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PubMedDate not supplied

Social validation data on three methods of physical restraint: views of consumers, staff and students.

The use and evaluation of restraint methods with people with mental retardation is a continuing area of concern. Twenty-four undergraduate students, 21 residential care staff and 18 service-users from community settings rated videotapes of three physical restraint procedures. Two of the methods involved restraining an individual on the floor and a third method involved restraining an individual in a chair. Participants answered two open-ended questions to rate the methods of restraint and rated the methods on a 5-point scale of satisfaction [J. Ment. Defic. Res. 30 (1986) 369]. Participants also rated the three restraint methods by a forced-choice comparison. Restraint was rated negatively by all participants. However, both the satisfaction ratings and the forced-choice methods rated the chair method of restraint as most acceptable all three groups of participants. Consumers rated restraint more negatively than other groups. Restraint was evaluated negatively by all three groups, but the chair method was rated the least worst.

Adult↗

PubMed2001

'Gentle caring experience'. Seeking alternative health care in Canada.

The starting point for this paper is a review of the literature, which seeks to explain the use of alternative medicines, therapies and practices in developed countries. Using the Statistics Canada 1996-97 National Population Health Survey--Health File, we then examine the profile of alternative service users. Our analysis shows that use of alternative health care is still limited to a relatively small segment of Canadians whose profile is similar to those in other developed countries. Women are more likely than men to use alternative medicines, therapies and practices, as are those who have higher incomes and are better educated. To move what has been an essentially empirical discussion forward, we explore critiques of conventional medical practice and propose that the analysis of alternative health care be situated within the geographies of consumption.

Adolescent↗

PubMed2003

Establishing nursing research priorities on a paediatric haematology, oncology, immunology and infectious diseases unit: involving doctors and parents.

Following a Delphi survey undertaken with nurses on a specialist children's unit to identify priorities for nursing research, this paper outlines the results of a survey to ascertain the views of doctors and parents regarding the results of the Delphi. This approach was in keeping with national guidance on multi-professional working in paediatric oncology and the importance of service-user involvement in planning and evaluating care. Convenience samples of doctors (n=16) and parents (n=10) were asked to rank the priorities previously identified by nurses. Results highlighted that in the main, nurses, doctors and parents agreed on the key areas that should take priority for research. Nurse's knowledge of day-to-day symptom management, children's quality of life, negotiation and communication in relation to care provision were identified by all three groups as high priorities. There were some areas where the views varied: this was generally in relation to the different primary focus of the individual groups-parents being very concerned with the effect of daily ward routines and procedures and their child's overall hospital experience, nurses with issues such as staff retention and morale, whereas doctors were more concerned with issues around information giving and consent to treatment. Limitations of the study, including sample selection and the transient nature of the population involved are discussed within the paper. The paper concludes that all three groups shared similar views, being focused on issues directly related to patient care. Consensus between the groups should result in future research initiatives reflecting a shared focus and responding to an identified need.

Attitude of Health Personnel↗

PubMed2002

Going home from hospital -- an appreciative inquiry study.

This paper reports on a project that involved a number of agencies and groups, including older people, working together to examine and develop practice in an area of shared concern -- going home from hospital. The project was stimulated by a 'whole-system event', and was based on appreciative inquiry (AI) methodology, which has roots in both action research and organisational development. In AI, the research is directed towards appreciating what it is about the social world that is positive, and exploring this. The study was planned around three workshops to streamline data collection and analysis. Group members were also required to carry out some activities between workshops. Invitations were sent out to groups and individuals previously identified as involved or interested in the discharge process across one health district (n = 71). Workshop one discussed the planned research schedule, and introduced the basic concepts of AI. This workshop also took participants through the interview process. Each participant was asked to undertake two interviews. Thirty-five individual interviews and one focus group were completed. At workshop two, interview data were analysed by the group using the nominal group technique. Subsequent group discussion produced 'provocative propositions'. At the third workshop, provocative propositions were developed into action plans. This paper gives an overview of the study, and explores some of the issues involved when working with service users and providers as co-researchers.

Aged↗

PubMed2001

Fiction, poetry and mental health: expressive and therapeutic uses of literature.

People with experience as mental health clients, mental health nurses, writers and other professionals have used literature to benefit mental health service users in various ways. These include expressive writing, as well as applications in psychotherapy and counselling and to deal with specific problems and symptoms. In addition, therapeutic story-telling, bibliotherapy and poetry therapy have been used. Various benefits have been described, but some accounts do not include evidence of clinical effectiveness. However, positive treatment outcomes have been reported in research papers and other literature, with particular evidence of clinical effectiveness in some studies of bibliotherapy, therapeutic writing and poetry therapy. Further work is needed to clarify and measure the effectiveness of various expressive and therapeutic uses of literature. The authors also recommend collaboration among practitioners and the need for supporting evidence for proposals for increased resources in this field.

Bibliotherapy↗

PubMed1999

Redefining community care social work: needs or risks led?

This reflective paper assesses whether the focus of community care social work is shifting from responding to needs to reducing or containing risks. Whilst public response to unacceptable risk has instigated major developments in health and welfare services and an overt concern with risk management is a key feature in elder abuse and mental health work, notions of risk have featured less explicitly in the community care literature. This paper suggests that community care assessment is increasingly concerned with risk management, as containing risks becomes a means of rationing scarce resources, when situations of high risk attract more resources than those where the risk is less. In addition, this emphasis on only the negative connotations of risk and the need for protection may constrain empowering service users to define their own positive risks.

Journal Article↗

PubMed1999

Outcomes of social care for adults: attitudes towards collecting outcome information in practice.

This paper discusses the findings of three studies of perspectives on social care outcomes undertaken by the Social Policy Research Unit (SPRU) at the University of York. The findings are related to conceptual and policy issues relevant to the idea of using outcome information in assessing performance. Respondents were managers in social services, academics, and organizations of disabled people, older people and carers. People gave their views on why outcomes were important, and what they perceived as the obstacles to implementing ways of looking at outcomes in routine or regular practice in social care. In principle, attitudes towards the collection and use of outcome information were overwhelmingly positive: results for service users and carers were at the heart of 'authentic' ideas of effectiveness, and were potentially of value in improving accountability and informing the decisions and activities of both purchasers and providers. However, a number of obstacles to implementing practical systems were identified including conceptual and technical issues, professional and organizational culture, resource constraints and the emphasis on assessment at the expense of review.

Journal Article↗

PubMed2000

Community pharmacy as a primary health and self-care resource: a framework for understanding pharmacy utilization.

A number of different models exist to help explain health care utilization behaviour, though none have been applied to the use of community pharmacy. In policy terms pharmacy utilization is an important one to address as Government is keen to support a shift in GPs' workload to community pharmacy. The paper begins by outlining the different health utilization models. We then draw on the different frameworks to help explore the nature of community pharmacy use. Using data from two separate pharmacy studies that included observational work, interviews and a literature review, we identify what key influences are important in conceptualizing pharmacy utilization. Previous research has tended to focus on factors associated with socio-demographic characteristics of service users, but the current research on which the paper draws, highlights the importance of factors associated with need and demand issues in shaping how pharmacies are utilized. Process factors and the impact of internal and external organizational factors are also highlighted as important.

Journal Article↗

PubMed1998

Struggling for control: the care experiences of 'difficult' patients in mental health services.

Although there is increasing recognition of the existence of 'difficult' patients who present particular challenges to mental health nurses, no research has been conducted into their perceptions of services and their experiences of care. This study identifies mental health service users who are defined by nurses as 'difficult' and explores their perceptions of their care experience. The results support earlier studies which suggested that 'difficult' patients challenge nurses' competence and control: despite their different roles both nurses and 'difficult' patients were aware of the struggle to gain or retain a notion of control. Respondents were able to identify the qualities of nurses and nursing interventions which had a positive effect on their care experience. Where nurses were perceived to demonstrate respect, time, skilled care and a willingness to give patients some control and choice in their own care, feelings of anger were reduced. These findings are discussed within the conceptual framework of 'power over' and 'power to' and implications for practice and research are considered.

Adult↗

PubMed1999

Shift work and its impact upon nurse performance: current knowledge and research issues.

Previous research investigating shift work and its impact upon the quality of registered nurse performance and outcomes (including biological, psychosocial and organizational) is reviewed. The present study, which involved non-participant observation of staff nurses (n = 34) within their first year of practice (Part 1 or Part 12 of the United Kingdom Professional Register), is described. The findings demonstrated support for earlier research which suggested that 12 1/2 hour shifts are associated with less effective performance. This study, together with previous research, highlights important indicators for the design and management of future empirical work which is required to investigate the influence of shift work upon process as well as outcomes for nurses, service users and the employing organization. This is particularly pertinent in the light of recent changes in work patterns. The well-being and effectiveness of the nursing workforce requires enhancement, and the effective management of shift-work is a key strategy in achieving this.

Employee Performance Appraisal↗

PubMed2000

Electroconvulsive therapy: a review of the literature.

Electroconvulsive therapy (ECT) is a procedure that has been used in the treatment of mental illness for over 60 years. Despite its continued use it remains a controversial treatment, with questions concerning its efficacy being raised not only by mental health professionals, but also service users themselves. The following article reviews the current literature on the administration and effectiveness of ECT, highlighting some of the main points of contention in the debate over its use. In providing a balanced review of the literature, this article aims to serve as an information source for nurses and other mental health professionals who may be involved in the administration of ECT and care of the patients receiving treatment.

Depressive Disorder↗

PubMed2002

Formal observations and engagement: a discussion paper.

Formal observation of patients at risk is extremely common in acute psychiatric facilities. Effectively a form of physical containment, observation is resource-intensive, makes significant personal demands upon staff and skews the focus of nursing care towards the small group of patients judged to be most at risk. For patients, the experience of being observed is often less than therapeutic and, in some cases, counter productive. In this paper, the authors draw upon a variety of perspectives, including that of a psychiatrist and a service user. It is argued that the practice of formal observation is ineffective and may actually contribute to the poor state of UK acute psychiatric inpatient units, in terms of direct patient care, clinical decision-making and appropriate risk management. In a recent 'commentary' within this journal, the authors offered 'engagement' as an alternative to observation. In this paper, the meaning of engagement is refined and presented as a process of emotional and psychological containment of distress. The paper concludes that inappropriate over-use of formal observation as a custodial and defensive practice can contribute to a sense of dehumanization and isolation within acute psychiatric patients; engagement may provide a genuine (i.e. not just linguistic) alternative.

Coercion↗

PubMed2002

A sociological study of bed blocking in psychiatric rehabilitation units.

This study focuses on the reported problem of psychiatric patients who are 'bed-blocking' mental health rehabilitation units. It explores the concept of individualized care within psychiatric nursing and argues that this 'received view' is counterproductive for some client groups. Individualized care assumes a number of mainstream social values and beliefs that may conflict radically with the attitudes to life (ideologies) of some service users. These clients may resist normalisation, independence and individualism, preferring instead a more collective, pastoral and spiritual lifestyle. Clients and nurses may reject culture-biased care policy, using various strategies to neutralize individualized care in practice. In the absence of a coherent alternative, such action may lead to frustration, alienation and bed blocking. The study uses structured and unstructured interviews in two psychiatric units to examine this hypothesis.

Humans↗

PubMed2002

Reconciling voices.

There is a lack of nursing research in relation to how people with mental health problems make sense of their experiences of mental distress. Furthermore, few nursing related studies have conveyed service user's understandings and meanings for their experiences of mental 'disorder'. Narrative psychology claims that people make sense of the world and their lives by using narrative structures to organize diverse experiences. By sharing these stories with others, interpretations are negotiated and personal and cultural meanings are formed. This study used a tried and tested approach to narrative analysis to analyse the transcribed narrative of one man, Gary, who was experiencing mental health problems. The study explores Gary's process of meaning making as it appears in his narrative; the frameworks and metaphors that he uses to help him make sense of his experiences. The tensions between Gary's internal voices and beliefs and the external voices of surrounding culture and psychiatry are highlighted. Emphasis is placed on the importance of attending and responding to personal meanings embedded in narratives as a means of developing sensitive nursing care and enriching nursing research.

Adult↗

PubMed2003

Views of nursing staff on the use of physical restraint.

A postal questionnaire survey was employed in regional secure and psychiatric intensive care units in England and Wales, in respect of mental health nurses' training in the use of physical restraint. The nurses' views were sought relating to their last experience of implementing the procedure. Whilst most nurses (n = 259, 96.3%) reported positive outcomes in so far that the incident was brought under control, the views of the aftereffects of the procedure were of concern and ambivalence. The literature suggests that service users did not necessarily hold the same positive views. A range of alternatives, which were consistent with the literature, was made by staff to improve intervention in the management of violence. Negative aspects relating to the use of physical restraint were also highlighted. They included procedural, injury, clinical and management issues. Some respondents also expressed concerns about the negative attitudes of their colleagues. The findings of this aspect of the survey highlights that the therapeutic value of physical restraint can only be achieved with appropriate monitoring and with emphasis on psychological intervention in the prevention and management of violence.

Attitude of Health Personnel↗

PubMed1999

Viewpoint: management of malaria--working with the private sector.

Recent reviews have demonstrated that a substantial proportion of cases of malaria are managed in the private sector, and international policy initiatives routinely emphasize the need for malaria control programmes to collaborate with the private sector. However, information on how to develop successful partnerships between the public and private sectors remains limited. This paper reviews the current knowledge about the management of malaria by private providers, considers the potential of different strategies for influencing the quality of care provided, and identifies processes for facilitating public-private sector collaborations. We contend that public sector-led interventions, such as training of private providers or the distribution of prepackaged antimalarials through the private sector, are unlikely to scale up to sustainable national level programmes if they do not take into account a wide range of needs and concerns, represented by private provider organizations and other interest groups, including service users. These groups should be involved at key stages including the design and piloting of interventions, through to the dissemination and implementation of findings. Research priorities are outlined for the development of tools to facilitate public-private partnerships for improving the management of malaria.

Antimalarials↗

PubMed2001

The potential contribution of decision aids to screening programmes.

Decision aids for health service users facing decisions about screening have been developed for controversial tests (such as that for prostate specific antigen as a screen for prostate cancer) and tests in which outcomes are value laden (as in some prenatal tests). The potential usefulness of decision aids in established screening programmes (such as those offering mammography to women over 50 in the United Kingdom) remains to be explored. In principle any decision about screening test acceptance may be sensitive to individual preferences and could be supported by an appropriate decision aid. Decision aids might also help reduce some of the problems currently associated with public misconceptions about screening. Objections to the promotion of individual choice regarding screening tests usually take the form of concern that this will lead to unacceptable losses in terms of population health gain and health system efficiency, or of fear that individuals will choose options that are wrong for them. The introduction of decision aids could alleviate both of these objections to some extent. Decision aids could encourage people to consider the social as well as the individual consequences of their choices and they should promote choices consistent with personal values. Although there are strong arguments in principle for introducing decision aids into established screening programmes, their potential needs to be confirmed in empirical evaluations and there may be many contentious decisions and practical challenges to be overcome in order to implement them.

Decision Making↗

PubMed2003

Overcoming the challenges to consumer involvement in cancer research.

INTRODUCTION: Within the last decade, there have been many government initiatives to promote consumer involvement in research, especially in cancer. At the same time, the number and influence of consumer groups themselves have expanded. However, the organizational infrastructure necessary to facilitate consumer involvement has not been developed. Consequently, consumer involvement has tended to remain essentially localized and project driven, with no strategic or regional lead. OPPORTUNITIES FOR INVOLVEMENT AND IDENTIFICATION OF CONSUMERS: The opportunities for consumers to influence the research process at each stage of the research process are identified. The different types of consumer involvement are also examined. Novel ways of identifying and recruiting consumers that have been adopted by one cancer network are discussed. THE STRATEGIES USED IN ONE CANCER NETWORK: An organizational model designed by one cancer network for involving consumers in research is illustrated. Three innovations are examined in detail. First, how three open consumer conferences have increased awareness of research among service users. Second, the recruitment of consumers to sit on project steering groups and a committee that provides a strategic overview of current research. Third, the establishment of a Consumer Panel for Research where reimbursed, trained consumers are able to provide a considered consumer perspective in a range of settings. CONCLUSIONS: Cancer networks need to take the lead in the development of an organizational infrastructure to facilitate consumer involvement. The model developed in Sheffield could be generalizable to other diseases and other health-care settings.

Biomedical Research↗