Social class and medical decisionmaking: a neglected topic in bioethics.
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Biomedical subjects
Publications and source records attributed to N G Schiller.
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AIDS researchers and policy makers have often employed the concept of 'culture' to characterize 'high risk groups' and explain why members of these groups continue to practice 'risky behavior.' We argue that the widespread interest in ethnography tends to reflect a usage of the concept of culture that distances and subordinates. People with AIDS are portrayed as either minority street people abandoned by friends and family or as white gay men who live within a gay community, and in either case as socially deviant. This construction of HIV disease has facilitated distancing and denial of personal risk by persons outside the 'high risk groups,' impeding prevention efforts. Perceptions of subcultures of risk groups are contrasted with data on a random sample of persons with AIDS in New Jersey.
In health services research about the utilization by and financing of health services for people with AIDS, women kin as caregivers virtually disappear and the sacrifices made by women kin become socially invisible. Any role that women play is subsumed under the rubric "community care." The health services perspective is contrasted with the lived realities of caregiving by women kin as documented in data from a "needs assessment" of people with AIDS which the New Jersey Department of Health commissioned and then disregarded. The disregarding of women's caregiving is part of larger hegemonic processes that maintain concealed structures of domination.
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Explore the source record for details and available documents.