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PubMed · 15280613

Cerebral palsy-management.

Pratibha D Singhi
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Abstract

Cerebral Palsy encompasses a heterogeneous group of non-progressive motor disorders caused by injury to the developing brain. Management is best done in a multidisciplinary set up under one roof. Comprehensive assessment of the child to evaluate functional ability and associated problems is followed by an individualized plan of management with long term goals and short term objectives. Participation of the family is pivotal to ensure proper habilitation of the child. A home-based management plan is advocated. Considerable experience, sensitivity and understanding are needed both for breaking the news and counselling the parents of a child with cerebral palsy.

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BibTeXRIS

Pratibha D Singhi. 2004. Cerebral palsy-management.. https://doi.org/10.1007/bf02724124

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PubMed2007

Psychometric properties of the quality of life questionnaire for children with CP.

This paper describes the development and psychometric properties of a condition-specific quality of life instrument for children with cerebral palsy (CP QOL-Child). A sample of 205 primary caregivers of children with CP aged 4 to 12 years (mean 8y 5mo) and 53 children aged 9 to 12 years completed the CP QOL-Child. The children (112 males, 93 females) were sampled across Gross Motor Function Classification System (GMFCS) levels (Level I=18%, II=28%, III=14%, IV=11%, V=27%). Primary caregivers also completed other measures of child health (Child Health Questionnaire; CHQ), QOL (KIDSCREEN), and functioning (GMFCS). Internal consistency ranged from 0.74 to 0.92 for primary caregivers and from 0.80 to 0.90 for child self-report. For primary caregivers, 2-week test-retest reliability ranged from 0.76 to 0.89. The validity of the CP QOL is supported by the pattern of correlations between CP QOL-Child scales with the CHQ, KIDSCREEN, and GMFCS. Preliminary statistics suggest that the child self-report questionnaire has acceptable psychometric properties. The questionnaire can be freely accessed at http://www.deakin.edu.ac/hmnbs/chase/cerebralpalsy/cp_qol_home.php.

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