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Biomedical subjects

Wendy Duggleby

Publications and source records attributed to Wendy Duggleby.

12 recordsLinked to original sources

Dispelling myths about palliative care and older adults.

OBJECTIVES: To explore the myths about palliative care and older adults with cancer. DATA SOURCES: Research literature and review articles. CONCLUSION: Several myths about older adults exist: older adults are the same as younger adults, older adults are all the same, and optimizing function and quality of life are not important outcomes. Little research has focused on older adults receiving palliative care and their families. IMPLICATIONS FOR NURSING PRACTICE: The Oncology Nursing Society and Geriatric Oncology Consortium published the Joint Position Statement on Cancer Care in Older Adults acknowledging the unique needs of older adults with cancer. Application of this statement may be helpful in guiding inquiry and practice in the care for older adults receiving palliative care.

Activities of Daily Living↗

What about focus group interaction data?

The purpose of this article is to discuss issues related to group interaction data in focus groups. How should it be analyzed and reported? The author addresses these questions using qualitative research approaches with examples from her research to foster further discussion regarding focus group research.

Focus Groups↗

Transitions and shifting goals of care for palliative patients and their families.

Terminally ill patients and their families experience many confusing and, at times, traumatic transitions. Examples of such transitions include transitions from cure to comfort care, transitions related to loss, changes in care settings, and psychosocial and spiritual transitions. The purpose of this article is to discuss the experiences of palliative patients and their families as they journey through transitions and how oncology nurses can provide support. Using a composite case study from actual clinical cases as a framework for discussion, the authors present examples of evidence-based strategies that can be used by oncology nurses. Critical points from the case study are Adjustment to death is a process and cannot be rushed. The needs of a palliative patient and family should be heard, honored, and not questioned or challenged. A patient and family should remain in control of decision making, with the hospice and palliative care team acting as guides and facilitators.

Family↗

Transforming hope: how elderly palliative patients live with hope.

Hope is important to palliative patients; however, the process by which these patients live with hope is unknown. The purpose of this study was to describe, using a grounded theory approach, the processes by which palliative patients live with hope. Sixteen interviews were conducted with 10 home-care palliative patients (mean age 75 years) in their homes using open-ended questions. The participants defined their hope as expectations such as not suffering more and having a peaceful death. They described their main concern as wanting to "live with hope" and they achieved this through the basic social process of transforming hope. Transforming hope involved acknowledging "life the way it is," searching for meaning, and positive reappraisal. The results of this study provide a foundation for future research and the development of interventions to engender hope in older palliative patients.

Attitude to Death↗

The experience of hope for informal caregivers of palliative patients.

This study explored the experience of hope for informal caregivers of palliative patients. Interviews were conducted with 10 caregivers living with and providing care to a palliative patient. The interview data were analyzed using grounded theory qualitative methods. "Eroding hope" was their main concern--a result of bad days, negative messages, and experiences with the health care system. The participants dealt with eroding hope by "hanging on to hope." Hanging on to hope had four subprocesses: a) doing what you have to do, b) living in the moment, c) staying positive, and d) writing your own story. The support of friends, family, and health care professionals, and spiritually connecting with something bigger and stronger were subprocesses. These findings have application for informal caregivers providing palliative care at home, as a basis for assessment and interventions. Health care professionals need to recognize and value the experience of hope for the informal caregivers of palliative patients.

Adaptation, Psychological↗

Elderly palliative care cancer patients' descriptions of hope-fostering strategies.

The purpose of this study was to describe perceptions of hope-fostering strategies of elderly patients with advanced cancer receiving palliative home care. Using a qualitative thematic research design, saturation was reached with 10 palliative home care patients (mean age 75 years) (five males and five females). Face-to-face audiotaped interviews were conducted in the participants' homes. Participants described hope for: "not suffering more", "living life to the fullest in the little time I have left", a peaceful death, life after death and "hope for a better life in the future" for their family. Using Lubrosky's thematic analysis, themes of fostering their hope were: leaving a legacy, achieving short-term goals, "turn your mind off", supportive family and friends, symbols of hope, positive thoughts, honest information and symptom control.

Adaptation, Psychological↗

Persevering: the experience of well elderly women overcoming the barriers to the U.S. health care system.

PURPOSE: To explore the barriers to health care for well older community living women living in a metropolitan area in North Central Texas. METHODS: Qualitative thematic design. Forty-six women who attended seniors' centers in North Central Texas participated in focus groups. Then three individual and a key informant interviews were completed. Data were analyzed using Lubrosky's thematic analysis. FINDINGS: The participants described barriers to access associated with provider barriers of devaluing older adults, the complexity and slowness of reimbursement, inadequacy of health insurance plans and physicians opting out of plans. Participants overcame these barriers by persevering.

Activities of Daily Living↗

Helping Hispanic/Latino home health patients manage their pain.

The research focusing on pain in Hispanic/Latino populations suggests that their cultural values and beliefs of stoicism, fatalism, the importance of family, spirituality, and folk healing have an impact on their pain experience. Based on research findings this article suggests strategies nurses can use to assess and suggest pain management interventions for patients of Hispanic/Latino culture.

Attitude to Health↗

The language of pain at the end of life.

The effective management of pain at the end of life relies on the accurate assessment of pain. Language is the mechanism through which pain is assessed using self-report pain tools. The purpose of this study was to explore how elderly hospice patients describe their pain and to compare their descriptions with three commonly used pain assessment tools (i.e., McGill Pain Questionnaire, Memorial Pain Assessment Card, and the Visual Analogue Scale). Eleven elderly hospice patients with cancer were interviewed in their homes using open-ended unstructured questions. Data were analyzed line by line to identify descriptors of pain. These descriptors were then compared to standardized language used in the three pain assessment tools. In describing their pain, participants used many words, emphasized their pain by repeating those words, and used similes to describe their pain. The participants used approximately 30% of the standardized language found in three commonly used self-report instruments. These findings suggest that in conjunction with self-report instruments, the patient's own verbal descriptions should be used in the assessment of pain.

Aged↗

Implementation of the essential elements of service learning in three nursing courses.

The students' creativity, enthusiasm, energy, and excellent planning skills made a tremendously positive impression on the community agencies that participated in this project. The students applied principles of: Epidemiology, including collecting meaningful descriptive data. Community and family intervention. Community partnerships. Leadership. Cultural competence. As students visited the homes of families of different ethnic and socioeconomic status than themselves, perhaps the most poignant outcome was the opportunity for students to experience cultural sensitivity, relativity, and accommodation-Implementing the essential elements of service learning provided the foundation for a successful service learning experience. It took the time, energy, and commitment of all involved, but the end result was an educational experience that benefited students, faculty, and the community. Service learning presents an effective, unique, and valuable means for nursing students to master the objectives of community health, leadership and management, and pediatrics courses, and to prepare to function in a health care environment that demands partnering with the community to use resources more effectively to promote public well-being.

Community Health Services↗

The stress of dementia: view from the inside.

This descriptive exploratory study used thematic analysis to interpret short videotaped speech samples produced by persons with dementia in response to the question, "How have things been goingforyou lately?" The researchers were able to identify themes in 50 of the 56 interviews with men and women with Mini-Mental State Examination (MMSE) scores that ranged from five to 28. The major themes across all MMSE levels were losses, feelings about losses, and attempts to manage losses. The individuals' choice of themes as well as their verbal and nonverbal expressions suggested that they were experiencing a significant amount of stress, especially related to their relationships with family and friends.

Aged↗