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Marcel de Wilde

Publications and source records attributed to Marcel de Wilde.

2 recordsLinked to original sources

Generic computer-based questionnaires: an extension to OpenSDE.

Development of computer-based questionnaires (CQs) has been an ongoing challenge since the 1960s. The added value of such CQs for data collection and the acceptance by patients have been well documented. Many questionnaire projects, however, were temporary due to dedicated software, limited funding, and lack of integration with medical information systems. Also, the use of a fixed dedicated database makes integration cumbersome, as change in content requires change to the data model. Since much of the functional requirement of CQs is not dependent on content, the challenge is to both separate functionality and database structure from content. Following these principles, we extended OpenSDE, a generic application for structured data entry, with a tool to construct and run CQs as an alternative way of data input. We propose the combination of a generic building tool and a content-independent data model as an effective strategy to tackle the above-mentioned problems in CQ development.

Data Collection↗

OpenSDE: Row modeling applied to generic structured data entry.

Clinicians generally record medical narrative data, such as current complaints, physical examination, and progress notes, as free text in paper-based medical records. The medical narrative involves heterogeneous and detailed data that include the description of (multiple) occurrences of medical findings or symptoms that may progress over time. Structured, electronic recording of narrative data would facilitate the use of these data for research. The authors' OpenSDE application supports clinicians with the structured recording of narrative data in both research and care settings. Data entry is enabled using forms that are generated using domain-specific trees of medical concepts. For data storage, the authors have expanded the traditional row modeling methodology with additional columns that allow structured representation of medical narratives including descriptions of findings, multiple occurrences of findings, and the progression of findings over time.

Information Storage and Retrieval↗