Revolution looks at clinical practice: burnout or exploitation.
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Biomedical subjects
Publications and source records attributed to P Schlomann.
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The issues surrounding aggressive treatment of at-risk infants have tended to be reduced to superficial dichotomies such as parent versus infant rights and sanctity versus quality of life. Public debate has typically been restricted to isolated aspects of extreme individual cases. By routinizing decisions and minimizing use of research protocols in the care of VLBW infants, health care professionals have made issues related to aggressive care appear less consequential than they are. This process, combined with limited access by significant sectors of society, has severely curtailed effective debate about a highly complex and important problem. Nurses have a responsibility to help establish an arena for this debate--in both individual cases and the formulation of public policy--and to facilitate participation by those whose input has been restricted.
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With the advent of many new technologies, decision-making about the care of critically ill neonates represents one of the primary ethical arenas in health care today. Professionals and parents are forced to make decisions about when, how, and if critically ill neonates die. This qualitative study, based on interviews with a very small, convenience sample of parents, begins to explore the parental perspective about ethical decision-making regarding critically ill neonates by describing their personal experiences as they faced the reality or possibility of their babies' deaths.
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