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PubMedDate not supplied

Measuring hearing aid outcomes--not as easy as it seems.

Outcomes measurement in audiology has received much attention because of the need to demonstrate efficacy of treatment, provide evidence for third-party payment, carry out cost-benefit analyses, and justify resource allocation. Outcomes measurement shows the benefits obtained from a hearing aid and determines the costs of obtaining those benefits. In this article, we discuss why the seemingly simple issue of outcomes measurement is highly complex and the use of generic and disease-specific tools and the relationship between them; we also provide information regarding the International Classification of Functioning (ICF) system for selecting outcome measures. We then discuss factors complicating outcomes measurement, including discrepancies between clinically derived outcomes and functional outcomes, the ways clinicians can affect outcomes, and factors intrinsic to the patient that influence outcomes. We conclude that if the vision of moving quickly and efficiently from bench to chairside is to be realized, then clinicians must routinely measure hearing aid outcomes and researchers investigate their validity and usefulness.

Audiology↗

PubMed1980

The physically disabled in the Netherlands--evaluation of the 1971/1972 survey.

This article describes a survey to collect information on the physically disabled in the Netherlands, carried out in 1971/1972. Definitions, objectives, and methods are described. Estimated numbers of disabled people in the Netherlands are given, together with their main characteristics in terms of age, sex, kind of functional disorder, and underlying cause. Impaired people are also compared with non-impaired persons in the population, so as to reveal measures of deprivation. The overall results of the survey are then assessed, in terms both of the extent to which the original objectives were attained and of disadvantages encountered. The paper concludes with a discussion of more recent developments, including the introduction of the International Classification of Impairments, Disabilities, and Handicaps, a study of factors determining needs, and a catalogue of requirements for updating, completing, and enlarging the data.

Adolescent↗

PubMed1993

[Evaluation of the design and reliability of a questionnaire to identify elderly individuals in need for social and health services].

BACKGROUND: To assess the construction of a short screening questionnaire designed for the detection of elderly people living in the community and in need of social and health care, and to test the reliability of the scores obtained on the scales of Activities of Daily Living (ADL) and mobility through its application. METHODS: A short screening questionnaire of 11 items was designed to score elderly community dwellings on the scales of ADL and mobility of the International Classification of Impairments, Disabilities and Handicaps of the WHO (ICIDH). A random sample of 1,000 people aged 65 and over from the community of a geographical area of Catalonia (Spain) were interviewed in 1989, either by telephone or in-home personal interview, by non-professional trained interviewers on the basis of the mentioned schedule, and scored on the ICIDH ADL and Mobility scales. The design of the screening questionnaire was evaluated on the construction, content and wording through a 16 opinion statements questionnaire upon which 12 professionals, familiarized with questionnaire construction, expressed agreement or disagreement. To test reliability, each interviewer re-scored, one month apart, 20 subjects based on the information they had registered on the questionnaires, and following the same procedure, a gold standard observer re-scored all 1,000 interviews. In addition, a number of interviews were tape recorded, with previous consent of the subjects, and re-scored by 9 different observers. Interobserver and intraobserver reliability was measured with Cohen's weighted kappa coefficient. RESULTS: The average time of questionnaire administration was approximately 10 +/- 5 min. Although the instrument was said to be a good tool for the interviewer to score the subjects on the scales, wording of some items of the questionnaire need to be reviewed. Both intraobserver and interobserver reliability were high: kappa coefficients of 0.79-0.97 and > 0.75 respectively. CONCLUSIONS: The use of a simple and reliable ADL and mobility questionnaire is a practical way to obtain information on the functional status of elderly people living at home, and to select elderly people for a further comprehensive assessment of their social and health care needs for planning the appropriate services in the community.

Activities of Daily Living↗

PubMedDate not supplied

An introduction to the concepts and classifications of the international classification of impairments, disabilities, and handicaps.

This paper aims to introduce the International Classification of Impairments, Disabilities, and Handicaps (ICIDH) and to set the scene for the forthcoming revision process. The consequences of diseases and disorders at the level of the body (impairment), the person (disability), and the person as a social being (handicap) are defined and described. Bearing in mind some of the controversies and confusions which have become apparent in attempts to apply the ICIDH since its publication in 1980, the distinctions between the different concepts are explored: namely, impairment--disability; impairment--functional limitation--disability; and between disability--handicap. The nature of the classification schemes for these concepts is described, together with some implications for methods of assessment. Finally, the contribution the ICIDH has made, and its potential uses are briefly reviewed.

Persons with Disabilities↗

PubMedDate not supplied

Auditory disablements: an update.

In 1999, the World Health Organization issued a document (Beta-2 ICIDH-2) that outlines proposed revisions to the original International Classification of Impairments, Disabilities, and Handicaps. The document, issued for trial purposes, is significant in that it redefines the theoretical context in which audiological research into hearing disability has operated since 1980 and will develop in the future. The purpose of this article is threefold. First, it provides an introductory descriptive overview of the primary disablement dimensions outlined in the Beta-2 version of the ICIDH-2 framework. Second, in discussing the implications of the revised framework for audiology, the article highlights particular classification issues that require clarification if the framework is to be applied effectively in audiological research and practice. Third, the article evaluates the revised framework in the context of recent conceptual developments in audiological research and raises a number of issues for further discussion and investigation. The article concludes that the Beta-2 ICIDH-2 represents a significant advance on the original ICIDH classification framework on three counts. First, much of the rationale underpinning the revised framework, particularly its redefinition of the primary disablement dimensions, is consistent with recent conceptual developments in audiological research into hearing disablements. Second, the framework offers specific pointers for the development of current audiological research and practice. One potential line of enquiry focuses attention on specific ICIDH-2 dimensions that are currently under-represented in audiological literature, namely, the participation and contextual factors dimensions. Another potential line of enquiry focuses attention on issues pertaining to the measurement of function, specifically the inclusion of "positive" outcome indicators in assessment. Finally, the publication of the revised ICIDH-2 framework offers a standard frame of reference from which to conduct larger debates in the audiological literature about the nature and purpose of audiological rehabilitation and the influence of the ecological perspective on the rehabilitative process.

Adaptation, Psychological↗

PubMed2000

Clinical meaning of the Stroke-Adapted Sickness Impact Profile-30 and the Sickness Impact Profile-136.

BACKGROUND AND PURPOSE: Handicap or health-related quality of life (HRQL) measures are seldom used in stroke trials, although the importance of these measures has been stressed frequently. We studied the clinical meaning of the Stroke-Adapted Sickness Impact Profile-30 (SA-SIP30) and the original SIP136 for use in stroke research. METHODS: We included 418 patients who had had a stroke 6 months earlier. We studied the associations between the SA-SIP30 and SIP136 scores versus other frequently used outcome measures from the International Classification of Impairments, Disabilities, and Handicaps (ICIDH) (Barthel Index, Rankin Scale) and the HRQL model (health perception items, Euroqol). To interpret the continuous SA-SIP30 and SIP136 scores, we used receiver operating characteristic curve analysis with the aforementioned measures as external criteria. RESULTS: The psychosocial dimension scores of both SIP versions remained largely unexplained. The physical dimension and total scores of both SIP versions were mainly associated with the disability measures derived from the ICIDH model, as well as with the physical HRQL domains. Most patients with an SA-SIP30 total score >33 or an SIP136 total score >22 had poor health profiles. There were no major differences between the SA-SIP30 and the SIP136, although the SA-SIP30 scores were less skewed toward the healthier outcomes than the SIP136. CONCLUSIONS: Our study showed that (1) both SIP total scores primarily represent aspects of physical functioning and not HRQL; (2) both SIP versions provide more clinical information than the frequently used disability measures; and (3) the SA-SIP30 should be preferred over the SIP136.

Activities of Daily Living↗

PubMed2003

Characteristics of disability and handicap among Toxic Oil Syndrome (TOS) cohort patients: a cross-sectional study, 17 years after the original food intoxication.

PURPOSE: In 1981, a progressive multi-systemic disease called Toxic Oil Syndrome (TOS) appeared in Spain as an epidemic that affected 20,000 people. The International Classification of Impairments, Disabilities and Handicaps (ICIDH) was chosen to characterize the health status of patients more severely affected by TOS. METHODS: A random sample of 292 with permanent disability was selected. Disability was assessed with a questionnaire based on ICIDH and the Stanford Health Assessment Questionnaire. Handicap was measured using London Handicap Scale. Distributions of the proportions and 95% confidence intervals for disabilities, handicaps were calculated and stratified by dimensions, age and sex. The chi2 test was used for inter-group comparisons. RESULTS: Two hundred and fourteen patients were interviewed. Mobility-related and behaviour disabilities were most prevalent. Disability rose with age and was higher among women, except for behaviour disabilities which were more frequent in young men. Mean handicap score was 78.0 +/- 12.7. Handicap dimensions most affected were physical independence and economic self-sufficiency. CONCLUSIONS: The health profile of the population hardest hit by TOS is characterized by the presence of important functional and psychosocial disabilities that limit performance of daily living activities and social role, and are in accord with the handicap that such persons suffer.

Activities of Daily Living↗

PubMed1994

Low back pain: program description and outcome in a case series.

Studies are needed to enhance our understanding of functional outcomes. The purpose of this paper is to describe a community clinic program for injured workers with low back pain and to report outcomes of the first 50 consecutive patients to enter the program who were evaluated using a standardized assessment procedure. Data for this report were collected from a retrospective chart review as part of an evaluation of the program. The patients referred to the clinic entered a 4-week treatment program. They were assessed at entry and discharge using the Toronto-Hamilton Lumbar Database. The database assessment is a standardized evaluation for documenting subjective and objective clinical data, and the protocol includes a diagnostic classification system and pain and function ratings. The results of this investigation include a statistically significant (p < 0.05) decrease in pain and increase in function as measured by the Jan van Breemen pain and disability scales and the Sickness Impact Profile. Seventy-four percent of the treatment group had returned to work by 6 weeks postdischarge from the program. This study suggests that a significant improvement in functional capabilities, a decrease in pain and disability indices, and higher return-to-work rates can be achieved through a 4-week, community-based multiprofessional rehabilitation program.

Adult↗

PubMed2005

Upper extremity reconstruction in the tetraplegic population, a national epidemiologic study.

PURPOSE: More than 100,000 Americans live with the disability of tetraplegia. For these people their level of independence often is related to the function of the upper extremity. Reconstructive procedures can improve the use of the upper limb and multiple case series have shown benefit from these procedures for appropriate candidates. Discussions with patients and surgeons, however, suggest that these procedures rarely are performed. This study attempted to assess whether upper extremity reconstruction for the tetraplegic population is being used properly. METHODS: Data from 2 inpatient national databases were used (the National Inpatient Sample and Veterans Affairs patient treatment files) for 1988, 1989, 1999, and 2000. Patients were selected by International Classification of Diseases (ICD-9) diagnosis codes for tetraplegia and procedure codes that could represent upper extremity reconstruction. The recommended rate of these surgeries was based on the annual incidence of tetraplegia (5,000) and expert opinion that suggests at least 50% of these people would benefit from upper extremity surgery. RESULTS: Our health care data analysis showed that fewer than 355 of these surgeries were performed in the United States in any year queried. The calculated recommended rate was 2,500 procedures a year, meaning that only 14% of appropriate candidates were receiving upper extremity reconstruction. We also found changes in the expected primary payor, with Medicaid paying for far fewer procedures in 2000 compared with 1988 claims. Finally over the course of time it appears that far fewer of these procedures are being performed. CONCLUSIONS: Functional upper extremity reconstruction for the tetraplegic population is profoundly underused in the United States. Various factors could be causing this disparity of care and we recommend further research into the potential barriers to health care for this vulnerable population.

Adult↗

PubMed1995

The efficacy of psychosocial treatments in primary care. A review of randomized clinical trials.

Depression and anxiety are the most common psychiatric disorders among ambulatory medical patients and are associated with significant functional disability. However, they remain underrecognized and/or inadequately treated. The AHCPR Depression Guideline Panel recently reviewed the efficacy of pharmacologic interventions for mood disorders in the primary care section, but there are as yet no comparable analyses of the efficacy of psychosocial interventions for primary care patients experiencing depression or anxiety. This review of randomized, controlled trials conducted in primary care settings generally supports the efficacy of psychosocial treatments (PSTs) provided to ambulatory medical patients with psychiatric disorders. However, methodologic deficiencies in these trials (i.e., diagnostic classification of study subjects, attrition patterns, and criteria for assessing treatment response) limit the generalizability of their findings to routine practice. Studies evaluating the effect of PSTs on health care cost and utilization found changes in physicians' prescribing practices, patients' use of psychotropic medication, and number of patient visits to primary care physicians. However, results varied across studies because of methodologic deficiencies similar to those noted previously. Suggestions are offered for improving the internal and external validity of randomized PST trials in primary care settings.

Anxiety Disorders↗

PubMed1998

Classifications of the International League Against Epilepsy: time for reappraisal.

Recent advances in neurodiagnostic technology, new insights into fundamental neuronal mechanisms of epilepsy, and rapid developments in molecular genetics have greatly improved our understanding of epileptic seizures and epileptic disorders since 1981, when the current International Classification of Epileptic Seizures was adopted, and since 1989, when the International Classification of Epilepsies, Epileptic Syndromes, and Related Disorders was adopted. Although both have been universally accepted and have proven to be of considerable clinical value, it has become clear that more is needed for specific applications of growing importance, such as presurgical evaluation, clinical pharmacology trials, and epidemiological studies. Therefore, an International League Against Epilepsy (ILAE) task force has evaluated the need for revising our current classification and terminology and has begun developing four specific documents. The first is a descriptive terminology for ictal phenomena, incorporating some of the concepts included in the preceding paper by Dr. Hans Lüders; however, this will be a glossary, not a classification. The second is a classification of epileptic seizures based on known or presumed pathophysiological and anatomic substrates, to replace the current classification, which is based entirely on phenomenology. The third is a classification of epileptic syndromes and epileptic diseases, adapted from the current Classification of Epilepsies, Epileptic Syndromes, and Related Disorders, which will take into account the fact that disorders with unique etiologies, such as a single gene, should be considered diseases, and which will be reorganized for maximum practical application to differential diagnosis. The fourth is a new classification of functional disability due to seizures or epilepsy, based on a new impairment classification for neurological disorders being developed by the World Health Organization. Working groups are currently in the process of developing each of these documents, and their chairs would benefit from any comments or suggestions from those who ultimately will be using these systems of classification and terminology.

Epilepsy↗

PubMed2003

Psychosocial impairment is significant in young referred children with and without psychiatric diagnoses and cognitive delays--applicability and reliability of diagnoses in face of co-morbidity.

"Subthreshold" psychiatric symptoms with clinically significant psychosocial impairment are a diagnostic problem. They may reduce the reliability of classifications and the communicative value of diagnostic descriptions when specific diagnostic categories cannot be applied. This study was undertaken in order to test the reliability and applicability of psychiatric diagnoses and psychosocial functioning scores as well as differences in psychosocial impairment in children referred to a neuropsychiatric outpatient unit. Two hundred and nineteen young children were diagnosed on all ICD-10 axes, except Axis V. First, reliability was tested with moderate to good results for psychiatric diagnoses (Kw = 0.55 and 0.73) and psychosocial impairment (ICC 1.1 = 0.71). Additional specification of the criteria for some of the Axis I diagnoses reduced the number of children with "subthreshold" conditions without a psychiatric diagnosis. Second, the severity of psychosocial impairment differed significantly between five psychiatric groups. Children with "subthreshold" conditions were as impaired psychosocially as those with hyperkinetic disorder and more so than children with emotional, social, and emotional and behavioural disorders. High chronological age, low IQ, low level of social skills, and psychiatric group (PDD) predicted psychosocial impairment. Third, the "subthreshold" group often had language problems (14 out of 18 children) unless they were mentally retarded.

Central Nervous System Diseases↗

PubMed2002

Clinical assessment after acute cervical spinal cord injury.

UNLABELLED: NEUROLOGICAL EXAMINATION: STANDARDS: There is insufficient evidence to support neurological examination standards. GUIDELINES: There is insufficient evidence to support neurological examination guidelines. OPTIONS: The American Spinal Injury Association international standards for neurological and functional classification of spinal cord injury are recommended as the preferred neurological examination tool for clinicians involved in the assessment and care of patients with acute spinal cord injuries. FUNCTIONAL OUTCOME ASSESSMENT: STANDARDS: There is insufficient evidence to support functional outcome assessment standards. GUIDELINES: The Functional Independence Measure is recommended as the functional outcome assessment tool for clinicians involved in the assessment and care of patients with acute spinal cord injuries. OPTIONS: The modified Barthel index is recommended as a functional outcome assessment tool for clinicians involved in the assessment and care of patients with acute spinal cord injuries.

Activities of Daily Living↗

PubMed1998

Natural course of schizophrenic disorders: a 15-year followup of a Dutch incidence cohort.

Data are presented on the 15-year natural course of schizophrenia and other nonaffective functional psychoses in a cohort of 82 first-contact cases from a circumscribed area in the Netherlands. The subjects were suffering from functional psychosis with International Classification of Diseases-Ninth Revision (ICD-9) diagnoses 295, 297, or 298.3-9 (broad definition of schizophrenia) on entry. Standardized assessments of psychopathology, psychological impairments, negative symptomatology, social disability, and use of mental healthcare were used. The study reveals a pattern of chronicity and relapses with a high risk of suicide: Two-thirds of the subjects had at least one relapse and after each relapse 1 of 6 subjects did not remit from the episode; 1 of 10 committed suicide; and 1 of 7 had at least one episode with affective psychotic symptoms that started on average 6 years after the onset of the schizophrenic disorder. Diagnoses were reclassified in five patients, according to DSM-III-R criteria for a bipolar disorder. The predictive power--in terms of time in psychosis and in partial or full remission--of demographic, illness, and treatment variables at onset of the illness was very limited. Insidious onset and delays in mental health treatment are risk factors that predict a longer duration of first or subsequent episodes. The importance of mental health treatment in regard to outcome is probably subject to change because an early warning and intervention strategy could prevent further damage and deterioration. Our data support the need for an adequate relapse prevention program as a priority for our mental health services.

Activities of Daily Living↗

PubMed2004

Factors influencing the exercise behavior of adults with physical disabilities.

PURPOSE: Examine the theorized associations of transtheoretical model (TTM) of behavior change constructs (behavioral and cognitive processes of change, decisional balance, and self-efficacy), along with exercise barriers, by stage of change for exercise behavior among individuals with physical disabilities. METHODS: Cross-sectional survey of 322 adults with physical disabilities residing in the United States. Most participants (84.3%) used some form of assistive device (e.g., artificial limb, wheelchair), were female (62.1%), and Caucasian (91.9%). The mean age of participants was 52.5 yr (SD = 13.9). Participants completed and returned questionnaires for each TTM construct, along with an exercise barriers measure. RESULTS: In univariate analyses, all constructs were significantly (P < 0.001) associated with the stages of change for exercise behavior, except for dramatic relief (P > 0.005). The largest portion of variance was derived from counter conditioning (eta = 0.45), followed by the five behavioral processes of change combined (eta = 0.40), self-liberation (eta = 0.31), self-efficacy (eta = 0.30), and self-reevaluation (eta = 0.28). Direct discriminant function (multivariate) analysis revealed four discriminant functions which accounted for 71.0% (P < 0.001), 20.9% (P < 0.001), 6.3% (P < 0.05), and 1.8% (P = 0.62), respectively, of the between-group (stage of change) variability. The overall stage of change classification accuracy was 70.8%. CONCLUSION: This was the first study to examine the stages of change for exercise behavior among adults with physical disabilities on the basis of the full TTM and exercise barriers. Overall, the results are in general agreement with existing evidence among nondisabled populations. This provides further cross-sectional support for the internal and external validity of TTM and exercise barriers among a unique and understudied population segment.

Adult↗

PubMedDate not supplied

Potentially modifiable factors associated with disability among people with diabetes.

OBJECTIVE: This article seeks to identify potentially modifiable factors associated with disability among people with diabetes. STUDY DESIGN AND SETTING: Among people with diabetes (N = 4357) in a large health maintenance organization, disease severity, psychologic and behavioral risk factors for disability were assessed. Disability was evaluated by the WHO Disability Assessment Scale (WHO-DAS-II), the SF-36 Social Functioning scale, and days of reduced household work. RESULTS: Depression was associated with a tenfold increase in elevated WHO-DAS-II and low SF-36 Social Functioning scores, and a fourfold increase in 20+ days of reduced household work. Minor depression and the presence of three or more diabetic complications were associated with approximately a twofold increase in disability risk. Diabetic symptoms, chronic disease comorbidity, and reduced exercise were also associated with disability. CONCLUSION: Among people with diabetes, depression, diabetic complications, and exercise are potentially modifiable factors associated with disability. This suggests that integrated, biopsychosocial approaches may be needed to understand and to ameliorate disability among people with diabetes.

Activities of Daily Living↗

PubMed1982

Self-control and chronic headache.

The relationship between self-control and headache pain was studied in a sample of 42 female subjects with migraine or mixed migraine-muscle contraction headaches. Subjects completed questionnaires evaluating self-control tendencies and social desirability. The McGill Pain Questionnaire was also completed during a single representative migraine headache and daily ratings of headache severity (duration, intensity, disability due to pain) and medication intake were collected over a seven-week period. A significant discriminant function which resulted in 71% correct classification of High and Low Self-Control subjects was obtained. The pattern of responses associated with the high self-control group was characterized by lower ratings of pain intensity, less focus on sensory dimensions of pain and more frequent use of certain medications. A correlation between self-control and social desirability was also observed. These findings suggest that the trait self-control may be associated with a particular pattern of pain, although the influence of social desirability cannot be ruled out as an alternative explanation.

Adaptation, Psychological↗

PubMed1996

The epidemiology, clinical characteristics, and natural history of older nursing home residents with a diagnosis of Parkinson's disease.

OBJECTIVE: To determine the epidemiology, clinical characteristics and natural history of nursing home residents with a diagnosis of Parkinson's disease (PD). DESIGN: A cohort study with 18-month follow-up utilizing resident assessments from the National HealthCorp 1991-1992 dataset. SETTING: Seventy-one National HealthCorp nursing homes. PARTICIPANTS: A total of 5020 nursing home residents older than age 55 were studied. Residents with primary and secondary diagnoses of PD were identified from the population using the International Classification of Diseases, Ninth Revision, Clinical Modification code 332.0. MEASUREMENTS: Baseline demographic and clinical characteristics were compared for residents with and those without Parkinson's disease. Outcome measures over the course of 18 months included death and functional status. RESULTS: The prevalence of a diagnosis of PD was 6.8%. Significant factors associated independently with PD included: younger age (79 +/- 7 vs 81 +/- 9 years; P < .001), male sex (32% vs 23%; P < .001), severe dependence in activities of daily living (OR = 1.26; 95% CI 1.08-1.46), impared body control (OR = 1.38; 95% CI 1.03-1.68), symptoms of depression (OR = 1.29; 95% CI 1.02-1.64), and the number of daily medications (OR = 1.23; 95% CI 1.08-1.44). Residents with a diagnosis of PD had a faster rate of functional decline over 18 months (P < .001) but did not have a higher mortality rate than residents without PD. CONCLUSIONS: Parkinson's disease is a relatively common diagnosis among nursing home residents and is associated with increased functional disability. There are several potentially modifiable conditions associated with PD that may offer an opportunity to design specific interventions and health services to improve the quality of life and slow functional decline in this frail population.

Activities of Daily Living↗