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PubMed1993

Evaluation of the sampling plan used in collecting data for a study of LDL subclass pattern.

The genetic epidemiologic study of coronary heart disease conducted by a group in the Donner Laboratory used survey and ad hoc sampling plans, resulting in a random and an ad hoc sample of families, respectively. These two samples were used to evaluate the ad hoc sampling plan used in that study. Following the description of data collection, we adjusted for ascertainment, but still found that the aggregation patterns of many lipoproteins in the ad hoc sample were different from those in the random sample.

Adult↗
PubMed1996

Researching under fire: issues for consideration when collecting data and information in war circumstances, with specific reference to relief and reconstruction projects.

The post-Cold War era has witnessed an increased number of conflicts and higher levels of international intervention by the humanitarian community and the military. Those who undertake to research the actions of relief and development agencies acting in these wars must act within new parameters that require a flexible, innovative and reflective approach. Not much is known about data collection in war. The most relevant publications come from the field of development studies. This paper is a beginning in a much-needed discourse on researching under fire; it is offered not as a definitive work, but as a starting-point for discussion.

Bias↗
PubMed2005

Non-participant observation: using video tapes to collect data in nursing research.

Observation is a highly valued and effective research method, as well as being an essential part of nursing practice. The authors explore the way in which non-participant observation as a research method might be enhanced by the use of video recording. The utility, ethical considerations and constraints of video recording as a data collection tool are discussed, with examples from a research study. The authors argue that the use of videos can enhance the credibility of non-participant observation studies through the minimisation of selectivity and bias and the opportunity to employ more rigorous strategies for ensuring reliability.

Attitude of Health Personnel↗
PubMed2004

Mother-Baby psychiatric units (MBUs): national data collection in France and in Belgium (1999-2000).

The French version of the Marcé checklist was used to collect data for 176 joint admissions to 11 psychiatric mother-baby units in 1999 and 2000. Mean age of the babies at admission ranged from 4 to 16 weeks. Two units also admitted older children. Mothers admitted were diagnosed with schizophrenia or chronic delusional disorders (n = 44), acute transitory psychosis "Bouffée délirante" (n = 20), bipolar disorders (n = 20), depressive illness (n = 38), personality disorders or intellectual disability (n = 39), and other disorders (n = 15). The mean duration of hospitalisation was 11 weeks. Units that also offered day-care admission in the same or a near-by unit had shorter mean admissions. More than half the women's partners (or babies' fathers) had mental health problems. Women with schizophrenia or chronic delusional disorders and personality disorders or intellectual disability remained hospitalised longer, improved less, and were more often separated from their babies, or discharged with supervision, than women admitted with other diagnoses.

Adult↗
PubMed1993

A review of studies comparing checklist and interview methods of data collection in life event research.

This article is concerned with the relative merits of checklists and interviews as techniques for collecting data in the study of life events. It presents a detailed review of studies that have directly compared checklists and interviews. The author's conclusion is that the two techniques should not be seen as equivalent in the assessment of life events. Virtually all of the studies reviewed showed a marked tendency to overreport on checklists. The method appears inadequate in distinguishing truly stressful events from trivial occurrences. In contrast, the in-depth interview is sensitive to the subtleties of life events and should be the preferred method when data of any precision and accuracy are required in an empirical study.

Data Collection↗
PubMed1997

Evaluation of lymphopenia among workers with low-level benzene exposure and the utility of routine data collection.

Whether low-level benzene exposure produces health effects is controversial. We used routinely collected data from our medical/industrial hygiene system to study 387 workers with daily 8-hour time-weighted exposures averaging 0.55 ppm. The cross-sectional repeated survey design included 553 unexposed workers. Lymphopenia is considered to be the earliest and most sensitive indicator of benzene toxicity. We found no increase in the prevalence of lymphopenia among benzene-exposed workers (odds ratio, 0.6; 95% confidence interval, 0.2 to 1.8), taking into account smoking, age, and sex. There also was no increase in risk among workers exposed 5 or more years (odds ratio, 0.6; 95% confidence interval, 0.2 to 1.9). Examination of other measures of hematotoxicity, including mean corpuscular volume and counts of total white blood cells, red blood cells, hemoglobin, and platelets, produced similar results. We conclude that risk of lymphopenia and other early indicators of hematotoxicity are not increased among workers in this study who were exposed to low levels of benzene.

Adolescent↗
PubMed2004

Frequency of laboratory test utilization in the intensive care unit and its implications for large-scale data collection efforts.

OBJECTIVE: Mapping local use names to standardized nomenclatures such as LOINC (Logical Observation Identifiers Names and Codes) is a time-consuming task when done retrospectively or during the configuration of new information systems. The author sought to identify a subset of intensive care unit (ICU) laboratory tests, which, because of their frequency of use, should be the focus of efforts to standardize test names in ICU information systems. DESIGN: The author reviewed the ordering practices in medical, surgical, and pediatric ICUs within a large university teaching hospital to identify the subset of laboratory tests that represented the majority of tests performed in these settings. The author compared the results of his findings with the laboratory tests required to complete several of the most frequently used ICU acuity scoring systems. RESULTS: It was found that between 104 and 202 tests and profiles represented 99% of all testing in the three ICUs. All the laboratory studies needed for six commonly used ICU scoring systems fell into the top 21 laboratory studies and profiles performed in each ICU. CONCLUSION: The author identified a small subset of the LOINC database that should be the focus of efforts to standardize test names in ICU information systems. Mapping this subset of laboratory tests and profiles to LOINC vocabulary will simplify the process of collecting data for large-scale databases such as ICU scoring systems and the configuration of new ICU information systems.

APACHE↗
PubMed1992

Federal healthcare data collection is incomplete and inadequate--report.

A new report criticizes federal efforts to collect data on the use of healthcare services, calling them fragmented, duplicative and inadequate for policymakers' needs. The report says a proposed overhaul of the National Center for Health Statistics doesn't go far enough and offers recommendations to steer the project toward more effective results.

Data Collection↗
PubMed1999

A study of infectious intestinal disease in England: plan and methods of data collection.

The Committee on the Microbiological Safety of Food, set up in 1989 by the Department of Health in response to national epidemics of foodborne infection, considered the available evidence and commissioned a study of infectious intestinal disease (IID) in England. Seventy practices (with 489,500) patients overall) recruited from the Medical Research Council's General Practice Research Framework between August 1993 and January 1995 collected data for one year. The practice populations were representative of practices in England by area and urban/rural location, but with fewer small and affluent practices. There were five main components. i) A population cohort of 9776 (40% of those eligible) were enrolled to estimate the incidence and aetiology of IID in the community, and a large proportion were followed up. A median of 10% of patients on practice age-sex registers had moved away or died. ii) A nested case control component based on cases ascertained in the cohort was used to identify risk factors for IID in the community. iii) In a case control component used to identify risk factors and to estimate the incidence and aetiology of IID presenting in 34 general practices 70% of the 4026 cases returned risk factor questionnaires, 75% submitted stools, and matched controls were found for 75% of cases. iv) An enumeration component was used to estimate the incidence of IID presenting to general practitioners (GPs) in 36 practices and the proportion of specimens sent routinely for microbiological examination. v) In a socioeconomic costs component used to estimate the burden of illness of IID in the community and presenting to GPs 63% of those who returned a risk factor questionnaire also returned a socioeconomic questionnaire and were representative by age, sex, and social class. Despite variable enrolment and compliance the study sample had sufficient power for the multivariable analysis. The characteristics associated with low enrollment and compliance must be considered in the interpretation of the main study results.

Case-Control Studies↗
PubMedDate not supplied

Data collection in continence care.

Evaluation is an important component of any project. However, where change is complex and the time and resources available for collecting data are scarce, considerable thought needs to be given to how evaluation is best carried out. This article discusses some of the issues that arose during the setting up of a service to promote continence.

Aged↗
PubMedDate not supplied

[Standardization criteria to ensure the uniformity of data collection by the Italian Registry of Dialysis and Transplantation].

The Italian Registry of Dialysis and Transplantation (RIDT) collects data concerning patients in renal replacement therapy (RRT) sent from Regional Registries. Until 2003, the data were sent in summary tables. From 2004, each region has been sending patient data as single non-summarized forms (i.e. one record for each patient). This paper summarizes the collection criteria and the ideal method to codify data ensuring that data sent to the RIDT are consistent. This standardization process is necessary to ensure the statistical analyzability of the data and their comparability with data from other registries. Moreover, the standardization process is the initial step in allowing the RIDT to obtain clinical data to transform the registry from an epidemiological registry to a clinical governance instrument.

Data Collection↗
PubMed1998

Validity and reliability of self-reported retrospectively collected data on sick leave related to musculoskeletal diseases.

OBJECTIVES: The aim was to study the reliability and validity of retrospective data, collected by self-report, on sick leave related to musculoskeletal diseases. METHODS: The study groups consisted of 66 and 306 subjects, for the reliability and validity studies, respectively. They were all part of a wider study of risk factors for musculoskeletal disorders, the REBUS study, conducted in Stockholm in 1993. Reliability was tested using a test-retest design regarding self-reported sick leave related to musculoskeletal diseases in 1970-1993. The validity study comprised the period 1990-1994. Self-reported and registered sick-leave data related to musculoskeletal diseases were collected and analyzed regarding concordance. Data about current musculoskeletal disorders and different work-related conditions were collected and analyzed regarding possible effect- and exposure-dependent misclassification. RESULTS: The test-retest reliability study showed the percentage of agreement to be between 0.88 and 0.97, and the kappa values were between 0.73 and 0.93. The validity study of the concordance between the self-reported and registered data showed high agreement and specificity, but the sensitivity was sometimes lower. All the kappa values exceeded 0.50. No effect- or exposure-dependent misclassification was found. CONCLUSIONS: The validity of retrospectively collected self-reported sick-leave data was sufficient for use as a measure of musculoskeletal morbidity in the analyses of associations with work-related conditions. Because of the relatively low sensitivity, such data will underestimate the prevalence of sick leave and should not be used for surveys of morbidity.

Female↗
PubMed2004

Health care fraud and abuse data collection program: technical revisions to Healthcare Integrity and Protection Data Bank data collection activities. Final rule.

The rule finalizes technical changes to the Healthcare Integrity and Protection Data Bank (HIPDB) data collection reporting requirements by clarifying the types of personal numeric identifiers that may be reported to the data bank in connection with adverse actions. The rule clarifies that in lieu of a Social Security Number (SSN), an individual taxpayer identification number (ITIN) may be reported to the data bank when, in those limited situations, an individual does not have an SSN.

Credentialing↗
PubMed2004

Health care fraud and abuse data collection program: technical revisions to healthcare integrity and protection data bank data collection activities. Interim final rule with comment period.

The rule makes technical changes to the Healthcare Integrity and Protection Data Bank (HIPDB) data collection reporting requirements set forth in 45 CFR part 61 by clarifying the types of personal numeric identifiers that may be reported to the data bank in connection with adverse actions. Specifically, the rule clarifies that in lieu of a Social Security Number (SSN), an individual taxpayer identification number (ITIN) may be reported to the data bank when, in those limited situations, an individual does not have an SSN.

Data Collection↗
PubMed1996

Preliminary report of data collection in hospital quality assurance programs--a project of the Association of Hospitals of the Czech Republic.

OBJECTIVES: This was the first attempt of the association representing all acute care hospitals in the Czech Republic to collect mutual data which might be used for quality assurance (QA) purposes and which might lead to the development of national standards of care which could be used for hospital accreditation. Data collected included information which was available universally and which could be measured; in addition, information was intended to be similar in each hospital. In most cases, the data collection systems were based on financial information and data had to be identified which might be used for QA purposes, rather than being able to design a system specific for QA purposes. DESIGN: Since the hospital payment system was established in 1992, hospitals have had to develop data collection systems to measure clinical activity; this current study was based on this data collection, adapted to QA purposes. SETTING: The Executive Committee of the Hospital Association agreed to a pilot study of hospitals in 1993; data were collected from approximately 40 hospitals, beginning in 1994. STUDY PARTICIPANTS: Hospitals were chosen based on their ability to collect data and participate in the program, and it was determined that there should be variability in the hospitals, in size, location and activities, but that the data collected should be generic. INTERVENTIONS: Raw data included 33 different items, most of which were irrelevant to QA. Using a computer program, various combinations of data were reviewed and evaluated to ascertain the most appropriate for QA purposes. MAIN OUTCOME MEASURES: Data were chosen for study which included (a) data from the largest departments in the individual hospitals; (b) length of stay for patients hospitalized in these departments; (c) number of occupied beds/physician in the department and (d) mortality/1000 admissions to the department. RESULTS: The combination of (1) a long length of stay; (2) a high occupied bed/doctor ratio; and (3) a high mortality rate/1000 admissions might be indicators of poor quality. Additional factors to consider include: the type of department-emergency, cancer, geriatric, etc.; the nature of the medical activity-acute, referral, primary care, etc.; whether or not "social" beds are included and, generally, comparability among departments. However, as a pilot study, certain indicators can be determined which then can be used for future study to determine quality of care. The ability to cooperate and collect seemingly comparable data indicates reason for optimism in the future; more detailed and accurate studies can be carried out which will enable assessment of the quality of care given in comparable situations in hospitals throughout the Czech Republic.

Accreditation↗
PubMed2005

Efficient use of synchrotron radiation for macromolecular diffraction data collection.

In recent years, number of X-ray synchrotron beam lines dedicated to collecting diffraction data from macromolecular crystals has exceeded 50. Indeed, today most protein and nucleic acid crystal structures are solved and refined based on the synchrotron data. Collecting diffraction data on a synchrotron beam line involves many technical points, but it is not a mere technicality. Even though the available hardware and software have become more advanced and user-friendly, it is always beneficial if the experimenter is aware of the problems involved in the data collection process and can make informed decisions leading to the highest possible quality of the acquired diffraction data. Various factors, important for the success of data collection experiments and their relevance for different kinds of applications, are discussed.

Computer Simulation↗
PubMed2001

Comparison of UK paediatric cardiac surgical performance by analysis of routinely collected data 1984-96: was Bristol an outlier?

BACKGROUND: Reports of high mortality after paediatric cardiac surgery at the Bristol Royal Infirmary, UK, led to the establishment of an independent public inquiry. A key question was whether or not the mortality statistics in Bristol were unusual compared with other specialist centres. To answer this question, we did a retrospective analysis of mortality in the UK using two datasets. METHODS: Data from the UK Cardiac Surgical Register (CSR; January, 1984, to March, 1996) and Hospital Episode Statistics (HES; April, 1991, to December, 1995) were obtained for all 12 major centres in which paediatric cardiac surgery is done in the UK. The main outcome measure was mortality within 30 days of a cardiac surgical procedure. We estimated excess deaths in Bristol using a random-effects model derived from the remaining 11 centres. Additionally, a sensitivity analysis was done and case-mix examined. FINDINGS: For children younger than 1 year, in open operations, the mortality rate in Bristol was around double that of the other centres during 1991-95: within the CSR, there were 19.0 excess deaths (95% interval 2-32) among 43 deaths; and in HES, there were 24.1 excess deaths (12-34) among 41 deaths recorded. There was no strong evidence for excess mortality in Bristol for closed operations or for open operations in children older than 1 year. INTERPRETATION: Our results suggest that Bristol was an outlier, and we do not believe that statistical variation, systematic bias in data collection, case-mix, or data quality can explain a divergence in performance of this size.

Adolescent↗