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Autonomy and competency--self-determination in the lives of adults with developmental disabilities.

The principle of autonomy anchors decision making for most North Americans. For people with disabilities, however, the quest for self-determination is often countered by society's responsibility to take care of those who have some area of weakness or incompetence. Those who serve this population must, therefore, intentionally shift the balance of power to encourage independent living and to give people with disabilities a voice in their own lives. Changes in the system of care, training, and the way questions of competency are adjudicated are contemplated.

Activities of Daily Living↗

Treatment of sexual offenses by persons with developmental disabilities.

Sexual offenses, particularly paraphilias, although infrequent, are committed by people with mental retardation. Their management poses clinical and ethical dilemmas. Available treatments were reviewed, especially the literature on the most effective agent, medroxyprogesterone acetate (MPA). A case history was presented of a young man with mild mental retardation who was successfully treated with MPA. The role of antiandrogen treatments of paraphilias among the mentally retarded population includes a consideration of informed consent and ethical aspects of treatment.

Adolescent↗

Teaching developmentally disabled children with chronic illness to swallow prescribed capsules.

Child noncompliance with prescribed medical regimens, including nonacceptance of oral medication, frequently impedes medical treatment and achievement of clinical aims. During this study, we used a single-subject experimental design to evaluate the effectiveness of a capsule-swallowing training curriculum specifically developed to promote acceptance of oral medication by multihandicapped children. Four such children participated, each diagnosed with a chronic pediatric illness requiring daily intake of oral medication. Training consisted of verbal instruction, demonstration, reinforcement for swallowing candies/capsules progressively larger in size, ignoring mild inappropriate behavior, and gradually providing less guidance and structure. In each case, the curriculum produced routine independent swallowing of prescribed capsules/tablets. Follow-up assessments, coupled with parent satisfaction ratings, suggest that skill acquisition was both enduring and clinically significant. This study validates a brief, readily exportable, and effective approach to teaching handicapped children to swallow capsules.

Adolescent↗