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Biomedical subjects

J A Kegley

Publications and source records attributed to J A Kegley.

3 recordsLinked to original sources
PubMed2000

Confused legal and medical policy: the misconceptions of genetic screening.

Misconceptions about genetics and genetic decision-making lead to confused moral and legal policy in this area. Clarification is needed and provided about the nature of 'genetic disease' as not just an individual malady and often of multiple causation; about the stigma of guilt and discrimination which attends a label of genetically diseased; about the manner in which genetic decision-making impacts others making decisional privacy and confidentiality more problematic. The possibility of applying a public health model to genetic screening is explored and dismissed. A modified rights model, which gives more attention to familial obligations, is recommended with focus on a subjective substantial disclosure type of informed consent as appropriate to genetic decision-making.

Attitude to Health↗
PubMed1996

Using genetic information: the individual and the community.

Genetic information is both individual and communal (species and family). Responsible use of this information requires exploration of a proper relationship between individual and communal values, rights, needs and decision-making. The individual/community issue is also important for dealing with the differences of emphasis between Western and non-Western cultures in this regard. Non-Western cultures emphasize community but also value the individual, while Western cultures know extreme individualism is counter-productive. This paper will discuss the individual-community relationship as it impacts on various problem areas in the utilization of genetic information, e.g. test results which impact family as well as individuals and which impact institutional projected costs while also making problematic individual access to employment, insurance and health care. The paper will also address the pernicious import of the paradigm of genetic essentialism which exaggerates individual responsibility while neglecting institutional and communal responsibility in genetic matters.

Culture↗