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Cerebral palsy: defining the problem.

Michael I Shevell·John B Bodensteiner
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Abstract

The term "cerebral palsy" has had varied meanings over the past century. This article presents the current consensus definition that best captures the core elements of this heterogeneous entity. Elements comprising the components of the consensus definition are elaborated upon to provide clarity. Areas of remaining lack of consensus, mostly reflecting the timing of diagnosis and the exclusion of various etiologic entities are highlighted.

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Cerebral PalsyChild, PreschoolCognition DisordersFemaleFetal DiseasesHumansInfantInfant, NewbornMalePregnancyJournal ArticleResearch Support, Non-U.S. Gov'tReview

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BibTeXRIS

Michael I Shevell, John B Bodensteiner. 2004. Cerebral palsy: defining the problem.. https://doi.org/10.1016/j.spen.2004.01.001

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Psychometric properties of the quality of life questionnaire for children with CP.

This paper describes the development and psychometric properties of a condition-specific quality of life instrument for children with cerebral palsy (CP QOL-Child). A sample of 205 primary caregivers of children with CP aged 4 to 12 years (mean 8y 5mo) and 53 children aged 9 to 12 years completed the CP QOL-Child. The children (112 males, 93 females) were sampled across Gross Motor Function Classification System (GMFCS) levels (Level I=18%, II=28%, III=14%, IV=11%, V=27%). Primary caregivers also completed other measures of child health (Child Health Questionnaire; CHQ), QOL (KIDSCREEN), and functioning (GMFCS). Internal consistency ranged from 0.74 to 0.92 for primary caregivers and from 0.80 to 0.90 for child self-report. For primary caregivers, 2-week test-retest reliability ranged from 0.76 to 0.89. The validity of the CP QOL is supported by the pattern of correlations between CP QOL-Child scales with the CHQ, KIDSCREEN, and GMFCS. Preliminary statistics suggest that the child self-report questionnaire has acceptable psychometric properties. The questionnaire can be freely accessed at http://www.deakin.edu.ac/hmnbs/chase/cerebralpalsy/cp_qol_home.php.

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