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Biomedical subjects

P Lyne

Publications and source records attributed to P Lyne.

16 recordsLinked to original sources

Childhood diabetes: parents' experience of home management and the first year following diagnosis.

AIMS: To explore parents' experience of having a child diagnosed with Type 1 diabetes, managed at home, and their first year following diagnosis. METHODS: A qualitative, longitudinal study based on 40 in-depth interviews with parents of 20 children with newly diagnosed Type 1 diabetes managed at home from diagnosis in South Wales. RESULTS: Many parents were alarmed by the speed of diagnosis following the gradual progress of their child's symptoms. The provision of timely, adequate information was important to all parents. Although five parents had initial concerns about going home, all parents were subsequently pleased their children had not been hospitalized. Home management enabled parents to integrate diabetes management into the family's normal lifestyle from diagnosis. Professional support, particularly accessible telephone advice, was valued by and reassured parents. Parents experienced a loss of spontaneity, a continuing fear of hypoglycaemia and did not want their child to feel different to other children. Acutely aware of the seriousness of diabetes, they did their utmost to achieve optimal glycaemic control but felt that diabetes could not 'dominate' if they were to lead a 'normal' life. CONCLUSIONS: The experience of parents in this study suggests that parents of children with newly diagnosed diabetes are able to cope successfully when given the opportunity to start treatment at home. Therefore, if children with diabetes are clinically well at diagnosis, this study supports home management as a system of care from the parents' point of view. These findings are relevant to clinicians, policy makers and health service managers involved in planning and providing paediatric diabetes care.

Adolescent↗

Chronic sorrow in parents of children with newly diagnosed diabetes: a review of the literature and discussion of the implications for nursing practice.

Childhood (type 1) diabetes is a chronic, life-long condition, the diagnosis of which may represent multiple losses for parents. Their emotional responses to the diagnosis have been likened to the grief reactions experienced as a result of bereavement through death. The practice of health professionals who work with these families is informed by two contrasting theoretical views of the progress of grief reactions; the time bound and the chronic sorrow perspectives. This paper provides a critical appraisal of the evidence concerning grief reactions in parents of children with diabetes and evaluates the extent to which this supports the expectations of the time bound theorists, that parents normally reach an end stage of the grieving process, or those of the proponents of chronic sorrow, who anticipate lifelong, recurring sadness. It concludes with a discussion of the implications of the debate for nursing practice.

Adaptation, Psychological↗

Renal transplantation in a patient with methylmalonic acidaemia.

Renal insufficiency is frequently reported in mutase-deficient methylmalonic acidaemia. We present a case report of a patient with mut- methylmalonic acidaemia who developed chronic tubulointerstitial nephropathy during adolescence. At 24 years of age, she developed end-stage renal failure and underwent renal transplantation. Both plasma and urine methylmalonic acid levels decreased significantly with improved renal function following transplantation. Complications included cyclosporin toxicity and development of diabetes. Renal, metabolic, and clinical status remained improved at 3 years after the kidney transplant.

Adult↗

Validity in qualitative health care research: an exploration of the impact of individual researcher perspectives within collaborative enquiry.

The authors of the present paper are a team of workers undertaking an empirical study of the definitions of quality in nursing used by National Health Service managers and others. At an early stage in that work, their concern to enhance the validity of the findings led them to participate in the exercise reported in this paper. Their purpose was to answer the question 'what is the effect of the researcher's perspective on the interpretation of the analysis of interview data?'. This paper reports an exploration of the problem of validity in qualitative enquiry and a review of published strategies for analysing interview data. It then outlines the strategy chosen by the team-the use of a framework which addresses validity in terms of adequacy of description. The experience of using this framework is described and some empirical evidence of the way that individual perspectives influence the analysis is presented. This gives rise to four principles which are considered to be of value in team working in qualitative enquiry, whether the team is a large one or consists of research student and supervisor alone. The paper concludes with practical suggestions as to how these principles may be built in to the project planning cycle.

Communication↗

Patient-centred evaluation and rehabilitative care.

The evaluation of health care outcomes is becoming increasingly important in today's health service. The wide range of measures used to evaluate these outcomes often makes clinical audit difficult and the comparison of research papers almost impossible. In this paper we will discuss some of the issues surrounding outcome measurement in rehabilitative care, examine one of the most commonly used outcome measures from this area (the Barthel Index) and consider Goal Attainment Scaling, a technique which offers both clinicians and researchers the opportunity to evaluate health care outcomes on the basis of patient-centred practice. We have identified certain methodological problems that need to be addressed if Goal Attainment Scaling is to become an acceptable measure in the area of physical rehabilitative care.

Activities of Daily Living↗

Research-based practice: some problems illustrated by the discussion of evidence concerning the use of a pressure-relieving device in nursing and midwifery.

This paper investigates the evidence presented in the literature concerning the use of ring cushions in nursing and midwifery practice, as a case study of the relationship between research-based knowledge and practice. It explains the origins of the claims that these aids cause pressure sores, urinary tract infection and expose postpartum mothers to the risk of thrombosis. It demonstrates that the empirical evidence on which these claims are based is very slight and that re-interpretation of the evidence by successive authors has raised its status considerably. Practical steps to avoid this type of occurrence are suggested.

Clinical Nursing Research↗

A normal lifestyle: parental stress and coping in childhood diabetes.

This article forms part of an extensive literature review informing a study exploring the parental experience of home management of children with newly diagnosed diabetes. As a diagnosis of childhood diabetes may represent a major stressor event for parents, selected theories and models of stress and coping are discussed. These suggest that, influenced by a variety of interpersonal and environmental factors, parents may approach the process of coping in different ways. Coping strategies employed by parents of children with diabetes elicited from the literature are categorized according to a psychological theory of stress and coping. Normalization, a coping strategy used by parents of chronically ill children, is discussed in relation to childhood diabetes. To conclude, implications for nursing practice are outlined and suggestions made about how parents may be assisted to cope with the demands of having a child with diabetes.

Adaptation, Psychological↗

Your child has diabetes: hospital or home at diagnosis?

Historically, children with diabetes have been hospitalized at diagnosis, but increasingly, newly diagnosed children are being cared for entirely at home. The management of this chronic condition usually involves the whole family, with children often taking responsibility for much of their own care. However, this article focuses specifically on the needs of parents, forming part of an extensive literature review informing a study exploring parents' experience of home management and coping over the first year with childhood diabetes. A search of the literature revealed a scarcity of evidence overall about hospitalization or home management from a parental perspective, and none in relation to childhood diabetes. This article provides a critical appraisal of the appropriateness of these two approaches to care for parents of children with newly diagnosed diabetes. First, a brief introduction to home management in childhood diabetes is followed by an examination of the small amount of research found about home management and hospitalization from the point of view of parents. Then, the possible benefits and disadvantages of both approaches are discussed and subsequently scrutinized in the context of childhood diabetes. Finally, preliminary conclusions are drawn and suggestions made for the direction of future research in this area.

Adult↗

The right questions about nursing care.

Evaluation of care has always been a problematic area for many professional disciplines, including nursing. Studies have consistently failed to provide concrete evidence of improved practice. Patricia Lyne argues that attention must be concentrated on evidence of progress in individual patients rather than in large comparative studies.

Humans↗