PubMed HealthSearch

Biomedical subjects

M P Janicki

Publications and source records attributed to M P Janicki.

At least 19 recordsLinked to original sources

Practice guidelines for the clinical assessment and care management of Alzheimer's disease and other dementias among adults with intellectual disability. AAMR-IASSID Workgroup on Practice Guidelines for Care Management of Alzheimer's Disease among Adults with Intellectual Disability.

The AAMR/IASSID practice guidelines, developed by an international workgroup, provide guidance for stage-related care management of Alzheimer's disease, and suggestions for the training and education of carers, peers, clinicians and programme staff. The guidelines suggest a three-step intervention activity process, that includes: (1) recognizing changes; (2) conducting assessments and evaluations; and (3) instituting medical and care management. They also provide guidance for public policies that reflect a commitment for aggressive care of people with Alzheimers's disease and intellectual disability, and avoidance of institutionalization solely because of a diagnosis of dementia.

Activities of Daily Living

Generational trends in sensory, physical, and behavioral abilities among older mentally retarded persons.

An extensive client registry data base was used to examine whether there were identifiable patterns in prevalence of chronic disease conditions, in decline of sensory capacities, and in decline of behavioral abilities among 10,532 elderly mentally retarded persons born between 1890 and 1939. Data indicated identifiable patterns in the prevalence of chronic disease conditions (cardiovascular, digestive, musculoskeletal, and respiratory systems) and the decline of behavioral and physical abilities and sensory capacities with increasing age. Functional skill losses were most prominent in mobility and fundamental activities of daily-living skill areas. Some behavioral losses were noted to occur earlier than would be expected in the general population; however, as with nonretarded persons, decline was highly variable and linked to the aging process experienced by each older retarded person. Implications of the findings were discussed.

Activities of Daily Living

Clinical need variations of disabled persons residing in group homes.

Group home research has generally entailed comparison of these settings and their residents to institutions and their residents. Group home residents have frequently been treated as a homogeneous cohort of individuals. When group home development began, initial residents--usually individuals recently deinstitutionalized--were probably relatively homogeneous in regard to functional abilities and service needs, and generally similar to other disabled persons living in the community. Today, the residents of one group home may bear little resemblance to those of another. This report presents information about the types of group homes within a state system based upon the characteristics and service needs of 1,050 persons in 118 group homes and questions the role of community mental health centers in addressing certain service needs of group home residents.

Analysis of Variance

Characteristics of New York's community residences for developmentally disabled persons.

A statewide survey of New York's community residences for developmentally disabled persons was conducted in which program auspice, history and affiliation, physical structure, community relations, residence staff, and occupant characteristics were examined. The results revealed a diverse system, with certain characteristics similar to those reported in previous national community residence surveys. Principal differences between the statewide data and the national surveys related to residence auspice, size, and staff demographics. These differences are explained as a function of both survey sampling strategies and program differences. Implications of the data are discussed.

Adolescent

Variations in characteristics and service needs of persons with autism.

Information concerning socio-demographics, disability characteristics, and services received and needed became available on approximately 900 autistic children and adults as a result of a statewide needs assessment and case-finding collection project conducted in New York. Analyses of the results confirmed other findings as to the predominance of males to females and a high concomitant occurrence of mental retardation. Results also showed a population having few problems with mobility, hearing or vision, but moderate deficits in most skills related to activities of daily living, and significant deficits in communication and basic independent functioning skills. Differences were observed between institutionalized and noninstitutionalized autistic persons in terms of level of retardation, functional skills, age, and use of medications. Implications of the findings are drawn for clinicians, administrators, and public policy makers.

Activities of Daily Living

Self-preservation ability and residential fire emergencies.

Perske's concept of risk from the perspective of fire safety was examined for approximately 46,000 developmentally disabled persons. The National Bureau of Standards measurement of self-preservation ability was used to define individual risk, resulting in the Evacuation Assistance Score. Environmental risk was measured by grouping residences according to fire safety standards described in the National Fire Protection Association's Life Safety Code. Results indicated that: (a) the Evacuation Assistance Score is best thought of as a single variable that measures any risk that might impede a resident's safe evacuation in a fire emergency, (b) the majority of the developmentally disabled individuals receiving services in New York were totally capable of self-preservation, (c) resident demographic characteristics were not strong predictors of Evacuation Assistance Scores, and (d) the match between individual and physical environment risk vulnerability was not strong.

Adolescent

Community acceptance of residential programs for developmentally disabled persons.

Deinstitutionalization and the ensuing establishment of residence programs for developmentally disabled persons has stimulated both community support and opposition. The present study considers changes in the levels of community acceptance after residence programs are established, sources of program support and opposition, and strategies used to overcome community opposition. The data are based upon responses to a survey of all community residence programs in New York (n = 459). The findings indicate marked and consistent shifts toward the acceptance of established residence programs.

Adult

The character of developmental disabilities in New York State: preliminary observations.

Preliminary information about the population characteristics of developmentally disabled persons in the State of New York is presented. The information was derived through a "rate-under-treatment" survey approach using the Developmental Disabilities Information Survey (DDIS). The results are based upon statewide data, derived from 36,334 cases, composed of 34% children and 66% adults. The findings revealed that the subject populations socio-demographics were consistent with those of the general population in the areas of age and ethnic distribution, but not in gender ratio. Developmentally disabled persons were located primarily in community settings; only 24% of the children and 45% of the adults were found to reside within various institutional settings. Most were mentally retarded, however more children than adults were identified as having a secondary condition such as autism, cerebral palsy, epilepsy or some other neurological impairment. About half were reported to also have some type of physical disability. The majority were free of ambulation difficulties. Only half had basic self-care skills, and a third were facile in communication skills. Learning capabilities were found to be affected by maturation and experience. It was suggested that a "rate-under-treatment" approach is effective, within certain constraints, in capturing reliable information about a population that could be used for planning and developing public policies.

Activities of Daily Living