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Biomedical subjects

G Sinnema

Publications and source records attributed to G Sinnema.

35 records · Page 2Linked to original sources
PubMed1993

Psychosocial effects of two years of human growth hormone treatment in Turner syndrome. The Dutch Working Group: Psychologists and Growth Hormone.

Thirty-eight girls with Turner syndrome were treated for 2 years with human growth hormone. Both parents and patients carried out assessments of the effects of treatment on various aspects of psychosocial functioning. The children used the Piers-Harris Self-Concept Scale and the Social Anxiety Scale for children, while parents were interviewed and filled in the Child Behavior Checklist. Both parents and children used the Therapy Evaluation Scale and the Silhouette Apperception Technique. Teachers completed the Teacher Rating Form. Results showed no significant changes with treatment in self-concept or social anxiety, or in behavioural problems, though immature behaviour was less common after the treatment period. Therapy was evaluated positively, and improvements were apparent in both social and emotional functioning; about a quarter of the patients became more independent, happier and more involved in social interactions. Unrealistic perceptions of present height and expectations of future height were expressed by a large proportion of both children and parents.

Anxiety↗
PubMed1992

[Good things come in small packages? Psychosocial aspects of small stature].

Short stature is considered as a social disadvantage. This review deals with the findings of studies on cognitive and socio-emotional functioning in children with growth hormone deficiency, constitutional short stature, Turner syndrome, skeletal dysplasias and chronic illnesses. The consequences of short stature in adulthood are also described. The short term effect of growth hormone treatment on psychosocial functioning appears positive, but long term results have to be awaited before conclusions can be drawn.

Adult↗
PubMed1991

[Psychological and social aspects of juvenile chronic arthritis].

Juvenile rheumatoid arthritis (JRA) affects the physical, psychological and social development of children and adolescents. Illness characteristics such as visibility, pain and uncertainty may influence the development of independence and social adjustment. Children can suffer from growth deficiencies, school problems, social isolation, sometimes psychopathology. International research does not yield consensus on the incidence of psychopathology in chronically ill children. The psychosocial effects of the illness are partly determined by the ways the child and the family react to the illness and its physical consequences. The functioning of child and family ultimately depends upon the balance between burdens and strengths. Reciprocal influences between illness and daily living can be understood through modern psycho-neuroimmunologic theories. These concepts ask for a multidisciplinary team-approach for suitable, individualized care.

Activities of Daily Living↗
PubMed1991

Psychological development as related to puberty, body height and severity of illness in adolescents with cystic fibrosis.

The interrelations between delayed puberty, small stature, severity of illness and psychological development were studied in 64 adolescents with cystic fibrosis (CF). The study included 36 adolescents with asthma bronchiale, 47 adolescents with small stature (height less than 25th percentile) and 71 healthy controls with a height greater than or equal to 25th percentile. All adolescents and the parents of 40 youngsters with CF had extensive personal interviews. Eight aspects of independence and related aspects of self-perception were measured. In CF, delayed puberty and small stature were clearly correlated with less participation in some social activities, a lesser degree of ideal-formation and a less positive body attitude. Small stature appeared to have the same effects in healthy adolescents. Severity of illness in CF and asthma played a role of secondary importance. In general, the perceptions of parents were similar to or slightly more pessimistic than the self-perceptions of their CF children. The need for psychosexual counselling and training in social skills for adolescents with CF is stressed.

Adolescent↗
PubMed1990

Guidance of children and adolescents with cystic fibrosis.

Cystic fibrosis is the most common serious genetic disorder in people of European descent. Treatment of these patients is ongoing throughout life and until now has been aimed at the consequences and is still not curative. Over the past 10-20 years, there has been a dramatic improvement of mortality rates for cystic fibrosis, due in large part to advances in medical care. The average age of survival for young people with cystic fibrosis is pushing well into the 20s with one third living into their 30s. Consequently, education plays a major role in management of patients with cystic fibrosis, and starts directly after being sure of the diagnosis. Growing up, these patients experience a lot of problems, and these are especially marked in the adolescent. A special problem, for many cystic fibrosis patients is becoming an adult. Continuity in care for these patients from the pediatric to the adult department is not always guaranteed. It is concluded that patients with cystic fibrosis should be treated in specialized centers, and such treatment cannot be carried out sufficiently by one person, but has to be embedded in a team of caregivers.

Adolescent↗
PubMed1990

[When sports no longer is a game ... the clinical aspects of competitive sports in children].

Physical and psychic vulnerability in children performing competitive sports may turn an accidental injury into a starting-point for chronic pain. This pain may give rise to serious physical and social restraints. The case histories of two fourteen years old girls are presented. Both patients suffered from overburdening. This phenomenon had not been recognized, or was not explicitly stated at least. Probably, too high expectations from medical help by parents and child played a crucial role. Expectations were twofold: the chronic pain should fit a specific defect caused by the injury, or it should be due to a (serious) disease. Both types of expectations led to disappointments, repeated diagnostic procedures and ineffective therapies. A comprehensive assessment without delay by a multidisciplinary pediatric team is recommended.

Adolescent↗
PubMed1988

The development of independence in adolescents with cystic fibrosis.

This study assessed the development of independence and its interaction with some biologic factors. Sixty-four adolescents with cystic fibrosis (CF) were compared with 36 adolescents with bronchial asthma, 47 healthy but small adolescents, and 71 normal healthy controls. A structured interview was designed to measure eight elements of independence. Adolescents with CF showed less responsibility for their own body hygiene and a delay in intimacy and sexuality, both correlated with puberty not yet having started. They also took less part in a number of social activities outside the home. There were minimal or no differences between ill and healthy adolescents for four elements. The results indicated that in future research, different types of independence should be taken into account. The correspondences between the chronically ill and the healthy adolescents prevailed over the differences. The main differences could be interpreted in terms of realistic coping with the illness and maintaining hope for the future.

Adaptation, Psychological↗
PubMed1983

Adolescents with cystic fibrosis in The Netherlands.

In a survey-study of all living Dutch patients with cystic fibrosis (CF) born before 1971 data have been gathered on sex, age, age at diagnosis; height and weight; treatment and social development. The group consists of 102 schoolchildren (8-11 years), 179 adolescents (12-21 years) and 28 young adults (22-40 years). Males are in the majority, especially in the 12 to 17 age group (61%). In 51% of all patients CF was diagnosed before the age of 2, and in 75% before the age of 5. Male CF patients are on average 6 cm (0.84 SD) shorter than normal and female patients 3 cm (0.48 SD). As far as weight for height is concerned, 54% of the CF patients fall below the 10th percentile. Weight for height is slightly lower in females than in males. CF patients usually leave primary school at an older age than their healthy peers. In comparison to healthy adolescents of the same age, adolescents with CF attend full-time day-school for a longer time, more of them receive general education and fewer take vocational training. Adolescents and young adults with CF do not stay longer than normal in the protective environment of their parental home.

Adolescent↗