[Vocational guidance and vocational training of children and adolescents with neuromuscular diseases].
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The paper describes the design and use of a machine, the "Psychograph," which automatically measured the size and shape of the skull and provided evaluations of mental traits according to phrenological principles. Developed in 1930, the psychograph was billed as a diagnostic tool capable of providing suitable vocational guidance to the thousands of unemployed as a result of the Depression. Its appearance prompted a vigorous opposition from the Psychology Department at the University of Minnesota, especially in the person of Donald L. Paterson. Subsequently, the psychograph was merely exploited for its entertainment value and disappeared after the 1933 World's Fair in Chicago.
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A group of 22 patients suffering from osteogenesis imperfecta tarda were evaluated on their school and vocational education, sport activities as well as personality development with the help of follow-up studies, questionnaires or medical records. 21 patients had at least received elementary school education and had been average or good pupils. Five of six patients who had meanwhile reached adulthood had received higher education and vocational training. Owing to their disease five of six patients had to give up their original jobs or occupational plans. There was only one female patient who had received vocational guidance. Of ten children and six adults five and four respectively carried out sports in their leisure time. To improve the patients' situation it is immediately necessary that (1) the parents be informed of the nature of the disease as well as its heridity, and be advised how to handle these children; (2) the patients and their parents receive educational and vocational guidance.
A sample of 36 juvenile diabetics, age 19--28 years, and with a duration of diabetes of 14--17 years were interviewed with regard to their social adaptation. Five patients could not be traced and six patients did not want to participate. Educational and professional careers were normal. However, none had received individual diabetes-oriented vocational guidance. A majority of patients was unsatisfied with the information given at the diabetic clinics, and a negative attitude towards society and its institutions was common. Patients often felt that as children they had been neglected by the diabetic team, while their parents received all information. It is concluded that diabetic children and adolescents require continuous socio-psychological support, that psychologists and/or social workers should be permanent members of the diabetic teams, and that paediatricians should follow diabetic patients until they are fully grown up.
By reporting a further case attention is drawn to the autosomal recessive inherited DIDMOAD-syndrome. While diabetes mellitus and optic atrophy are easy to recognize, one often has specifically to look for deafness, diabetes insipidus and the frequently associated dilatation of the urinary tract. Awareness of this condition is important for genetic counselling and vocational guidance, and allows to avoid invasive neuroradiological investigations.
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