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Biomedical subjects

D MacKinlay

Publications and source records attributed to D MacKinlay.

2 recordsLinked to original sources

Norm values for the Generic Children's Quality of Life Measure (GCQ) from a large school-based sample.

This study aimed to assess the quality of life of a population sample of schoolchildren. The Generic Children's Quality of Life Measure (GCQ) has been developed to allow comparison between chronically ill children and the general child population. The measure assesses how the child views his or her life and also how they would like it to be. Quality of life is measured as the discrepancy between the two viewpoints. This large community-based survey aimed to establish GCQ norm values for children aged 6-14 years. The children were from a sample of schools stratified by geographical location and social need: rural affluent, rural low affluence, urban affluent and urban low affluence. 720 completed questionnaires were analysed. The scores were normally distributed with a wide range. The GCQ showed an acceptable reliability with a Cronbach's alpha of 0.75. The quality of life score was not correlated with age (r = -0.02, p = 0.64) nor with the deprivation score of the area in which the children lived (r = -0.026, p = 0.49). There were no significant differences between the scores by gender (p = 0.22) nor by rural/urban location (p = 0.60). Normative values were established. The GCQ is suitable for using with children over a large age range (6-14 years) without the scores being confounded by the age, gender, affluence or geographical location.

Adolescent↗

Distress and the micturating cystourethrogram: does preparation help?

This study evaluates the impact of therapeutic preparation methods on children undergoing MCUG. Parents of 35 children who had undergone MCUG were surveyed by questionnaire. The child's reaction to investigation was assessed using the Groningen Distress Rating Scale (rating 1 = calm > 5 = panic) and parental coping styles using the Utrecht Coping List. Families received one of two types of therapeutic preparation: storybooklet or storybooklet and play preparation. Reported distress levels were significantly lower with therapeutic preparation (mean score 2.5 +/- 1.02 SD) than without (mean score 3.3 +/- 1.22 SD). Previously, controls reported 46% of anxiety-linked behaviour changes post-MCUG, falling to 13% after therapeutic preparation. Parents who gave a candid explanation reported significantly lower child distress levels (mean 2.0 +/- 0.91 SD) than those parents who avoided upsetting details (mean 3.1 +/- 0.47 SD). We conclude that distress associated with the MCUG can be reduced by therapeutic preparation of the child and family prior to investigation.

Adaptation, Psychological↗