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Biomedical subjects

I H Vandvik

Publications and source records attributed to I H Vandvik.

At least 37 records · Page 2Linked to original sources
PubMed1992

A computerized scoring procedure for the Kvebaek Family Sculpture Technique applied to families of children with rheumatic diseases.

A new computer-based quantification procedure was applied to data obtained from administering the Kvebaek Family Sculpture Technique (KFST) to 92 mothers of children with recent onset of rheumatic symptoms (median = 7 months). Four family configuration types (close, hierarchical, unspecified, and skewed) were defined on the basis of distance and structural parameters of the configuration. The types differed with regard to the childhood environment of the mother, chronic family difficulties, and the psychosocial functioning of the primary patient. Comparisons of the families of the mothers that did (n = 23) and did not (n = 69) wish a change of family configuration showed that the families of the mothers who wished change differed with regard to configuration types, distance variables, and psychosocial characteristics. The results are discussed in the context of structural family-systems theory. The computerized scoring procedure opens new possibilities for research about various family members' perspectives and assessment of changes in family configurations during therapy or over time.

Arthritis, Juvenile↗
PubMed1991

Prediction of short-term prognosis by biopsychosocial variables in patients with juvenile rheumatic diseases.

We describe physical symptoms and signs, laboratory data and psychosocial assessments for 84 children (age 1-17) hospitalized for the first time with suspected or definite rheumatic disease. At 16 months (range 7-28) followup change of disease severity was assessed based on hospital records. The patients were categorized as unchanged/worse (n = 36) or improved (n = 48). A linear discriminant model applying a combined set of 6 medical and 2 psychosocial variables characterized correctly 68 of 84 patients (81%). The variables were age at onset, disease severity, months of disease duration, presence of rheumatic disease in the family, erythrocyte sedimentation rate (ESR), thrombocytes, total behavior problem score on the Child Behavior Checklist and maternal distress. By discriminant function analysis of biopsychosocial variables more homogeneous groups may be obtained. Study of such groups may improve prediction of the prognosis.

Child↗
PubMed1991

Mothers of children with recent onset of rheumatic disease: associations between maternal distress, psychosocial variables, and the disease of the children.

As part of a longitudinal project based on a biopsychosocial model of juvenile rheumatic diseases, maternal mental distress was examined as a possible predisposing factor for the child's disease and/or as an effect of disease. Eighty-four mothers were interviewed and completed the General Health Questionnaire (GHQ-20), the State-Trait Anxiety Inventory (STAI), and the Child Behavior Checklist. Fifty percent of the mothers reported psychiatric distress as indicated by GHQ greater than or equal to 4. Trait anxiety of the mother (measuring stable personality characteristics) was unrelated to disease variables but was associated with psychosocial background variables [maternal childhood environment (CES) (r = -0.42, p less than 0.01), chronic family difficulties (r = 0.41, p less than 0.01)], and stressful life events (r = 0.41, p less than 0.01). State anxiety was associated with number of affected joints of the child (r = 0.33, p less than 0.01). At this early stage of the disease course (median duration 7 months) findings did not confirm the hypothesis that the psychosocial background factors were related to disease parameters or to severity.

Activities of Daily Living↗
PubMed1990

Mental health and psychosocial functioning in children with recent onset of rheumatic disease.

Mental health was evaluated early in the course of juvenile rheumatic disease; 106 parents of children (aged 1-17 yrs) were interviewed and 98 of the children were assessed when the child was hospitalized. Instruments included the Child Assessment Schedule (CAS), the Children's Global Assessment Scale (CGAS) and the Child Behavior Checklist (CBCL). Half the patients received a psychiatric diagnosis; psychosocial dysfunction of at least mild severity was found in 64% of the patients. In the polyarthritic group there was a negative correlation between CGAS and severity of disease. CBCL behaviour scores did not differentiate between patients and siblings when corrected for somatic components.

Adaptation, Psychological↗
PubMed1990

The first stay in a pediatric rheumatology ward. Associations between parent satisfaction and disease and psychosocial factors.

To assess parent satisfaction with hospital care and needs for improvement, questionnaires were sent to parents of children participating in a study of bio-psychosocial factors at the onset of juvenile rheumatic diseases. At 16 months follow-up (range 12-22 months) 85 (82%) of 106 parents answered. Twenty-four of these were also interviewed. 95-98% of parents were satisfied with the way they had been received, the ward setup and the atmosphere, the examination of the child by the physicians and the examination and treatment by the physiotherapists, whereas 86% were satisfied with information regarding illness and treatment, and 78% were satisfied with the hospital school. Dissatisfaction was positively correlated to mental distress of the mothers at the first stay and their assessment of disease severity at follow-up. The interviewed parents seemed to prefer inpatient care to outpatient care for the initial multiprofessional assessment. This may enhance the initial process of coping with chronic childhood illness and increase compliance with treatment regimens.

Adolescent↗
PubMed1990

Relationship between pain, disease severity and psychosocial function in patients with juvenile chronic arthritis (JCA).

At their first admission to hospital, 57 children (7-16 yrs) with definite or suspected rheumatic disease were interviewed regarding their perceptions of quality and intensity of pain and disease severity. All children reported pain. This was most often described as 'aching' (74%). The assessments of quality and quantity of pain by the children did not differ between diagnostic, age, or gender groups, or between children with or without previous exposure to other persons with rheumatic diseases. Actual pain intensity was correlated with disease severity assessed by the child and the parent. However, pain intensity was not correlated with a global assessment of disease severity by the physician or the child's psychosocial functioning. These findings may indicate a need for more generally accepted criteria of disease severity and pain assessment in patients with JCA.

Adolescent↗
PubMed1989

[Children with phenylketonuria (Fölling's disease). Intellectual functions and psychological adaptation].

Untreated phenylketonuria (PKU) leads to serious mental retardation. The prognosis of PKU has been dramatically improved by neonatal screening and dietary treatment. This study evaluates 25 children, ages 10 to 16 years. Children who receive early and adequate treatment have a mean IQ slightly below normal, and few psychological problems. The disease causes considerable strain on the families, however, because of the very strict diet. Recent evidence suggests that children with PKU can only rarely terminate the diet, although in many cases the diet can be relaxed. It is essential to teach the children the diet and promote autonomy in relation to phenylketonuria.

Adaptation, Psychological↗
PubMed1989

Chronic family difficulties and stressful life events in recent onset juvenile arthritis.

The prevalence of chronic family difficulties, recent stressful life events and socioeconomic status were assessed in 106 families of children with juvenile arthritis, divided in 5 groups according to disease course types. Chronic family difficulties were assessed by semi-structured parent interviews and life events by questionnaires and interviews. Both chronic family difficulties and recent stressful life events appeared in about 2/3 of the families, but a correlation between these were found only for the pauci and polyarticular groups. Chronic family difficulties and recent stressful life events did not differ between groups and were not associated to severity of disease. To what extent stress influences the course of various disease types of juvenile arthritis warrants longitudinal follow-up. For this a life event questionnaire may be valuable.

Adolescent↗
PubMed1988

Agreement between parents and physicians regarding clinical evaluation of patients with juvenile rheumatoid arthritis.

The reliability of disease severity assessed by parents of children with juvenile rheumatoid arthritis was studied by a self-report questionnaire. Parents of 50 patients with a minimum disease duration of 6 months and two physicians participated. Good agreement was achieved between parents and physicians regarding global assessment of disease severity, pain, morning stiffness and activities of daily life. For joint swelling and restriction of movement, the physicians scored higher than did the parents. The findings demonstrate that, with some reservations, a parent questionnaire may be used in follow-up studies on children with juvenile rheumatoid arthritis.

Activities of Daily Living↗
PubMed1985

Family-focused services for children with rare disorders, exemplified by bladder exstrophy. A Norwegian national health program.

Families of children with rare disorders have many experiences in common, as well as special problems related to the specific disorder. This paper presents Frambu Health Centre and the family-focused services offered to patients with bladder exstrophy during the first information and treatment course arranged for this group at the Centre. Main areas of concern as reported by the families are presented.

Adolescent↗
PubMed1984

Evolution of child psychiatric teamwork in a somatic hospital.

This paper outlines the evolution of child psychiatric team work within the context of a general hospital. It focuses especially on the professional challenges and systemic problems arising during this 8 year long process. The question of what happens when two cultures meet in the same arena is discussed, and the process whereby a minority becomes a reality in a well-established majority system is described. Special attention is devoted to those principles appearing to play a major role in the evolutionary process. Prominent among these are: (1) operating within the already established; (2) transforming the 'ugly duckling into a swan', and (3) breaking into the established. The paper concludes with a brief discussion of the problems associated with maintaining enthusiasm in the team, scapegoating, and 'burn out'.

Child↗
PubMed1983

Frambu Health Centre: promoting family focused care for disabled children.

During the last 30 years the Frambu Health Centre has evolved from a summer-camp site for children with poliomyelitis to a modern information and treatment Centre for families with disabled members. Since 1976, fortnightly courses have been held for an increasing number of patients with rare, often congenital and/or hereditary disorders (anorectal anomalies, bladder extrophy, congenital heart defects, cystic fibrosis, severe diabetes, hemophilia, hip joint defects, juvenile rheumatoid arthritis, minimal brain dysfunction, muscular dystrophy, phenylketonuria, psychosis/autism, spina bifida, Huntington's chorea, osteogenesis imperfecta, retitinitis pigmentosa, a. o.). This article describes the facilities, operation, financing and staff at Frambu. An outline of the course programme is given. The contents of two research projects carried out at Frambu are described. When families with rare disorders meet for the first time, new perspectives open up. Exchange of experience and feelings, establishing lay organizations, collating and distributing information to professionals and families are some of the important results of the Frambu courses.

Child↗