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Biomedical subjects

I T Coyne

Publications and source records attributed to I T Coyne.

6 recordsLinked to original sources

Researching children: some methodological and ethical considerations.

This paper examines some of the methodological issues and ethical considerations in researching children. Collecting data from children raises issues of informed consent, establishing rapport, and privacy and confidentiality. Children's consent to research remains a contentious issue that requires further deliberations. Researchers need to be flexible in their research with children and be cognisant of the strategies that can be used to enhance the quality of responses from children.

Behavioral Research↗

Sampling in qualitative research. Purposeful and theoretical sampling; merging or clear boundaries?

Sampling is a very complex issue in qualitative research as there are many variations of qualitative sampling described in the literature and much confusion and overlapping of types of sampling, particularly in the case of purposeful and theoretical sampling. The terms purposeful and theoretical are viewed synonomously and used interchangeably in the literature. Many of the most frequent misinterpretations relate to the disparate meanings and usage of the terminology. It is important that the terminology is examined so that underlying assumptions be made more explicit. Lack of shared meanings and terminology in the nursing discourse creates confusion for the neophyte researcher and increases the production of studies with weak methodologies. This paper analyses critically purposeful and theoretical sampling and offers clarification on the use of theoretical sampling for nursing research. The aim is not to make prescriptive statements on sampling; rather, to enhance understanding of the differences between purposeful and theoretical sampling for nursing research.

Data Collection↗

Chronic illness: the importance of support for families caring for a child with cystic fibrosis.

The effect of chronic life-threatening illness on the family is one of the major problems confronting the health-care system today. Increasingly, parents have the major responsibility for the daily management of their child's condition. There is evidence that many parents lack the professional help and support which could ameliorate some of their problems. It is important that nurses have an understanding of how families cope with the burden of caring for a chronically ill child. Health professionals need clear guidelines on how to support these families in their role as primary care-givers. This paper examines how families of children with cystic fibrosis adapt to the illness in order to provide indicators for nursing practice and to enhance the care and support provided for these families. Effective coping strategies include: assigning meaning to the illness, sharing the burden, denial of diagnosis and incorporating therapy in a schedule.

Adaptation, Psychological↗

Parent participation: a concept analysis.

Parent participation has become a central tenet of paediatric nursing in the United Kingdom. The purpose of this paper is to explore the meaning of parent participation, to clarify the concept to benefit children and their families, and to increase understanding among practitioners. The concept analysis utilized was directed by Rodgers' "evolutionary approach' that views concept development as an ongoing dynamic process. A review of British literature and research studies indicated that parent participation is a complex and multi-dimensional concept. In the evolution of parent participation, the terminology changed from "parental involvement' to "partnership in care', to "care-by-parent' and finally to "family-centred care'. The analysis reveals a lack of coherence in the descriptions, with the terminology changing but the underlying theme remaining parent participation. Parent participation can be conceptualized as a composite of attributes that relate to the family, the nurse and their relationships. Those attributes include: negotiation, control, willingness, competence and autonomy. The concept of family-centred care is gradually assuming importance in the literature. This acknowledgement of the family is long overdue. However the concept remains poorly defined and urgent clarification is needed in this area. To adopt a family-centred care approach, a radical paradigm shift is required.

Clinical Competence↗

Parental participation in care: a critical review of the literature.

The literature reviewed demonstrates that parental participation is a complex issue which has been viewed mainly in a fragmented manner which does not recognize the integrated holistic nature of parent-nurse partnership. There is a dearth of research which focuses upon parents' perspectives and expectations of participation. Furthermore, there is an assumption that parental participation is unproblematic which precludes the identification of social and environmental constraints. The current level of knowledge about nurses' attitudes regarding parental participation is limited. There is an absence of clear indicators of how parental participation may be facilitated and supported in the institutional setting. It is proposed that further research is required which determines the extent of parental participation and which considers the lived experiences of both the parents and nurses of parental participation. Improved care for children and families could result from efforts directed to those endeavours.

Attitude↗

Partnership in care: parents' views of participation in their hospitalized child's care.

This paper describes parents' experiences of participation in their hospitalized child's care on a general surgical paediatric ward. The findings indicate that parents chose to participate because of concern for the child's emotional welfare. Influencing factors included sense of parental duty, past experiences with hospitals, and concern for consistency of care. Parents' readiness to care was encouraged by a supportive family network, support from other parents, familiarity and experience with care. Parents were willing to adapt their parenting skills in order to be able to care for their child at home and were willing to perform more care provided it did not cause pain for the child, had the nurses' approval and increased their confidence and competence as carers. Lack of information, non-negotiation of roles, inadequate facilities, feelings of anxiety and loneliness were the difficulties parents experienced.

Adolescent↗