Palliative care services: views of terminally ill patients.
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Biomedical subjects
Publications and source records attributed to N V Raynes.
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A method of involving users and providers in residential care for older people was used to develop standards of care and outcome indicators. The standards were prioritized using the paired comparison technique. Describes the method and the outcomes of the processes. These include 28 standards relating to the quality of care developed by providers and service users.
This paper examines the quality of care in four types of residence for mentally handicapped adults in Britain. Data were gathered from 175 residents of 150 living units--mental handicap hospital wards, voluntary and private homes, local authority hostels and parental homes. Differences were apparent between the types of residence in terms of both residents' characteristics and care practices and routines. The findings indicate that some of the differences in care practices are not associated with differences in the residents' functioning. Additionally, alternatives to hospital care for mentally handicapped people are not providing demonstrably improved quality of care in several aspects of residential practice. A discussion of those aspects of care calling for more improvement is presented.
Least restrictive environments are assumed to be ones in which high-quality care is to be found. The quality of care provided for four adult males living in hospitals and hostels is described. The data indicate that there are not only differences in the quality of care provided between hospitals and hostels, but variation within both types of setting. Attention is drawn particularly to the differences in care provided within the hostel settings. The use of simple monitoring devices to assist in better practices is recommended.
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A record of one in three consultations occurring in 10 general practice surgeries in two morning and two evening sessions was made by an observer. The results showed marked variation in the frequency of the general practitioners' use of different means of eliciting information about the patient and in forms of management. These activities were further analysed within subgroups of the patients' symptoms and some activities were shown to be influenced by patients' presenting symptoms whilst others were not. I discuss how much general practitioners' behaviour is responsive to patients' presenting symptoms and also some of the practical implications of these findings for general practice.
Ten general practitioners in a study of general practice consultations were shown to differ significantly in the time they spent in their consultations. Patient demographic characteristics contributed little to differences in consultation time. Consultations in which (a) there was a diagnosis of psychological disorder, (b) the practitioner and the patients focused attention on psychosocial matters, and (c) psychotropic drugs were prescribed, were found to be associated with increased length of consultation time.
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Using two measures of the quality of care in institutional settings, we found much variance in the care provided within three institutional settings. Factors that might account for this variance were examined. Aides' perception of their involvement in certain areas of decision-making was shown to be of major importance in accounting for the variance in quality of care.
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The importance of information for evaluating the health status, needs, and progress of the mentally and physically handicapped has been consistently argued. However, the varied nature of handicapping conditions, often aggravated by the presence of multiple conditions, the extended periods of treatment, the diverse professional groups involved, and the multiple uses and users of data pose difficult problems for uniform data collection. For these heterogenously disabled populations whose conditions are generally not fully remediable, it is especially important to have 1) data on functional ability, both current and potential, and 2) information characterizing the nature of the care environment in terms of its social and educational stimulus, barriers to functional development, and availability of supportive services in the community. In both areas, considerable work has been done to develop measurement instruments for the institutional and noninstitutional handicapped.
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