enabling factors for the use of treatment sources were identified. Interventions to improve services and cooperation between the health sectors need to consider these factors.

Adolescent↗

Research on risk and risk in research: theoretical and practical experiences from a multidisciplinary study on cervical cancer screening in urban Sweden.

This article describes a qualitative research project on secondary cancer prevention that was conducted using a multidisciplinary team and that was inspired by perspectives from feminist research and fourth-generation evaluation. A screening program for cervical cancer was investigated from the perspective of different stakeholders through a series of substudies using a variety of qualitative approaches, in order to have a broad basis for consideration and negotiation of improvements. The first sections of this article describe the theoretical and methodological basis for the project, which triangulates a variety of qualitative and quantitative research strategies, whereas the latter sections describe some of our experiences, positive and negative, as a research team (and thus also as stakeholders) in actually conducting the studies.

Female↗

The diagnostic process and the boundaries of normality.

This article illustrates a group of cancer patients' descriptions and explanations of their experiences of health care encounters involving professional and lay processes of diagnosis related to definitions of normality. An interdisciplinary approach, representing nursing and medical anthropology, has been used in attempting to better understand data derived from semistructured interviews with 46 persons diagnosed with cancer in the greater Stockholm area and with 29 of their significant others. We argue that people in this study tend to deal with disruptive situations by attempting to construct order. In the stories presented by these cancer patients, a diagnostic process becomes evident in which patients first become "nonnormal" within a popular framework and later meet positive criteria to become "normally diseased" with the legitimization this provides. We thus see a way for the involved actors to deal with potentially difficult situations by redefining the concept of normality.

Attitude to Health↗

Getting sick and getting well: a qualitative study of aetiologic explanations of people with cancer.

This paper explores lay explanations of developing a cancer disease and 'recovering' from the disease, both phenomena of importance in understanding how information on cancer prevention and recovery is made sense of by non-professionals. The data derive from interviews conducted with persons diagnosed with a malignant disease during 1987 at one hospital in urban Sweden. Forty-six patients were interviewed in 1988-1989, and 20 of those surviving were interviewed again in 1992. Explanations most often appear to be negotiated forth because they are able to fulfil a positive function for the patient in the sickness process. Intricate combinations of explanations were found which avoid individual blame, provide the possibility of positive influence and allow for individual successes. These micro-level explanations are discussed in relation to general discourse about prevention of sickness in our culture.

Adaptation, Psychological↗

Nursing diagnosis: a critical analysis of underlying assumptions.

The nursing diagnosis movement has now reached many European countries and is rapidly being accepted as a method with which to advance the professional status of nursing as well as to define, structure, standardize and systematize nursing care. It is necessary that the import of Anglo-Saxon nursing concepts, theories and models are critically examined for cultural, contextual and philosophical appropriateness. In this article, we articulate and critically examine some of the assumptions implicit in nursing diagnosis, using examples from our clinical research in Sweden.

Attitude of Health Personnel↗

[Critical reflections on the uncritical use of measuring instruments: Example Sense of Coherence questionnaire].

This article presents a critical discussion of Antonovsky's salutogenic model, focusing on its instrumentalisation in the Sense of Coherence questionnaire and implications for health care research. The critical discussion is related to three themes: a. The divorce between theory and method, b. The Sense of Coherence questionnaire: a "supra-cultural instrument"? and c. Numbers, normality and the social construction of reality. The author concludes that extreme cautiousness and further study is necessary before the Sense of Coherence questionnaire should be considered adequate for use in applied clinical research.

Clinical Nursing Research↗

Cancer patients' hopes and expectations of nursing practice in Stockholm--patients' descriptions and nursing discourse.

Although nursing literature on 'caring' has proliferated in recent years, relatively little empirical data exists about which aspects of nursing practice are those recognized and valued by patients. The purpose of the qualitative study presented here is to explore the manner in which one group of Swedish patients describe and explain the domain of nursing. The data presented derives from interviews with persons diagnosed with cancer during 1987 at one general hospital in the greater Stockholm area. Forty-six patients were interviewed in 1988-89, and 20 of these survivors were interviewed again in 1992. The domain of nursing practice 'expected' by the patients was seen to be defined positively, both by what nurses 'are' and 'do', as well as negatively, by what they do not do. It was found that the patient--nurse contact, as described by these patients, was between an individual patient and a nursing collective. Finally, the need for local rather than global criteria for evaluating nursing care is discussed.

Attitude to Health↗

Who cares? Patients' descriptions of age-related aspects of cancer and care in Stockholm.

This exploratory study examines the situation of a heterogeneous group of 46 cancer patients from one general hospital in the Stockholm area who were diagnosed with a malignant disease in 1987. Forty-six patients were interviewed to determine how they experience and cope with their sickness. Although age-related issues were not directly addressed by the interviewer, they were frequently commented upon by the respondents. A questionnaire was also used to quantify various psychosocial aspects of the individual's cancer experience. Quantitative and qualitative data were used in a complementary fashion. The patients interviewed ranged in age from 29 to 88 years (median 61). Issues related to age were frequently addressed spontaneously by the interviewed persons, which led to further exploration of age-related aspects of care. Although few age-related differences in symptom distress were found, some differences were seen in patients' perceptions of the response of the professional health-care system. The older patients related that they have less quantitative contact with specialized formal resources, and perceive less sense of engagement and concern from the professional health-care sector. The qualitative analysis suggests that age may be used by patients as an explanatory factor in a variety of situations, functioning as a means of "making sense" of sickness experiences.

Adaptation, Psychological↗

Self-reported symptom distress in cancer patients: reflections of disease, illness or sickness?

This article examines the relationships between symptom distress in a heterogeneous group of cancer patients and a number of possible explanatory variables, categorized as demographic, medical/clinical, individual/psychosocial and variables related to patients' views of care provided by the health care system. A series of explorative multiple regression analyses were undertaken to this end. The data are derived from a cross-sectional study of cancer patients diagnosed in 1987 at one general hospital in the greater Stockholm area, using semi-structured interviews in conjunction with McCorkle and Young's Symptom Distress Scale, Antonovsky's Sense of Coherence Questionnaire, Cutrona and Russell's Social Provisions Scale and Smilkstein's Family APGAR. Symptom distress is studied as a cumulative index, as well as in terms of the sub-indexes of pain, appetite/nausea, functional aspects, psychological aspects and social aspects. When the four categories of explanatory variables are combined, considerably higher levels of variance are explained for all 6 indexes of the Symptom Distress Scale, than when the regression analyses are performed separately with each distinct category of explanatory variables. This provides a statistical illustration of the multifaceted and complex nature of symptom distress. The data are presented in the context of a conceptual discussion about the meaning of symptoms. Symptom distress, in this study, appears to reflect both personal and cultural experiences, that is 'illness' and 'sickness' processes, rather than primarily medical/clinical variables, or 'disease'. Antonovsky's salutogenic model is suggested as a fruitful framework for further analysis.

Aged↗