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Biomedical subjects

Rob Newell

Publications and source records attributed to Rob Newell.

6 recordsLinked to original sources

Concordance with community mental health appointments: service users' reasons for discontinuation.

BACKGROUND: Quality issues are being given renewed emphasis through clinical governance and a drive to ensure service users' views underpin health service development. AIMS: To establish service users' reasons for discontinuation of community based mental health appointments in one National Health Service Trust. METHOD: A two-phase survey of all non-completers over a year. Phase one using a structured postal questionnaire. Phase two using structured interviews with respondents to phase one by post, telephone and face to face. RESULTS: A total of 243 discharges because of non-completion were identified by local services over the 12 months of the study and followed up by initial questionnaire. This represents 8.19% of all discharges (2967) within the same period. Forty-four users were engaged and followed up within phase two of the survey. Data were subject to both quantitative and qualitative analysis. CONCLUSIONS: Analysis of responses suggests that the main reasons for non-completion are because of dissatisfaction although the reasons are varied and the interplay between variables is complex. Whilst this user group are not apparently suffering from 'severe mental illness', there is clear, expressed need for a service. RELEVANCE TO CLINICAL PRACTICE: Whoever provides such a service should be responsive to expressed need and a non-medical approach seems to be favoured. If these needs are appropriately met then users are more likely to be engaged and satisfaction is likely to be improved. Although this in itself does not necessarily mean improved clinical outcomes, users are more likely to stay in touch until an agreed discharge. Practical problems of applied health service research are discussed and recommendations are made for a review of referral systems, service delivery and organization with suggestions for further research.

Adult↗

The information needs of head and neck cancer patients prior to surgery.

OBJECTIVE: To describe the common themes in the experiences and expressed information needs of patients undergoing head and neck surgery. Summary background data : Patients who suffer head and neck cancers and undergo surgery often report considerable psychological distress and impaired social functioning. To optimise survival, the decision about what treatment option to follow is often made quickly, with little support in terms of counselling or the provision of information. There is inadequate previous work exploring the content and delivery of information required by patients at this time. PATIENTS AND METHODS: Participants included patients who had undergone surgery for head or neck cancer (n=29) and their immediate relatives who were present at the initial consultation with the surgeon (n=13). Patients were recruited from out-patient departments in two hospitals in the north of England. All interviews were conducted in participants' homes and were guided by a semistructured interview schedule devised both from literature and a pilot study. RESULTS: Whilst most participants felt well informed about the surgical procedure they were undergoing, many reported feeling unprepared for the long-term lifestyle changes that occurred. Information, support and advice throughout the 3-6 months postoperative period was reported to be inadequate. The majority of participants did not ask any questions and did not perceive there was a choice regarding treatment. Individuals who wanted to take an active role in decision-making reported difficulties accessing information to enable them to do so. CONCLUSION: The findings of this study emphasise the need for individualised information provision defined not exclusively by the surgical procedure.

Aged↗

Terminal illness and body image.

Mark Wareing's case study of a patient with penile cancer (p34) offers an insight into issues of disturbed body image at the end of life. This paper explores some of the patient's experiences in terms of the confrontation and avoidance of difficulties after disfigurement. The effect of the nurse's own anxieties when reflecting on the patient's experiences is also discussed.

Adaptation, Psychological↗

Living with disfigurement.

Body-image disturbance, as a consequence of disfigurement, affects a large number of people in the UK, yet there is little research into the psychosocial consequences. There is evidence that many of the psychological difficulties can be likened to phobic behaviour, particularly in social situations. A fear-avoidance model of psychosocial difficulties following disfigurement is, therefore, potentially useful to nurses working in a variety of settings. The first of two articles on disfigurement explores some of the background to the fear-avoidance model.

Adaptation, Psychological↗

The fear-avoidance model: helping patients to cope with disfigurement.

Last week's article established that body disfigurement affects a considerable number of people and causes them significant distress. It also explored how a cognitive behavioural model of psychological disturbance might inform our understanding of the difficulties faced by people with disfigurement. This week's article examines the practical application of the fear-avoidance model and discusses how it can be used by nurses as a means of providing general advice and more specialist intervention.

Adaptation, Psychological↗