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Biomedical subjects

Linda L Pierce

Publications and source records attributed to Linda L Pierce.

15 recordsLinked to original sources

Self-care needs of caregivers dealing with stroke.

Education is essential for successful transition from hospital to home, for both persons with stroke and their caregivers. Guided by Orem's self-care deficit nursing theory, this article identifies self-care needs about which physical and occupational therapists believe caregivers most frequently want information. The therapists (N=113), who responded to a mailed survey, were mostly White women prepared at the graduate educational level in the eastern United States. Descriptive statistics revealed that demonstrating safe transfer techniques was the most frequently chosen information need (82%) identified by physical and occupational therapists surveyed.

Adult↗

Caregivers dealing with stroke pull together and feel connected.

Changes that can accompany stroke may create considerable stress for individuals caring for the affected person. This study explored the coping process for nine rural-dwelling caregivers of persons with stroke and the responses of these caregivers to a Web-based support program. The qualitative data management program QSR N 5 was used to analyze quotes from telephone interviews and computer entries. Stories of how caregivers came together and supported one another emerged from the data collected as part of a larger study that examined the experience of caring. Friedemann's framework of systemic organization guided data analysis and interpretation. Actions demonstrated by the caregivers illustrated the process of crisis resolution through family togetherness in which nurses were included. The findings of this study aided in understanding this process and gave direction for nurses working with such clients.

Aged↗

What are male caregivers talking about?

PURPOSE: Using secondary analysis and Friedemann's framework of systemic organization as a guide, the purpose of this article is to examine the experience of a subsample of five men caring for women with stroke who participated for 3 months in a Web-based support group. METHOD: Analysis of qualitative data (N = 224 entries) obtained from interview questions and discussion amongst the caregivers followed established protocols. RESULTS: Results revealed that these men were dealing with role changes and women's depression and irritability. The stroke event also fostered closer family ties and "being there" for one another. CONCLUSION: These findings begin to explore the complex experience of men caring for women with stroke.

Aged↗

Analysis of the concept of aloneness. As applied to older women being treated for depression.

The concept of aloneness is examined in very few published materials. This article analyzes the concept of aloneness through the experiences of eight older women being treated for depression. When the women were depressed, they viewed aloneness as being vulnerable, fearful, helpless, and as having a loss of control of self and identity confusion. As the women progressed in their recovery from depression, they viewed aloneness as being self-reliant, hopeful, and resourceful and as having self-determination and self-reflection. Establishing and clarifying the meaning of aloneness for older women during their depression and during their recovery from depression is basic to using the concept of aloneness in nursing theory development and in gerontological nursing practice, education, and research.

Adaptation, Psychological↗

Building a web of support for caregivers of persons with stroke.

Stroke is the leading cause of disability in the United States, with a cost of 30 billion US dollars annually. Most persons with stroke return home after initial treatment and are cared for by family members. Few researchers, however, have focused on Web-based interventions to strengthen caregivers'efforts. This article describes the development of Caring~Web, an online, in-home intervention of support for caregivers of persons with stroke. Through specifically designed Web pages, caregivers are able to ask questions of a nurse specialist and rehabilitation team, discuss issues with other caregivers and the nurse via email, and obtain educational information on stroke.

Journal Article↗

www. Information resources for stroke.

The World Wide Web (www), or the Internet, is an essential educational tool for stroke survivors, caregivers and family members, rehabilitation nurses, and other healthcare providers. An immense amount of information about stroke is available on the Web, from its prevention to dealing with its effects. Anyone can publish anything about stroke on the Web. This article presents criteria for evaluating Internet resources and identifies numerous reliable Web resources related to stroke, along with suggestions about how the information from these Web sites can be helpful to both public and professional consumers.

Caregivers↗

Families dealing with stroke desire information about self-care needs.

As hospital lengths of stay have decreased, healthcare professionals have less opportunity to fully educate stroke patients and their families regarding self-care before the patient is discharged home. Consequently, families often need continuing education provided to them in outpatient settings. The purpose of this study was to identify the self-care needs about which people dealing with stroke most frequently want information. Twenty-four people responded to a survey that listed 48 self-care needs structured within Orem's universal self-care requisites (USCRs). The top five self-care needs about which information was desired were: preventing falls; maintaining adequate nutrition; staying active; managing stress; and dealing with emotional and mood changes. These needs correlated with several of Orem's USCRs. By keeping these needs in mind, healthcare professionals can develop better educational materials and provide more pertinent information to stroke patients and their families during homecare or office visits, support group meetings, or via the Internet.

Aged↗

Internet-based support for rural caregivers of persons with stroke shows promise.

The purpose of this pilot study was to test the feasibility of providing Internet-based education and support intervention to caregivers living in rural settings, including caregivers' satisfaction with the intervention. A secondary aim was to explore their experience of caring. Nine adult caregivers of persons with stroke were enrolled in this descriptive study from rehabilitation centers in northwestern Ohio and southeastern Michigan. They were given access to the intervention, Caring-Web, for three months. Data were collected from participants' bimonthly interviews, as well as e-mail communications. Procedures were tested and found valid, and caregivers were willing and able to use Caring-Web. Using Friedemann's framework of systemic organization, a coding system was developed for analyzing the qualitative data on the experience of caring. Five main themes emerged from these data. These findings help expand knowledge about caregivers dealing with stroke.

Adaptation, Psychological↗

Rehabilitation nurses working as collaborative research teams.

Rehabilitation nurses conducting research would benefit from working within collaborative research teams. The development of intradisciplinary (one discipline) and interdisciplinary (many disciplines) research teams is described in this article. A research team is defined as more than a single person in the role of the researcher while studying the same topic of interest in a joint or collaborative manner. Strategies to ensure successful research team collaboration are described. Exemplars of developing and maintaining a team at one site, which consists of members of the same discipline, as well as another team that consists of multiple professional disciplines, are shared. Collaboration among research team members in practice, administration, and education settings transcends degrees and roles to make substantial contributions to professional practice.

Attitude of Health Personnel↗

Evaluation of the research agenda for rehabilitation nursing.

From 1993 to 1995, under the direction of the board of directors of the Association of Rehabilitation Nurses (ARN), the Rehabilitation Nursing Foundation (RNF) created a research agenda for the field, which was published in 1996. The goal of the agenda was to identify a broad range of issues in rehabilitation practice that could be examined to advance the scientific knowledge base. Ten years later, the board of directors of ARN directed RNF to evaluate and update the agenda. A committee of three ARN members was formed to undertake this task. This article reports the committee's evaluation of the 1996 Rehabilitation Nursing Research Agenda. A separate article reports on the process of revising the agenda.

Activities of Daily Living↗

Problems of new caregivers of persons with stroke.

Nine adult caregivers new to the role of caring for persons with stroke, upon discharge from rehabilitation centers in Ohio and Michigan and living farther away from formalized support services than urban caregivers, were enrolled for 3 months in a Web-based intervention project that examined the feasibility of the intervention and described the experience of caring. This article is an analysis of qualitative data from the intervention project that used a rigorous protocol to examine 68 perceived problems reported in caring. Problem themes in order of most to least frequent were 1) having independence issues, 2) dealing with emotions, 3) living with physical limitations, 4) managing co-morbid conditions, 5) balancing it all, 6) participating in physical therapy, and 7) having sleeping issues. These problems were related to four of Orem's universal self-care requisites. Although the total number of problems decreased over time, "balancing it all" was the only problem that increased. This may be due to the resumption of the caregivers' regular activities or increased caregiving responsibilities. Nurses could use these findings to identify and focus on self-care needs of caregivers and to implement problem-resolution strategies.

Activities of Daily Living↗

Revision of the Rehabilitation Nursing Research Agenda.

In 2005, the board of directors of the Association of Rehabilitation Nurses (ARN) directed the Rehabilitation Nursing Foundation (RNF) to evaluate and revise the Rehabilitation Nursing Research Agenda. Following a review of the processes used by other nursing organizations to evaluate their research agendas, RNF first evaluated the effectiveness of the agenda, and then RNF embarked on a process to update and revise the agenda. The process included generating new and revised statements of research priorities based on the evaluation process, followed by a survey of members of ARN to rate the relevance of each statement to the profession. The results are a new Rehabilitation Nursing Research Agenda consisting of 19 statements of research priorities grouped into four categories. This new agenda has the potential to drive rehabilitation nursing research for the next 10 years.

Humans↗

Perceived experience of caring for a wife with stroke.

This article presents a 55-year-old husband's perceived experience of caring for his wife with stroke, as learned from his 1 year of participation in a Web-based support intervention study. In a secondary analysis of data, his narrative entries (n = 213) were coded and drawn to Friedemann's framework of systemic organization. The themes that emerged from these data were that of the caregiver providing support, offering solutions, and taking control. Friedemann's system maintenance process dimension was the area that captured most of his experience, which indicated that this caregiver spent a significant amount of his energy in creating control and stability within his environment to maintain congruence or balance in his life. These findings can be used to identify and design interventions, which for male spousal caregivers, affect the quality of their lives.

Adaptation, Psychological↗

In-home online support for caregivers of survivors of stroke: a feasibility study.

The primary aim of this feasibility study was to determine if caregivers (n = 5) were willing and able to use Caring-Web, a Web-based intervention for support, from their home Internet connection for 3 months. The caregivers' perceived health and satisfaction with caring, as well as the care recipients' use of healthcare services, were recorded. The experience of caring (problems and successes) was examined. Data were collected via weekly online surveys and e-mail discussions. Descriptive analyses revealed that the 3 caregivers who completed the study were satisfied with Caring-Web. Caregivers rated their health as average to excellent and their satisfaction with caring as good. Care recipients averaged 6 calls/visits to a medical office with one emergency room visit and subsequent hospitalization. Major problems for the caregivers included dealing with medical conditions about which they lacked knowledge. Content analysis of the e-mail discussions revealed that subjects sought information about medical conditions related to caring for the survivor of the stroke. Major successes for the caregivers involved communicating effectively with the care recipient and returning to everyday life with family and friends.

Adaptation, Psychological↗