Children and puberty.
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Biomedical subjects
Publications and source records attributed to R B Monsen.
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Nurses who work with families and communities have an obligation to serve as advocates for ethical practices in health care that rapidly encompasses genetic technologies. Commercialization of gene-based diagnostics and therapies by profit-seeking industrial biotech firms is likely to present new dilemmas for professionals and populations seeking control over inherited risks for illness for themselves and their children. This agenda presents the profession with challenges that infuse nursing practice, education, and research, as well as citizenship, on an earth with fading geopolitical boundaries and evolving cultural transitions.
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Genetic information and technologies are increasingly important in health care, not only in technologically advanced countries, but world-wide. Several global factors promise to increase future demand for morally conscious genetic health services and research. Although they are the largest professional group delivering health care world-wide, nurses have not taken the lead in meeting this challenge. Insights from feminist analysis help to illuminate some of the social institutions and cultural obstacles that have impeded the integration of genetics technology into the discipline of nursing. An alternative model is suggested--the transdisciplinary model--which was developed initially by a nurse and introduced in the 1970s into the delivery of health care and social services for children with developmental disabilities. This holistic model enables all health care professionals to have an equal voice in determining how genetic health care will be globalized.
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This study describes the lived experience of mothers of children with spina bifida. Thirteen mothers of children between the ages of 12 and 18 years participated in at-home, audiotaped interviews. Each participant was asked to describe, through narrative, what it is like to be the mother of a child with spina bifida. The researcher used Heideggerian hermeneutical methodology to transcribe and analyze interview texts. Examination of the data revealed the constitutive pattern living worried and its two relational themes: treating them like other children and staying in the struggle. Nurses can use narratives to create supportive relationships with mothers of children with disabilities and to pursue research that extends the understanding of these women and their struggles.
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