PubMed Health⌕ Search
Home/Archive/PubMed

PubMed · 11255836

From DNA to data privacy.

B P Fuller·J Jeffries
View original source ↗Export metadata ↓

Abstract

Genetic research is revolutionizing healthcare by predicting diseases and revealing cures. At the same time, the information presents new challenges to HIM professionals charged with keeping this vital data from the wrong hands. Here's a look at the role genetic information is playing in healthcare and what you need to know about keeping it private.

Explore related subjects

Attitude to HealthConfidentialityGenetic Predisposition to DiseaseGenetic TestingHealth Insurance Portability and Accountability ActHuman Genome ProjectHumansInformation ManagementInsurance Selection BiasInsurance, HealthPrejudiceUnited StatesJournal Article

Keep this discovery

Explore connections, maps & timelines

BibTeXRIS

B P Fuller, J Jeffries. 2001. From DNA to data privacy.. https://pubmed.ncbi.nlm.nih.gov/11255836/

Cite the original work for its findings. Save a collection to share your selection of sources.

KEEP EXPLORING

Related citations

PubMed2007

Implementing emergency research requiring exception from informed consent, community consultation, and public disclosure.

Conducting emergency research in the out-of-hospital and emergency department setting is a challenge because of the inability of patients to provide informed consent in many situations. Federal guidelines allowing research under an exception from informed consent for emergency research have been established (21 CRF 50.24). Community consultation and public disclosure, 2 required components of obtaining this exception, are seen by many as a barrier to resuscitation research. This article will provide a brief overview of the history of the exception from informed consent for emergency research and summarize our methods recently used to successfully complete community consultation and public disclosure for a trial evaluating 2 devices used during cardiopulmonary resuscitation in a large metropolitan area.

Attitude to Health↗