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At least 19 recordsLinked to original sources
PubMed1977

Behavioral science research: ethical and policy implications.

Problems centered about protection of human subjects in behavioral science research are discussed. Difficulties in obtaining truly informed consent are noted. It is concluded that the risks involved to subjects are minimal in this field of research. The use of deception in psychological research is discussed along with the necessity of appropriately debriefing the subject. The use of institutional committees to protect subjects' rights is contrasted with the bureaucratic review processes of the government. It is concluded that, in the absence of evidence to the contrary, the local institutional review process is likely to induce greater cooperation from investigators in protecting subjects' rights.

Behavioral Research↗
PubMed1977

Social sciences research: ethical and policy implications.

Ethical issues are raised about the conduct of social research in the dental field particularly with respect to the use of survey methodology and aggregated data. Problems associated with respondent identifiers, open-ended and probing questioning, privacy of subject-matter, community contamination and burden, group stereotyping, knowledge of law violations, mis-use of data banks, re-use of data, effects of disclosure, and referral for treatment are discussed. The natural and the contrived social experiments are reviewed as well as the issue of needed research on the effects of regulation on science and on the protection of privacy.

Behavioral Research↗
PubMed1979

Research ethics.

Explore the source record for details and available documents.

Australia↗
PubMedDate not supplied

Some subjective reactions of a behavioral scientist involved in thanatological research.

Ethical and pragmatic considerations often preclude the application of classical experimental approaches to in vivo thanatological research. While quasi-experimental and correlational designs may be employed to circumvent a number of potential problems, many more empirically testable research questions simply remain unaskable in the applied setting. Clearly, extra-experimental sources of information are of particular value in such situations. The present paper reports some of the observations and subjective reactions experienced by the writer while engaged in a series of experimental thanatological research studies. The issues addressed include the motivations of thanatological investigators and research participants, personal awareness of death, displacement of grief, anxieties about personal utility, paternalism, and honesty (i.e., frankness) as a primary ethic in facilitating a peaceful, "natural," death in the moribund individual.

Anxiety↗
PubMed2025

Guidelines for the Creation of Accessible Consent Materials and Procedures: Lessons from Research with Autistic People and People with Intellectual Disability.

Informed, voluntary, ongoing consent is a central tenet of ethical research. However, consent processes are prone to exclusionary practices and inaccessibility. Consent materials are often too long and complex to foster understanding and ensure that people make truly informed decisions to participate in research. While this complexity is problematic for all people, these challenges are compounded for autistic people and people with intellectual disability. Consent materials and procedures rarely incorporate accommodations for processing and communication differences common in autism and intellectual disability. Failure to provide such accommodations ultimately threatens the conduct of ethical research. We describe lessons learned across multiple major U.S. research institutions that improved informed consent materials and procedures, with the goal of fostering responsible inclusion in research for autistic people and people with intellectual disability. We used these alternative materials and procedures in multiple research projects with samples of autistic people and people with intellectual disability. Each contributing team partnered with university human research participant protections personnel, accessibility experts, community members, and researchers to develop rigorous procedures for improving the readability and accessibility of informed consent materials. We present guidelines for designing consent materials and procedures and assert that participatory methods are vital to the success of ongoing accessibility initiatives. Adoption of understandable consent materials and accessible consent procedures can cultivate more equitable, respectful, and inclusive human research practices. Future work should expand on this work to design inclusive practices for populations with additional considerations.

autism↗