PubMed Health⌕ Search

SEARCH · PubMed Health

Results for “Personal Autonomy”

Explore indexed PubMed citations for clinical trials, systematic reviews and public health research. Read source abstracts and follow each citation to its original PubMed record.

Quote a phrase for an exact phrase match. Source license links do not imply unrestricted reuse.

At least 505 records · Page 28Linked to original sources

The basis of privacy and autonomy in medical practice. A model.

Most of the medical literature concerned with privacy seems to be based on the implicit assumptions that there is such a thing as right-to-privacy and that privacy is a worthwhile end unto itself. This paper develops a model which should permit a better and more pragmatic understanding of the moral, ethical and psychosocial bases of these assumptions. Arguments are offered that privacy is, indeed, not mainly an intrinsic value but is more of an instrumental value. It is suggested that privacy, per se, is not an end but is, rather, a means to another end, autonomy. It is important to differentiate autonomy as used here from narcissism; the former is viewed as an advanced stage of cognitive development whereas the latter is a social deviance. The model is developed which states: the analogy of a person is as a unit consisting of a matrix which is unique and autonomous because of its separation from other units by means of a wall-of-privacy; the relationship between persons is measured by their social distance. Derived from this is the 'equation', A approximately equal to (P)(D). Intimacy, substitutive judgement, confidentiality and patient-physician relationship are conceptualized within this model.

Confidentiality↗

Euthanasia--he illusion of autonomy.

The paper deals with some of the more common arguments used for the legalisation of voluntary euthanasia. It looks at these arguments from an ethical and philosophical point of view. First, the argument that to offer a person the possibility of euthanasia is to respect that person's autonomy is questionable. Can a person's decision on euthanasia be really autonomous? If euthanasia were legal everybody would be conscious of this option: the patient, the doctor, the family and the nursing staff. Thus, there could be indirect pressure on the patient to make a decision. The choice is meant to be free but the patient is not free not to make the choice. Secondly, a choice that seeks to alleviate suffering and thus improve life by annihilating it is irrational. Thirdly, autonomy as to one's own death is hardly exercised freely. Even an otherwise competent person may not be competent in deciding on his own death on account of despair, hopelessness, fear or maybe a feeling of being weak, superfluous and unwanted. This is a very uncertain base for decision-making, especially in the irrevocable decision of euthanasia. Finally, a competent person usually makes any choice in a responsible way and after due consideration; a 'good' decision should consider and respect the wishes and feelings of others. This will be no less the case in making a decision on the so-called free choice of euthanasia. Thus 'normal' behaviour in decision making will only add to the tendency of the already depressed person to feel a burden on his family, the staff and even on society.

Decision Making↗

Health outcomes and managed care: discussing the hidden issues.

Too often the debate over health outcomes and managed care has glossed over a series of complex social, political, and ethical issues. Exciting advances in outcomes research have raised hopes for logical medical reform. However, science alone will not optimize our patients' health, since value judgements are necessary and integral parts of attempts to improve health outcomes within managed care organizations. Therefore, to form healthcare policy that is both fair and efficient, we must examine the fundamental values and ethical concerns that are imbedded in our efforts to shape care. We must openly discuss the hidden issues including: (1) trade-offs between standardization of care and provider-patient autonomy; (2) effects of financial incentives on physicians' professionalism; (3) opportunity costs inherent in the design of insurance plans; (4) responsibilities of managed care plans for the health of the public; (5) judicious and valid uses of data systems; and (6) the politics of uncertainty.

Data Collection↗

The autonomy of adult women should be paramount, not the exam.

The respect shown by clinic personnel for the adult status of their patients, and the right of people with mental retardation to good routine gynecologic care are not at issue. What is at issue is the right of a mentally retarded woman to refuse the intrusion of a pelvic examination. To accept an accommodated decisional capacity to say yes or indicate assent but to deny the reverse might be in the patients' medical best interest, but it is neither consistent nor respectful of their autonomy.

Adult↗

Individual differences in attachment-autonomy configurations: linkages with substance use and youth competencies.

Variations in attachment-autonomy configurations are explored as these relate to substance use and several adolescent competencies. Questionnaires completed by 470 university students included measures of parental attachment, autonomy (both emotional autonomy and self-reliance), substance use, problems associated with substance use, social competencies, and coping. Analyses of subgroups representing four attachment-autonomy patterns, derived from cluster analysis, showed higher competency levels and fewer problems related to substance use for the group combining strong attachment and self-reliance coupled with low levels of emotional autonomy. A subgroup characterized by low father but moderate mother attachment security differed in a number of ways from a subgroup reporting low attachment to both parents. Findings support the utility of a typological approach in investigations of adolescent attachment and autonomy.

Adaptation, Psychological↗

Compulsory sterilisation in Sweden.

In the Fall of 1997 the leading Swedish newspaper, Dagens Nyheter, created a media hype over the Swedish policy of compulsory sterilisation that had been in operation between 1935 and 1975. In the discussion that followed, the moral condemnation of our medical past was unanimous. However, the reasons for rejecting what had gone on were varied and mutually inconsistent. Three strands of criticism were common: the argument from autonomy, the argument from caution, and the argument from biological scepticism. In the paper it is argued that what point of departure you choose in your criticism of the past should be of consequence also for your ideas about present and future medical practice. In particular, if you rely on the argument from autonomy, you should be prepared to accept a liberal (present and future) use of reproductive techniques.

Abortion, Eugenic↗

On the benefits of giving as well as receiving autonomy support: mutuality in close friendships.

Two studies examined autonomy support within close friendships. The first showed that receiving autonomy support from a friend predicted the recipient's need satisfaction within the relationship and relationship quality as indexed by emotional reliance, security of attachment, dyadic adjustment, and inclusion of friend in self and that there was significant mutuality of receiving autonomy support and of each other variable. The relations of perceived autonomy support to need satisfaction and relationship quality held for both female-female and male-male pairs across the two studies. The second study replicated and extended the first, showing that receiving autonomy support also predicted psychological health. Furthermore, giving autonomy support to a friend predicted the givers' experience of relationship quality over and above the effects of receiving autonomy support from the friend. When both receiving and giving autonomy support competed for variance in predicting well-being, giving, rather than receiving, autonomy support was the stronger predictor.

Beneficence↗

Sociocultural influences and body image in 9- to 12-year-old girls: the role of appearance schemas.

This study tested whether an individual's beliefs about the importance of appearance in their life is a mediator of sociocultural influences on body dissatisfaction in young girls. Participants were 265 girls in Grades 4 to 7 (M age = 10.71 years) from 5 private primary schools in metropolitan Adelaide, South Australia. Girls completed questionnaire measures of appearance television and magazine exposure, peer appearance conversations, autonomy, appearance schemas, and body dissatisfaction. Appearance media exposure and peer appearance conversations were negatively related to body esteem, and autonomy positively predicted body esteem. Most important, appearance schemas mediated between all sociocultural variables and body dissatisfaction.

Australia↗

The impact of time aids on independence and autonomy in adults with developmental disabilities.

The aim of this study was to describe how people with developmental disabilities experienced the use of time aids one year after their introduction by an occupational therapist. Data were obtained through semi-structured interviews. The analysis was performed using a phenomenographic qualitative approach. The results showed that independence and autonomy should be considered as two separate phenomena. Increased independence did not always lead to increased autonomy or vice versa. Four different relationships between these two phenomena were found. They all illustrate the different priorities of the participants and different levels of independence and autonomy. Concerning the usability of time aids, the occupational therapist has to recognize the importance of having frequent communication with the client to understand the phenomena that may affect the use of the aids. The occupational therapist should always try to involve both the client and significant support persons while introducing time aids. Future research in time aids with clients with developmental disabilities could involve multiple interviews with participants combined with participant observations and interviews.

Adult↗

Regulatory and ethical principles in research involving children and individuals with developmental disabilities.

Children and individuals with developmental disabilities (DD) compared to typical participants are disadvantaged not only by virtue of being vulnerable to risks inherent in research participation but also by the higher likelihood of exclusion from research altogether. Current regulatory and ethical guidelines although necessary for their protection do not sufficiently ensure fair distributive justice. Yet, in view of disproportionately higher burdens of co-occurring physical and mental disorders in individuals with DD, they are better positioned to benefit from research by equitable participation. Greater elucidation of this ethical dilemma is called for by researchers, institutional review boards, and funding agencies to urgently redress the imbalance. This article discusses many of the regulatory principles to ensure better research participation of children and individuals with DD: human rights, validity, distributive justice, beneficence/nonmaleficence, and autonomy.

Adult↗

Concerning mistreatment of older people: clinical and ethical thoughts based on a study of known cases.

Following a report by the Health Ministry recommending a greater implication of general practitioners (GP) in the diagnosis and care of mistreated older people, we wanted to evaluate what was actually their role in this matter. A study was made of files of mistreated older persons referred to the social services in a Parisian suburb. For each file, we noted who raised the first suspicions of mistreatment, who diagnosed it, what happened next, and what precisely the GP's role was. Out of 600 files, we found 12 cases, concerning 14 persons (two couples). Although all the patients had health problems requiring frequent consultations with their GP, none of these situations were diagnosed by the GP. In all cases, the GP played only a secondary role, if at all. The following points are discussed: The link between family problems and history cannot be ignored in the follow up of such situations. The GP's role is discussed regarding clinical knowledge of mistreatment and the legal rules they have to deal with. Our results bring to light how the balance between the person's autonomy and the necessary direct action is especially delicate in this field.

Aged↗

Emotional autonomy and problem behavior among Chinese adolescents.

The author examined the association between emotional autonomy and problem behavior among Chinese adolescents living in Hong Kong. The respondents were 512 adolescents, 16 to 18 years of age, who were interviewed for a cross-sectional study. Three dimensions of emotional autonomy including individuation, nondependency on parents, and de-idealization of parents were significantly and positively correlated with the amount of problem behavior the participants engaged in during the past 6 months. Using a simple linear multiple regression model, the author found that problem behavior was associated with only one aspect of emotional autonomy-individuation. Results indicated that the relationship between problem behavior and three aspects of emotional autonomy was similar in both individualistic and collectivistic societies.

Adolescent↗

[Interdependencies between the actual self-image and the actual image of parents in women with anorexia nervosa].

AIM: The aim of the study was to answer the following research problem: what dependencies occur between actual images of women with anorexia and actual images of their mothers and fathers in their daughters' perception? TEST GROUP AND METHOD: The examined group consisted of 30 patients diagnosed with anorexia nervosa, undergoing treatment at the Department of Psychiatry of the Medical University in Lublin. The average age of the examined females was 21 years. All patients had a secondary level education. The actual images were examined using the Gough and Heilbrun Adjective Check List (ACL), which was completed by the patients three times following the instruction: "I am", "my mother is", "my father is". RESULTS: Statistically significant positive correlations were obtained between actual images of the patients and their mothers in 10 ACL scales, whereas between actual images of the patients and their fathers--in 15 scales. CONCLUSIONS: 1. Dependencies between the images of the patients and their mothers (in the daughters' perception) were found regarding self-control, order, diligence, loyalty, autonomy, confidence and avoiding conflicts. 2. The following relationships occur between the images of the patients and their fathers (in their daughters' perception) regarding self-evaluation, autonomy, aggression, understanding the motives of one's own behaviour, self-confidence, ability to cope with stress, nurturance and spontaneity. 3. The images of patients are connected both to the images of their mothers as well as fathers as regards: self-confidence, self-reliance, sense of one's effectiveness, autonomy, narcissism and difficulties in abandoning subordinated children's roles.

Adult↗