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Optimal health and well-being for women: definitions and strategies derived from focus groups of women.

Women participating in focus groups were asked how they define health and well-being, and what strategies they would suggest for health optimization. Women defined health and well-being largely in terms of relationships. Their strategies for improving health involved enhancement of the quality of relationships with families, partners, and community. These proposed strategies included: creating a context for resilience; valuing and nurturing children, parents, and families; promoting interpersonal connections and community; realizing equality for women; and cultivating relational values. These perspectives can inform clinicians and health policy.

Adult↗

The other side of the pill bottle: the lived experience of HIV-positive nurses on HIV combination drug therapy.

A qualitative study of nine HIV-positive nurses was conducted to explore the experience of daily life for HIV-positive nurses taking HIV combination drug therapy. The purpose of the study was to gain a better understanding of factors relating to HIV medication adherence and nonadherence. The study also provided new knowledge on what it is like to be a nurse who is HIV-positive. Implementation of the study and analysis of the data were done using an integrated method for conducting phenomenological research. Face-to-face in-depth interviews were conducted around the United States with three women and six men who were HIV-positive nurses. Participants had acquired HIV via three modes: occupational exposure, sexual transmission, and contaminated blood products. The nurses were taking HIV antiretroviral medications in various combinations. Analysis of the nurses' interviews revealed six major themes that described the experience of day-to-day life for HIV-positive nurses on HIV combination drug therapy. The metaphor that emerged across the narratives was the Double-Edged Sword of Being a Nurse on the Other Side, in the role of patient. The metaphor described the life-changing experience of being an HIV-positive nurse attempting to adhere to the prescribed HIV combination drug regiment. While many of the study findings were congruent with the literature, new components of the experience emerged. The study gave voice to a group of nurses who previously have been described only in terms of HIV/AIDS statistics.

Adaptation, Psychological↗

Am I disabled?

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Anecdotes as Topic↗

A day in the life.

As a reflective practitioner I write a journal, reflecting on significant experiences through the day. In this paper, I present a day in my life as a part-time nurse and complementary therapist at the hospice where I work. In particular, I focus my reflection on my ability and value of dwelling with patients as a clearing to enhance my therapeutic work.

Anecdotes as Topic↗

Twin quilts--stories to be told.

A perusal of the literature reveals the many ways quilt design and personal communication is interwoven. We selected quilt making to provide those affected by breast cancer-as a patient, friend or relative-the opportunity to communicate their experience through quilt making. With the participation of community quilters, a concept and quilt design was developed to incorporate the work of patients and others in making a quilt. The project pattern and materials were presented. Contributors were invited to write about what inspired them to participate. For the 80 blocks that were constructed as twin quilts, 36 individuals wrote something about their block. Analysis of the vignettes identified major categories. The most common theme was honoring a specific person's life and their breast cancer journey. Displayed together with their accompanying vignettes, the quilts have become a focal point for interaction among patients and their families.

Activities of Daily Living↗

Introducing art therapy into the Christie Hospital, Manchester, UK, 2001-2002.

In September 2001, the author was invited by Dr. Wendy Makin (Macmillan Consultant in Palliative Care) and Andrea Sarginson (Volunteer Arts Worker) to introduce art therapy to the Christie Hospital as part of a postgraduate training course at the University of Sheffield. The aim of this paper is to explore how the project could help inpatients and outpatients to address their psychological needs and come to some understanding of their situation, following their diagnosis of cancer.

Anecdotes as Topic↗

Childbirth as healing: three women's experience of independent midwife care.

This article sets out to demonstrate that, for some women, childbirth may be experienced as healing and life-changing. The author works as an independent midwife. Interviews with three ex-clients were analysed, and the common themes identified and grouped. The three women had negative memories of the birth of their first child, but all birthed their second babies at home. The quality of care received was described as empowering, reassuring and emotionally supportive. Practical inputs such as listening presence, information, referrals, touch, were all identified as facilitative. The women framed their perception of the changes which had occurred in terms of reassessment of themselves and their capabilities in the light of the achievement of the birth experience.

Adult↗

Imagework as a means for healing and personal transformation.

This article explores the place that imagework, an interactive imagery process, has in enabling patients to make sense of physical and emotional illness and how it can be the means for healing and profound life change. It discusses how, through expanding patients' awareness of the interconnection between body, mind and soul, the outcome of the disease process can be affected. The differences between imagework and visualisation; healing and cure are highlighted, and case notes, with examples of how imagework can help to gain a larger perspective on illness, are used.

Anecdotes as Topic↗

Back to the old house? 'Sick role' and biographical narratives of the housing needs of short-stay hospital patients.

This paper examines how decisions are made about the housing needs of short-stay hospital patients. Two narrative types of patients' housing needs are identified. The 'sick role' narrative emphasised patients' ongoing medical needs and tended to prescribe 'sick role' placements in residential care or nursing homes instead of a return home. Conversely, the biographical narrative emphasised the importance of home as an integral element of 'elective biography' (Beck and Beck-Gernsheim, in: Heelas, Lash and Morris (Eds.), Detraditionalization, Blackwell, Oxford, 1996) and thus a highly emotional 'psychic warehouse' (Gurney, Ph.D. Thesis, Bristol, 1996) that was integral to post-discharge recovery and well being.

Aftercare↗

The impacts of a school closure on neighbourhood social cohesion: narratives from Invercargill, New Zealand.

We propose that, beyond their educational function, schools can serve as catalysts for community participation, social cohesion and the vitality of neighbourhoods. The paper explores the impacts of a school closure on families in an urban neighbourhood in Invercargill, New Zealand. The highest urban depopulation rate in the country has had implications for the viability of Invercargill schools. We present a qualitative study of narratives gathered during an interview-based study of the closure of Surrey Park School. Our analysis highlights the impact of school closure for low-income families and more generally reflects on the place of schools in contributing to social cohesion and the broadly defined health of a community.

Adolescent↗

"It's as if you're locked in": qualitative explanations for area effects on smoking in disadvantaged communities.

Evidence suggests that place of residence may be associated with smoking independently of individual poverty and socio-economic status. Qualitative research undertaken in disadvantaged communities in Glasgow explored possible pathways which might explain this 'area effect'. A poorly resourced and stressful environment, strong community norms, isolation from wider social norms, and limited opportunities for respite and recreation appear to combine not only to foster smoking but also to discourage or undermine cessation. Even the more positive aspects of life, such as support networks and identity, seem to encourage rather than challenge smoking. Policy and intervention responses need to tackle not only individual but also environmental disadvantage.

Adaptation, Psychological↗

Midwifery: a profession in transition.

This study sought to explore midwifery self-identity in relation to two major, competing discourses-medicine and midwifery. In-depth interviews were conducted with twenty-two midwives working in different settings. Although the study was exploratory, the findings showed conclusively that midwifery is not a static, discrete body of knowledge (Commonwealth Department of Human Services and Health 1996); nor should midwifery be seen necessarily falling neatly into one stream or another (Davis-Floyd 1992). Rather, midwifery is a discursive practice (Kent 2000). The midwife (like the obstetrician and nurse) trawls through a range of discourses (or ways of understanding and knowing) about the body and childbirth in order to construct their own practice. Midwifery is a fluid process of subject formation which changes over time according to age; experience; and setting of practice (private or public hospital, birth centre or home). Of primary significance is the way midwives viewed the body. Few midwives fell into either the medical (obstetric assistant) model or the midwifery (professional, independent) model. Most midwives could be classified 'hybrid' in the sense that their clinical practice drew variously on each of the major discourses according to contextual factors.

Anecdotes as Topic↗

Shaky foundations.

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Anecdotes as Topic↗