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Biomedical subjects

Katherine Froggatt

Publications and source records attributed to Katherine Froggatt.

10 recordsLinked to original sources

A survey of end-of-life care in care homes: issues of definition and practice.

Care homes throughout the UK provide long-term care for frail older people. Whilst care homes are a home for life, many of the older people living in this setting also die there. There is increased interest in improving the care that older people receive in care homes towards the end of life. One way to achieve this has been through links with specialist palliative care services. The knowledge held in care homes by staff, residents and their family carers has yet to be fully integrated into this work. Consequently, a postal survey of care home managers in one English county was undertaken to examine the characteristics of end-of-life care for older people in these care homes. We sought to establish the managers' understanding of end-of-life care; the extent to which dying and death is present in this setting; the attributes of the resident population living in these care homes; and the availability of resources to support the provision of end-of-life care in this setting. The survey identified that managers held diverse understandings regarding the meaning of end-of-life care. The features of the residents' conditions and the dying that they experience requires a different way to conceptualise end-of-life care. A longer-term perspective is offered here that encompasses the whole period of a person's residence in a care home.

Advance Directives↗

The development of palliative care knowledge in care homes for older people: the place of action research.

Action research in health care is a relatively new research approach, which is adopted when one aim of the research is to bring about change in practice and to research the process of that change. This paper describes the way action research, as a research methodology, can be used to develop palliative care knowledge in generalist care settings. An overview of action research is presented and its relationship to more conventional research paradigms. Two action research projects, undertaken to develop knowledge about end-of-life care for older people in care homes, are used to illustrate the key principles of action research, methods of data collection and data analysis. Finally, the challenges of such, utilising an action research approach and its strengths, are discussed.

Aged↗

Explanatory models of dementia: links to end-of-life care.

We will describe four models used to understand dementia: as a neurological condition; as a neuro-psychiatric condition; as a normal part of ageing; and seeing dementia from a person-centred perspective. Adopting the last of these allows an engagement with palliative care that has the potential to enrich the end-of-life experience of people with dementia, of their families and of the professional care staff who work with them. In this article, it will be argued that our perceptions of what is possible for practising person-centred care at the end of life are constrained by the paradigms we work within. There is developing evidence about how approaches to end-of-life care for people with dementia can move beyond what was, at best, therapeutic pessimism and at worst ill-treatment towards something that optimizes the capacities of those with dementia and mobilizes imaginative care practice.

Aged↗

Developing advanced clinical skills in the management of breathlessness: evaluation of an educational intervention.

The dissemination of knowledge regarding care interventions is often supported through educational initiatives. However, the efficacy of education to make a difference to practice is not always demonstrated. An educational course has been developed and piloted that aimed to educate nurses about skills for the management of breathlessness. The course was developed with, and utilised the expertise of, researchers, practitioners and educators experienced in the management of breathlessness. Twelve clinical nurse specialists, from Scotland and South East England, working in oncology and palliative care, participated in the first course. A longitudinal evaluation was undertaken to consider the impact of the course upon the participants' practice and the care of people who are breathless. Interviews were conducted at two time points and a self-rated familiarity and confidence tool was completed by the participants at three time points. The participants rated themselves as improving their familiarity and confidence with the different aspects of the intervention. Attendance on the course also impacted upon the care of people who were breathless, improving their ability to self-manage their condition. Recommendations for future educational developments of this type are provided.

Attitude of Health Personnel↗

"A small cog in a large wheel": an exploratory study into the experiences of porters, ward clerks and domestics working in an English Cancer Centre.

The effect of working in an oncology environment on nurses has been widely researched but the experiences of non-clinical staff such as ancillary workers in the oncology environment have rarely been examined. This exploratory study had three aims: to explore ancillary workers' understandings of cancer, their experiences of working in a Cancer Centre and their training and support needs. Working within a naturalistic paradigm, a descriptive exploratory design was utilised employing in-depth interviews and drawing on aspects of grounded theory for data analysis. Findings indicated that these ancillary workers lacked an in-depth understanding of cancer. The experience of working in a Cancer Centre appeared to bring both costs and benefits to these ancillary workers. These ancillary workers enjoyed the level of contact they have with patients in a Cancer Centre and subsequently ascribed great value to their jobs. However, they felt that health-care professional colleagues did not always value their contribution to the care of patients. There are implications for nurses and other health-care staff working in oncology alongside these ancillary staff in terms of valuing and supporting them in the work that they do.

Adaptation, Psychological↗

The nursing contribution to qualitative research in palliative care 1990-1999: a critical evaluation.

BACKGROUND: Qualitative research plays an important part in providing evidence for practice in nursing, and is gaining greater acceptance within medicine. However, questions remain about what criteria are most appropriate for evaluating qualitative research. To date, little systematic evaluation of qualitative research in palliative care has been conducted. AIMS: This paper is based on a larger study in which we conducted a critical review of qualitative research in palliative care from nursing, medicine, specialist palliative care, sociology, death studies, medical anthropology, and gerontology journals published between 1990 and 1999. The aim of this paper is to present an account of the strengths and weaknesses of qualitative palliative care research in nursing, using data from this review. METHODS: In the larger study, 138 papers from 50 journals were reviewed critically using a tool developed to assess both content and quality; in one part of this tool reviewers recorded open-ended comments on the strengths and weaknesses of each paper. In this paper, we present a thematic analysis of reviewers' comments on a subgroup of 67 nursing papers from the main review, together with an analysis of comments on 29 papers from a comparison group of death studies, medical anthropology, and sociology journals. Patterns of positive and negative evaluation are identified and used to generate an account of strengths and weaknesses in qualitative palliative care research in nursing. FINDINGS: Over 40% of the subgroup of papers from nursing journals received positive comments on topic and quality of writing; around 30% received positive comments on contribution to understanding, practical value, and conceptual or theoretical issues. Less than 20% received positive comments on other critical dimensions. Over 40% of nursing papers received negative comments on the link between data, analysis, and findings, other aspects of method and theoretical and conceptual issues. A higher proportion of papers in the comparison group received positive comments on conceptual and theoretical issues and contribution to understanding. CONCLUSIONS: Nearly half the nursing papers reviewed were judged to be well written or to have a well-chosen topic. However, more than 40% of papers drew negative comments about key methods-related issues. Arguably therefore efforts to improve the quality of research evidence should focus on this area.

Data Collection↗

Loss of weight and loss of appetite in advanced cancer: a problem for the patient, the carer, or the health professional?

This paper aims to examine the loss of weight and loss of appetite as 'problems' experienced by patients with advanced cancer and those that care for them. It reports the results of a systematic search of the literature and presents the findings as a narrative review. Research to date has focused upon charting the prevalence and incidence of these symptoms, but little empirical work has been conducted to investigate how patients and carers experience these problems. There is some evidence to suggest that anorexia may be more distressing for those caring for the patient than the person suffering from the symptom itself. Understanding the reason for this anguish requires an appreciation of the meaning of food refusal and constitutes the first step towards informing the development of effective interventions. Such exploratory work is mandatory if health professionals wish to move beyond speculation and deliver interventions that provide meaningful benefits for the cancer patient and their family.

Anxiety↗